What can we expect as far as recovery for my Mom's spinal surgery?

Posted by juliedyan @juliedyan, Aug 11, 2023

I was wondering if anyone could help me on here. My mother is having a decompressive laminectomy on L3 through L5, and a fusion at L4 & 5 a week from Wednesday.

I don't feel like we know what to expect as far as her recovery and the surgeon's office said they would call to explain a week before surgery.
My sisters and I (I live 3 states away) are organizing a schedule to take care of her the first few weeks or however long she needs it. She is 78, a widow and lives alone.

Very important: Are there any supplies we need to order now to help with her recovery (such as a stepping stool to get in the car, special bed, bathroom necessities, etc).

What about riding in a car? The hospital is 2 1/2 hours away from her home. Also, after about a week and a half after surgery, I need to drive her two hours to my sisters home where she can stay until she is doing much better. We are also working with their work schedules (one is a teacher for example and time off is tough).

If you've had this done, what is recovery like? Thank you so much!

Interested in more discussions like this? Go to the Spine Health Support Group.

@roma76

To expand a bit (and I am finding context is everything): I am 76 and formerly very active with walking up hills, 3-4 times per week Pilates classes, foam rolling/stretching every night. I had 3 bouts of radiculopathy of one or both legs over the past 2 years; each worse and more persistent. MRI showed scoliosis, degeneration of L4 and L5, hypertrophied ligament um flavin at that level, and essentially no normal disc. Spinal cord and nerve roots are citing that level showed no space at all. Severe arthritis of facet joints. All explained why I could only walk while flexing my lumbar spine (the shopping cart gait). For the first six months of this year I went from walking pretty well and doing a half hour daily of rehab exercises (after a steroid injection) to my shopping cart gait to a point in June where I had no “safety” position to get some pain relief. The right leg pain was extensive and breath taking in severity. I went back to my physiatrist to check on a possible second shot. He suggested exploring options with a surgeon which I promptly did. My husband and I spent 90 minutes with the Spine Center’s surgical team and, later, almost 5 hours pre-op with nurses, pAs and surgical fellow who would be doing the fusion with bone graft. Surgery was July 18. July 19 I was out of bed and walking with only a lower backache. No leg pain!! July 20 I had CT, Xrays, and passed the stair climbing test. Went home at noon and went slowly and carefully up 2 flights of stairs to our guest room. I had my 3 week follow-up Aug 11. Pain score zero, only Tylenol at night since day 10 (I used oxycodone freely at night before that to assure sleep). My docs do not prescribe rehab except for walking ( they want 30 minutes a day by week 3). Why have I been so fortunate in having such a fast recovery? 1) I was a highly selected patient for the procedure having only radiculopathy and little or no back pain. 2) 6 years of Pilates and an active lifestyle before that have given me very good hip flexibility and body awareness so that I could /can lift my feet to my waist to dress and bend from the hip (to get out of bed or chair). 3). I was on a large dose of Gabapentin (tapering off now) and pain meds work for me (I guess they don’t for everyone). 4) I had a total shoulder replacement on Nov 2021. My surgeon and his PA both said “if you made it through that, this surgery has a far less painful recovery and you will find it easier.” So my expectations were maybe in a good place. Here are some things I sort of expected but was not fully prepared for: 1) the fatigue level. I complained Friday at my follow up and they explained this is major surgery and it is normal. Don’t fight it but expect it will end. 2) the prolonged anorexia and flu-like feeling. I didn’t enjoy any meal until the 3 week mark. 3) How thirsty I would be; 4) the anxiety especially the first week due, in part, to the following 5) nerve impulses down both legs for several days, 6) how stiff and sore the front of my body was for over a week. This was due to going from weeks of bent over posture to being flattened prone for more than 5 hours of surgery and surgical prep (placing electrodes all over me and positioning CT scanner). I felt like I had been running hurdles! Heat helped. The surgical team executed a ballet of finely tuned maneuvers. I attribute my low pain to their skill and attention to detail. Sometime between 3 months and six months I will be cleared for any reasonable activity I wish. I enjoyed the 30-minute core strengthening regimen I followed after my injection and will slowly return to parts of that, then all of it as my graft fills in. Of interest, my surgeons do not recommend physical therapy for me. I guess they concur with my plan. This forum was very helpful to me and I hope some of my hacks for post-op life will be helpful to others. My final recommendation is to do everything to avoid falling. Knowing and respecting limitations are key. I am pretty mobile again but still take hold of handrails and pay attention to where I place my feet. I will never again take for granted the blessing and freedom of pain-free walking.

Jump to this post

@roma76 You are absolutely correct that your physical condition before a major surgery helps a lot with having a great recovery. Stretching and keeping limber has helped you a lot. I think you are doing more for yourself on your own than a physical therapist would do for you, so kudos to you! It is great to hear some positive recovery stories. Thank you for sharing your experience! My successful experience with cervical spine surgery also owes success to a lot of stretching and myofascial release that I did with my physical therapist ahead of it. My rehab after surgery was trail riding my horse at a walk which built a lot of core strength. I had my surgeon's approval for horseback riding and was 7 months post op when I started doing that again.

I know walking up hills is great strengthening exercise. That is something I need more of, and also in small doses. My ankle still gives me trouble since the fracture 3 years ago, and I am trying to rebuild the strength that was lost. When it fatigues and I have pain, I have to stop. I do find vet wrap to be wonderful support that I can wrap around my ankle to prevent overworking it when I will be on my feet a lot and then remove it when I can relax.

I also want to avoid falling anytime. I have my walker in the bathroom and when I get up at night, I grab it on one side and put my hand on the counter on the other side for stability. I also move slow to avoid getting tripped by one of the cats who like to follow me. My ankle taught me to be careful and not do more than I can handle.

REPLY

Seems like the tricky thing is to re-establish fitness without further injury. For me right now, avoiding falls is everything. I am willing to look a little “old lady” in support of being cautious!! Wonderful that you can ride again- an amazing sport, for sure.

REPLY

Hi all - sorry I've been MIA with my responses. We are still figuring it all out. Mom FINALLY talks to the surgeon's office this morning for her surgery next Wednesday! We still don't know what to expect. She won't let me order anything to aid in her recovery yet. She is now pretty much against going into rehab hospital, she would rather have Home Health Care help her. I don't know how this works as far as my sisters and I being there. Like I said, I live 13 hours away and both of my sisters work full time (one is a teacher and it is hard to get off work). I wish we could just start this whole process from the beginning and I wish she would have scheduled the surgery in Kansas City where my sisters live and not in Lincoln Nebraska. I totally understand her fear! This is going to be life changing for quite awhile! She lives 2 1/2 hours away from Lincoln Nebraska so getting her home is also something we are trying to figure out. SO MANY THINGS. Mom is just scared, unwilling to take advice and is making all of this even more difficult but we are trying our best to be patient and see what happens today. God love her - this was not in her plan (it never is), but we have to get her through this! Hoping to get a lot of info today! I feel like I need to get more prepared but it's tough! Thanks for listening.

REPLY

Also for reference, she lives 2 1/2 hours from the surgical hospital in Lincoln Nebraska. Once she gets home it is another 2 hours to Kansas City where my sisters live. Our original plan was for her to move in with one of my sisters so that she could possibly work from home but be able to run into the office at times. Oi! We are very careful how we talk to her because we don't want to stress her out more.

REPLY

Hi juliedyan!
So wonderful that you are going to help navigate your mother's upcoming back surgery. It will be a journey for her and with all of your help, and other family members, she will do fine. Being prepared is HUGE and God bless you for thinking ahead. I am almost 3 months from my 2 back surgeries fusions (L3 to S1 and a stabilzation rod). Plus, my husband just had a double laminectomy last Monday (8/14) and I am just amazed at how well he is doing. Some of my ideas may of already been shared but hope I can provide some tips to help you & your momma...
#1!!! You must have a grabber stick and maybe 3 or 4 placed throughout her home. We use this tool more than anything else. With the no BEND, no TWIST, no LIFT restrictions the grabber stick can really help to avoid any compromising activities!!
#2 Shoes - Yes, as mentioned before, have easy shoes to get on & off. I have liked my Skechers slip ons. They are so easy to get on and your mom will need good shoes for walking as that will be the most important therapy for the first 3 months.
#3 Mental Health - As you mentioned, you are concerned about depression post-surgery and this is a very valid concern. I have fluctuated with depression these months and have found that I can only watch Comedy movies, read light-hearted books and then I was blessed with finding Leanne Morgan on Netflix and YouTube. She is hilarious and her humor is just plain clean & fun! Leanne is especially appealing to more mature women.
#4 Organization - You have already received some great organizational tips from others but I really encourage you to get anything she will need in easy accessible places...no bottom drawers or cupboards. (for example, I knew I'd not be needing any of my holiday cooking/baking items so I put those items in storage so I could have room for items I need to use now).
I will be praying for you & your mom.
"I can do all things through Christ who strengthens me." Phil. 4:13

REPLY
@backincontrol

Hi juliedyan!
So wonderful that you are going to help navigate your mother's upcoming back surgery. It will be a journey for her and with all of your help, and other family members, she will do fine. Being prepared is HUGE and God bless you for thinking ahead. I am almost 3 months from my 2 back surgeries fusions (L3 to S1 and a stabilzation rod). Plus, my husband just had a double laminectomy last Monday (8/14) and I am just amazed at how well he is doing. Some of my ideas may of already been shared but hope I can provide some tips to help you & your momma...
#1!!! You must have a grabber stick and maybe 3 or 4 placed throughout her home. We use this tool more than anything else. With the no BEND, no TWIST, no LIFT restrictions the grabber stick can really help to avoid any compromising activities!!
#2 Shoes - Yes, as mentioned before, have easy shoes to get on & off. I have liked my Skechers slip ons. They are so easy to get on and your mom will need good shoes for walking as that will be the most important therapy for the first 3 months.
#3 Mental Health - As you mentioned, you are concerned about depression post-surgery and this is a very valid concern. I have fluctuated with depression these months and have found that I can only watch Comedy movies, read light-hearted books and then I was blessed with finding Leanne Morgan on Netflix and YouTube. She is hilarious and her humor is just plain clean & fun! Leanne is especially appealing to more mature women.
#4 Organization - You have already received some great organizational tips from others but I really encourage you to get anything she will need in easy accessible places...no bottom drawers or cupboards. (for example, I knew I'd not be needing any of my holiday cooking/baking items so I put those items in storage so I could have room for items I need to use now).
I will be praying for you & your mom.
"I can do all things through Christ who strengthens me." Phil. 4:13

Jump to this post

Thank you SO much and thank you everyone for all of your tips. We are 4 days until surgery. Love all of your ideas and FYI - I LOVE Leanne Morgan too! Mom watches cable news ALL day and it can get very depressing! We need to watch uplifting shows, etc. and that will certainly help!!! All great ideas (she hasn't let me order anything yet but I am ordering everything tonight and sending it to my sisters house). If she doesn't use it we can return it but I know she will need these things! She has the slip on shoes and that's about it.

Thanks again for ALL of these tips. I've been a little MIA this week responding and I feel bad about that. I've been watching our granddaughter and grand-dog! 🙂 Will be praying that everyone goes well for Mom and this will help with the suffering she has been going through. She can take no pain meds right now with surgery so close and she is really suffering! Hope this helps her. Thanks again - Julie.

REPLY
@juliedyan

Thank you so much for taking the time to give us all of this information. I really do appreciate it. We have really been facing reality this weekend on what is to come!

Mom is now interested (after talking with some friends) in going to a rehabilitation hospital directly after surgery. Just until we know she is well enough to come home and we can handle it all. She lives in a maintenance free condo and does not have to use stairs. She has a recliner. Her bath tub/shower combo is absolutely terrible (especially considering the fact that they built these units for retirees)! It is very very high to step into and this is going to be a problem. I have never seen a bath tub that is this high! I don't know what the solution is going to be for that - she has a walk in shower in the basement portion but it sounds like the stairs will be impossible for her to go down!

At 78 I would say she looks young but this all stems from her getting hit by a man on a mountain bike when she was walking on a sidewalk. It also shattered her shoulder which she had to have replaced about 16 months ago and she still has pain from that.

I am getting worried. Also, I wonder what the process is for her going into a rehabilitation hospital. Who decides? If she wants to go, does she have to "fight" to get it? There is a really nice one where she lives and she is very interested in going now. Of course we would still be there for support. Do they decide at discharge or do you happen to know the process?

We also have a lot of things to buy this week. Nightgowns, slip on shoes, toilet necessities, etc.

I am also concerned about her mental health. We lost Dad unexpectedly 11 years ago (widow maker heart attack). He was only 68. She does deal with depression and since her accident it has gotten worse.

So many worries! I live 3 states away, one sister is a teacher and the other one is a marketing manager and has a very demanding job. A lot of it will fall on me (I am a homemaker) but it will be difficult living so far away (It is a 12-13 hour drive). Of course my husband is very understanding and I will do what I need to do. I have a granddaughter that I babysit quite a bit also.

We also found out that tomorrow (Monday) is her phone call with her surgeons office to get more info. I wonder how the rehabilitation hospital conversation will go!

One step at a time. I am writing down all of your ideas. Thank you again for your time.

Jump to this post

I had a 4 level lumbar fusion 5 years ago at age 65. Since I was going to be going home alone, I was sent to a rehab facility for 2 weeks. This was a good send. I'm not sure if my daughter had been able to come help me she would have been able to. I have therapy everyday and learned how to bathe myself and dress myself. They even had me make a sandwich so they could see I was able to feed myself. The initial 2.5 weeks were by far the most difficult and was thankful the Dr sent me there. Medicare and my supplement paid for everything. Hoping your mom does well.

REPLY

Thank you all for the advice. This pic is of Mom Wednesday (2 days ago) on the day of the surgery. They sent her home! That day!! She felt great! We were all so excited and relieved! It's been 48 hours now and she is MISERABLE!!! A LOT of pain. My sister called the Dr. and he said this weekend, start trying to go 6 hrs with hydrocodone and alternate with acetaminophen. I leave tomorrow for my turn to take care of her. It is a two day drive and my sisters are there now. I will be there for about 10 days. Another thing - she takes Ambien (I know - not great but she doesn't sleep). Of course now she can't take it being on all of these meds so she is not sleeping at ALL. Just little 15 minute naps here and there. He said maybe she can start that again on Monday. Praying for a good weekend for her! Oh, and he said she should not sleep in the recliner. I have no idea why!

REPLY
@juliedyan

Thank you all for the advice. This pic is of Mom Wednesday (2 days ago) on the day of the surgery. They sent her home! That day!! She felt great! We were all so excited and relieved! It's been 48 hours now and she is MISERABLE!!! A LOT of pain. My sister called the Dr. and he said this weekend, start trying to go 6 hrs with hydrocodone and alternate with acetaminophen. I leave tomorrow for my turn to take care of her. It is a two day drive and my sisters are there now. I will be there for about 10 days. Another thing - she takes Ambien (I know - not great but she doesn't sleep). Of course now she can't take it being on all of these meds so she is not sleeping at ALL. Just little 15 minute naps here and there. He said maybe she can start that again on Monday. Praying for a good weekend for her! Oh, and he said she should not sleep in the recliner. I have no idea why!

Jump to this post

@juliedyan I'm glad your mom came through surgery well. Bless you for taking the first long shift to take care of her during the most difficult part of the recovery. I know you'll do your best. You may want to keep a journal so you'll be able to look back and measure her progress. Those 15 minute naps will be beneficial too. I'm sure your mom will appreciate your help even though she may not be able to tell you that until she feels better.

REPLY
@jenniferhunter

@juliedyan I'm glad your mom came through surgery well. Bless you for taking the first long shift to take care of her during the most difficult part of the recovery. I know you'll do your best. You may want to keep a journal so you'll be able to look back and measure her progress. Those 15 minute naps will be beneficial too. I'm sure your mom will appreciate your help even though she may not be able to tell you that until she feels better.

Jump to this post

Thank you. I knew this wasn’t going to be a walk in the park. I’m just ready for her to be happy and free of pain. We just need to make it through these next few months! And I’m happy to help. God knows she went through a lot raising us girls!

REPLY
Please sign in or register to post a reply.