What to do when doctors disagree on next steps for an MCI patient

Posted by marketlink @marketlink, May 14 8:49pm

This is my first post. My husband was diagnosed with MCI a month ago by his Counsellor who has a PHD in neuro psychology. I was so grateful for the diagnosis since it explains so many of the behavioural changes I’ve been seeing for several years. For so long I’ve thought our marriage was in trouble.

She recommended he be referred to a geriatric psychiatric for possible brain scans and to deal with some depression as well. She sent the report to his family doctor since in Canada the referral usually needs to come from him. His family doc ran some basic blood tests (which were fine) and then told him that he’s not in favour of sending him to the geriatric specialist. He said that they are quick to label people with Alzheimer’s and once my hubby was labelled, his life won’t be the same. He warned him he may not be able to get insurance anymore or travel with the new label and suggested he wait a year.

Help. My hubby came home very defiant and told me it’s his life and he doesn’t want to be labeled. He said that one he gets that diagnosis there’s no point in living and I might as well put him in a home.

I’m struggling with all my emotions, his mood swings and not knowing what to suggest or next moves. His Counsellor is amazing but I don’t know if it’s my place to reach out to her. She’s given me permission to do so and so has my husband.

Has anyone else faced something similar. Any suggestions would be welcomed.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@marketlink

Hi @4goakley. Thanks for posting and sharing your experience as well. My hubby still drives, volunteers and is really independent as well so there are some days when I feel like I am making this all up. Then we have a bad day with lots of emotions and I know that it's more than just a mood swing. His counsellor has her PHD is neuro psychology and specializes in dementia so I'm going to let her guide us and hope the family doctor doesn't do too much damage. I understand the idea that a label can change your life but I also think it's important to get information so we both can plan for the future. Good luck to you as well!

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Wow! That’s exactly how I feel….befuddled. Am I exaggerating? Do I really need to take control of the finances? Some days I wonder why I doubt my hubby’s capabilities…and then…bang! If I take a step back, get my emotions under control I see a completely different picture. I am angry at myself for loosing the plot when things are going well. Why do I allow myself to get into circular arguments, why do I not keep in the forefront of my mind that he genuinely believes his reality? My way of dealing with this new diagnosis is to be compassionate and patient but it’s not working too well. My hubby is not embracing his MCI at all and can be quite abusive as well as emotional…..

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