What were my odds?
I had no idea.
We drove to the hospital at 1am, triaged immediately, multiple tests and scans, and a surgeon on the way by early morning. I had a bunch of issues including a 6.5cm aneurysm and a both-ways dissection the full length of my aorta. It is truly a miracle that I am even here.
There was no discussion, no options, no waiting, and no information. They didn't tell me what was happening or what issues I really had. Or maybe they did? Or maybe they thought that someone else had told me how bad it was, and that I already knew. Maybe they thought they didn't need to say too much, so they didn't.
I actually thought I was going home.
So, now I have this constant debate with myself... would it have been better to know in advance, or to not know? What would I have done if I knew a month or two or six in advance? Or would it have been better to not know?
For my family, it was terrifying. And sitting there in the emergency department, the idea of not being around had not even crossed my mind, and before it could I was off being prepped for the most existential experience I have ever had. I was numb and the gravity of my situation hadn't worked on me - one test moved on to another so quickly that I thought the eight hours until surgery was only one.
So maybe with the knowledge of a possible surgery, it would have been better to have the time to plan and to take care of some things: personal and financial. And medical - in advance I could have had options and a medical plan. It would have been better to have the time to change things.
I still don't feel how extreme my chances were - I have run some numbers (and I know I shouldn't but I do); the success of surgery, the success of the recovery, the estimated chance per billion that I would have the issues that I had (and still have) and the even smaller chance that I would have a positive outcome. A nurse called me at home two weeks later, and I told her that in hospital I was worried I would have a stroke. She said it is common. Wow. I had open heart surgery and a second surgery the same day to remove some blockage. Wow. (So many "wow".)
My aneurysm was left too late, and this probably caused the complete aortic dissection. I don't know how long things were getting crazy inside my chest. All the combined issues I had were so rare that the hospital doctors were inviting med students to come and listen to my heart. They would say "This patient had a Triple A" and then chant off a bunch of other things, "type A, type B, dissection, root, valve...". The nurses changed shifts and just referred to me in their handovers as "the triple A patient". I was their show pony for two weeks - I felt good about that but on reflection I think the notoriety was only a sign of how bad it could have been for me.
That morning, they weren't going to let me leave the hospital.
Nup.
Oh yeah, I almost forgot. That night we called the ambulance? It never arrived. After waiting, my wife drove me to the hospital - while I stupidly insisted on staying at home. The car ride was a (another) risk that could have ended badly. But I actually think if I had stayed home and waited, things would have been much worse.
What were my chances?
Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.
I am new to this site and grateful for hearing about the miracles that have transpired. I have been contemplating whether ignorance is bless or preemptive knowledge is better. I think my take away is God has a plan, those that survive without prior knowledge and those of us he gives time to plan. Either time to get things in order or time to schedule surgery.
In any event, finding this site and knowing there are others going through the same anxiety and having the opportunity to share is already giving me comfort and hope.
Thank you all for your strength and encouraging words.
Be well!
Wonderwoman God has a plan. But I would have liked a little more time.
With five minutes notice, I was pushed along the hallway to the OR. There was only time to say "I love you" to my wife with our hands outstretched to each other - like in the movies.
There is much I would have given to have five more minutes,... or hours or days or weeks. God has a plan for me, that's why I am still here, standing proudly with this scar down my chest - not shaking my fists at the sky, but pointing there and smiling, laughing, and crying with joy. God guided the hands of many skilled people, and gave them opportunities to learn and be educated, and be there that night to save me for something special.