Hi. My cystoscopy on Monday was NED. Still waiting for cytology results.

My oncologist said that her protocol is 3 years of BCG and that’s it. No other treatment is necessary. I’ll continue with 6 month cystoscopies into year 4, then yearly. I also get yearly lung and pelvic CTs.

I left my appointment elated because she said doing a full three years of BCG is rare. I should be pleased and I am, but with high grade disease I’ve always felt like a ticking time bomb and now I feel a layer of protection is gone now without treatment.

I know, it’s the nature of the beast, maybe without the BCG treatments I won’t have the regular reminders that I have cancer.

Thanks and all my best to us all.