What do you do when your temperature goes Up, Up,..?

Posted by Rosemary, Volunteer Mentor @rosemarya, Sun, Sep 1 3:33pm

Do you act on it? Do you monitor it at regular intervals? Do you watch it and hope it goes back down? Do you wrap in a warm blanket to stop shivering? What if it happens on a Weekend, Holiday, after hours?

Hi, All.
Simply stated, "I have a low grade fever." And I have no other symptoms that I am aware of. It is 92 degrees outside, and I am shivering. I have raised the AC to 78 so that I don't freeze and Hubby doesn't wilt.
As luck would have it, my PCP is not in because it is Sunday. My transplant guide says to contact PCP if my temperature rises to 101. I'm at 100.4 and will recheck in 30 minutes. I plan to call the 24/7 Mayo Transplant afterhours line if I reach the big 101. Then, I will follow whatever advice I am given. I have the option of an urgent care until 6 PM, and ER that is less that 1 mile from my front door.

I have had bad fever experiences in the past, and so we have vivid and frightening memories that cause undo stress and worry. What experience do you have that might help to put my mind at ease?

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@rosemarya

Hi, All.
Simply stated, "I have a low grade fever." And I have no other symptoms that I am aware of. It is 92 degrees outside, and I am shivering. I have raised the AC to 78 so that I don't freeze and Hubby doesn't wilt.
As luck would have it, my PCP is not in because it is Sunday. My transplant guide says to contact PCP if my temperature rises to 101. I'm at 100.4 and will recheck in 30 minutes. I plan to call the 24/7 Mayo Transplant afterhours line if I reach the big 101. Then, I will follow whatever advice I am given. I have the option of an urgent care until 6 PM, and ER that is less that 1 mile from my front door.

I have had bad fever experiences in the past, and so we have vivid and frightening memories that cause undo stress and worry. What experience do you have that might help to put my mind at ease?

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Interesting you brought this up. I too always waited for the majic number 101.4. but this last may i was running a low grade temp from 99-100 almost every night for a couple of weeks. It would be its normal 97 range every morning. Untill one Sunday the beginning of June it went over 100 and finally hit 102 which prompted a phone call. After telling my Transplant Cardiologist what had happened the weeks prior she said i should have called earlier. I had the chills also but only at night. Daytime i felt fine. Well after 5 weeks in the hospital they finally found the source of the fever. So my advice would be to call.

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@rosemarya

Hi, All.
Simply stated, "I have a low grade fever." And I have no other symptoms that I am aware of. It is 92 degrees outside, and I am shivering. I have raised the AC to 78 so that I don't freeze and Hubby doesn't wilt.
As luck would have it, my PCP is not in because it is Sunday. My transplant guide says to contact PCP if my temperature rises to 101. I'm at 100.4 and will recheck in 30 minutes. I plan to call the 24/7 Mayo Transplant afterhours line if I reach the big 101. Then, I will follow whatever advice I am given. I have the option of an urgent care until 6 PM, and ER that is less that 1 mile from my front door.

I have had bad fever experiences in the past, and so we have vivid and frightening memories that cause undo stress and worry. What experience do you have that might help to put my mind at ease?

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Call it in! The doctors on the Mayo line are awesome, just tell them you wanted to be safe rather than sorry. They may send you to the ER or Urgent Care but at least then you'll know it is the right thing to do. If you need antibiotics they can tell you what is safe to take. They set up the call system so we can access the help we need, especially if we are afraid. The Mayo team wants your liver and kidney transplants to last for decades, call them, you'll feel better and they will know exactly what to do.

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@jolinda

Call it in! The doctors on the Mayo line are awesome, just tell them you wanted to be safe rather than sorry. They may send you to the ER or Urgent Care but at least then you'll know it is the right thing to do. If you need antibiotics they can tell you what is safe to take. They set up the call system so we can access the help we need, especially if we are afraid. The Mayo team wants your liver and kidney transplants to last for decades, call them, you'll feel better and they will know exactly what to do.

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That's one of the first questions my doctor asks at an appointment "have you had any fever?). They are always concerned as that can be the first sign of infection or rejection. I have always been told to monitor myself and if the fever gets too high for a day or more to go to the ER. I was subscribed Septra for the 12 months after surgery. I take a fever pretty seriously if it doesn't come down after 24 hours.

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@rosemarya

Hi, All.
Simply stated, "I have a low grade fever." And I have no other symptoms that I am aware of. It is 92 degrees outside, and I am shivering. I have raised the AC to 78 so that I don't freeze and Hubby doesn't wilt.
As luck would have it, my PCP is not in because it is Sunday. My transplant guide says to contact PCP if my temperature rises to 101. I'm at 100.4 and will recheck in 30 minutes. I plan to call the 24/7 Mayo Transplant afterhours line if I reach the big 101. Then, I will follow whatever advice I am given. I have the option of an urgent care until 6 PM, and ER that is less that 1 mile from my front door.

I have had bad fever experiences in the past, and so we have vivid and frightening memories that cause undo stress and worry. What experience do you have that might help to put my mind at ease?

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@rosemarya It's worth your peace of mind to make the call. You are diligent about your meds, I'm sure, and watching everything else, so you don't need the uncertainty of anything going on. A call to belay your fears will let you rest. Please let us know what they say, will you?
Ginger

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Mayo sent me to my ER to get checked. home now with diagnosed UTI and antibiotic.
Thanks for all the support.

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@rosemarya

Mayo sent me to my ER to get checked. home now with diagnosed UTI and antibiotic.
Thanks for all the support.

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@rosemarya Doesn't take much, does it? Get your rest, drink lots, feel better!
Ginger

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@rosemarya

Mayo sent me to my ER to get checked. home now with diagnosed UTI and antibiotic.
Thanks for all the support.

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So glad you listened to your body and took action.
Get better soon, keep us posted if you are up to it.

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@rosemarya

Mayo sent me to my ER to get checked. home now with diagnosed UTI and antibiotic.
Thanks for all the support.

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Awesome im glad you went. Get well soon

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@rosemarya

Mayo sent me to my ER to get checked. home now with diagnosed UTI and antibiotic.
Thanks for all the support.

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@rosemarya I’m glad it was something minor. I went to urgent care yesterday too and also have a UTI! I had no temp, no pain, just very frequent trips to the bathroom and a tingly feeling. My urogynecologist told me to get it checked.

The only time I’ve had a fever it was 103 and my husband immediately called my transplant team. I was told to get right down there. That was when I had Legionnaires disease.
JK

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With the arrival of flu season, and the fast approaching holidays and festivities, I think that it is a good time to re-vist and re-activate the question: What do you do when your temperature goes up?

I have the most wonderful PCP who is always willing to see me when I need to see him for a fever, flu like symptoms, etc. He has even told me to come during the quiet uncrowded times to avoid germs. He is the one who discovered my elevated liver function results nearly 20 years ago, and who sent me to a gastroenterologist. So when I need a doctor 'during office hours' he is there for me.
However, it is the after hours that cause me worry. Too many of the admitting staff and even medical support staff at urgent treatment and ER do not understand that as a transplant recipient, I cannot/will not be shrugged off if my temperature or symptoms do not meet the 'normal' criteria. Things have improved locally as training and awareness of organ transplantation is becoming more widespread. Each time I have to do this, the on duty doctor tells me that I did the right thing to come. So …

What do you do? What will you do? -if you develop symptoms during the holidays – What if you are traveling? What if it is after hours? What are your thoughts? What would you share with others?

REPLY
@rosemarya

With the arrival of flu season, and the fast approaching holidays and festivities, I think that it is a good time to re-vist and re-activate the question: What do you do when your temperature goes up?

I have the most wonderful PCP who is always willing to see me when I need to see him for a fever, flu like symptoms, etc. He has even told me to come during the quiet uncrowded times to avoid germs. He is the one who discovered my elevated liver function results nearly 20 years ago, and who sent me to a gastroenterologist. So when I need a doctor 'during office hours' he is there for me.
However, it is the after hours that cause me worry. Too many of the admitting staff and even medical support staff at urgent treatment and ER do not understand that as a transplant recipient, I cannot/will not be shrugged off if my temperature or symptoms do not meet the 'normal' criteria. Things have improved locally as training and awareness of organ transplantation is becoming more widespread. Each time I have to do this, the on duty doctor tells me that I did the right thing to come. So …

What do you do? What will you do? -if you develop symptoms during the holidays – What if you are traveling? What if it is after hours? What are your thoughts? What would you share with others?

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Well usually for me i live about 70 miles from my Mayo Hospital and if i start a fever i have always went there. Usually it hasn't been urgent enough to warrant going to a closer hospital er. But also i also have my Prior cardiologist that i see a few times a year just for that reason. If an emergency did happen he is closer and can treat me to a point where i can get transferred to Mayo. I will admit i also have a pcp and he is learning about the difference that us transplant patients deal with and works well with Mayo doctors. Also all my non Mayo Drs work well with Mayo so i think im pretty lucky. I do wonder tho as i hope to travel someday how to handle that situation. I did once ask the question about foreign travel since i have a dream to visit Israel someday and the tour guide i follow online i asked him and he said yes in tel Aviv has a hospital that also does Heart transplants and is world renound as a Heart Hospital so i guess the big thing is do some research ahead of time to be ready if something does happen. I also like the Mayo Patient portal which has everything available to show other drs if needed. I have many times shown drs reports and test completed just from the portal on my phone.

REPLY
@rosemarya

With the arrival of flu season, and the fast approaching holidays and festivities, I think that it is a good time to re-vist and re-activate the question: What do you do when your temperature goes up?

I have the most wonderful PCP who is always willing to see me when I need to see him for a fever, flu like symptoms, etc. He has even told me to come during the quiet uncrowded times to avoid germs. He is the one who discovered my elevated liver function results nearly 20 years ago, and who sent me to a gastroenterologist. So when I need a doctor 'during office hours' he is there for me.
However, it is the after hours that cause me worry. Too many of the admitting staff and even medical support staff at urgent treatment and ER do not understand that as a transplant recipient, I cannot/will not be shrugged off if my temperature or symptoms do not meet the 'normal' criteria. Things have improved locally as training and awareness of organ transplantation is becoming more widespread. Each time I have to do this, the on duty doctor tells me that I did the right thing to come. So …

What do you do? What will you do? -if you develop symptoms during the holidays – What if you are traveling? What if it is after hours? What are your thoughts? What would you share with others?

Jump to this post

@rosemarya the ER doctors treat me with priority as soon as I convey to them that I'm a transplant recipient at any hospital in Ontario. Im not sure about elsewhere in Canada or out of country as I'm not planning anything until fall next year to go south to the islands.

REPLY
@rosemarya

With the arrival of flu season, and the fast approaching holidays and festivities, I think that it is a good time to re-vist and re-activate the question: What do you do when your temperature goes up?

I have the most wonderful PCP who is always willing to see me when I need to see him for a fever, flu like symptoms, etc. He has even told me to come during the quiet uncrowded times to avoid germs. He is the one who discovered my elevated liver function results nearly 20 years ago, and who sent me to a gastroenterologist. So when I need a doctor 'during office hours' he is there for me.
However, it is the after hours that cause me worry. Too many of the admitting staff and even medical support staff at urgent treatment and ER do not understand that as a transplant recipient, I cannot/will not be shrugged off if my temperature or symptoms do not meet the 'normal' criteria. Things have improved locally as training and awareness of organ transplantation is becoming more widespread. Each time I have to do this, the on duty doctor tells me that I did the right thing to come. So …

What do you do? What will you do? -if you develop symptoms during the holidays – What if you are traveling? What if it is after hours? What are your thoughts? What would you share with others?

Jump to this post

@rosemarya I have the advantage of being only @55 miles from Mass General, my transplant hospital. My PCP agrees that I should go there if possible, When I had a 103 or 104 fever 2 years ago (I thought 103, but my husband says 104. He’s probably right) my husband immediately called MGH and they said to bring me right down. That was when I had Legionnaire’s. I didn’t actually have any symptoms other than the temperature. I often tend to be asymptotic.
When we consider traveling I look into where the closest hospital that does transplants, preferably liver, is. @danab, it sounds as if you plan to do the same. We have not had any foreign travel since my transplant, the furthest we have gone is Hawaii. I would love to go to the Caribbean again but I would check with a doctor at MGH who is an infectious disease doctor and she specializes in foreign travel, and making sure you have whatever shots you might need. I think most European countries have good medical care so I think they would be OK. We would like to go to Italy again, maybe Ireland since that is my heritage, and there are other countries I would love to go to before we are too old to travel.
If traveling make sure you know where the transplant hospital(sl are, just in case, so you don’t need to waste time. I would imagine that those hospitals would definitely give you priority. Based on my local hospital, I don’t know how other hospitals would do though.
JK

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@gaylea1

@rosemarya the ER doctors treat me with priority as soon as I convey to them that I'm a transplant recipient at any hospital in Ontario. Im not sure about elsewhere in Canada or out of country as I'm not planning anything until fall next year to go south to the islands.

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@gaylea1, Enjoy making your future plans! You have worked hard to achieve this.

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