What happens after 3 years of (hopefully) successful BCG treatments?

Posted by joesmom03 @joesmom03, 10 hours ago

I was diagnosed with high grade NMIBC in Jan 2023. I’m being treated at a NCI University based hospital. I’ve had regular cystoscopies that have been NED.

I have a cystoscopy later today and will ask this question but I’m curious what others have done at this point. My oncologist told me that we get 3 years of treatment but we haven’t discussed what happens next.

Do people just stop treatments altogether and continue with surveillance? If I get a choice, what have others done? I have pretty common side effects, a painful 24 hours after treatment and now kind of constant fatigue.

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

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