When do you stop searching for a miracle and just let them go?
After two years of emotional and physicsl upheaval since diagnosis, I had just gotten resigned to living our lives as best we could until the end. Then a friend reccomended hyperbaric therapy for dementia which is showing great promise for improvement and after researching, I made an appointment with an upbeat heart.
Today I had lunch with an old classmate who has been caring for her dementia husband for five years and she told me that they had been offered treatment that might improve his life and give him an extra 6 months. They decided against the treatment saying why prolong the inevetible? Lord, that question has now rocked my inner soul and if all I can get is a prolongation of worsening, where do we go from here?
Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.
Boppi, I've been caring for my husband with Alzheimer's for several years. Somewhere along the way I came across this quote from Jon Kabat Zinn, "healing - coming to terms with things the way they are." I keep it posted where I can see it often. So "where to I go from here". I focus on bringing love and kindness into each day. It has been transformative for both of us. Another quote that has been helpful to me as a caregiver was from On Pluto by Greg O'Brian who lives with Alzheimer's. His words, "I don't trust my brain anymore, so I follow my heart."
Life is a miracle, but with Life, there must be Death. So Death is part of the Miracle too.
Only the unborn are the undying.
I'm answering this complicated question with my simple answer........... NEVER!!!!!!!!!
My husband is having kisunla infusions. While I haven’t seen return of memory, he’s remaining about the same. Today he managed to dress completely by himself but had a little trouble with the coffeemaker. Small wins. And I’ll try whatever to keep it at bay however long that might be. Good luck. Follow your heart. And I’ll be checking on your info.
Hello, @boppi, This is a question my wife and I addressed early in her 14+ year battle with brain cancer, and I'm glad we did. My wife always followed the mantra of 'quality over quantity' in her medical care decisions. When I took over all the decision-making with her POAs, etc., I followed this decision/desire of hers.
As even every day, mundane tasks became difficult and more challenging for her, not to mention medical procedures, there were many decisions made to forego options that were available for her.
Tough decisions still, but I'm thankful I knew she always valued the quality of her life as paramount.
Strength, Courage, & Peace
I think if there is a "time" you will know. I can't forsee it now. But I'll want Hospice by my side.
Thanks for the quotes.
Here's a quote that has helped me come to terms with that fact that George's days on earth are limited (we started hospice yesterday):
"Remember, as long as we have memories, yesterday remains. As long as we have hope, tomorrow awaits. As long as we have love, today is beautiful. As long as we have God, anything and everything is possible...."
George's Wife
The body is frail. One way or another, it falls apart. The Spirit and Soul are immortal. They abide after the body is gone. Not just memories, but daily embrace, if we allow it.
A Hospice nurse:
Thank you!