Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
Hi covidstinks2023, I have the exact same triggers as you and think this weather is making my migraines worse this summer. I have tried everything you mentioned with no relief, except the epson salts and the gel, and I will give it a try, thank you. I have terrible knots in my back and hoping it helps. I can’t take NSAIDS or Triptons either. I’ve tried the prednisone tapering, but it doesn’t really help and I get very depressed when on it. If I were you and in a cycle like that I would try what your doctor recommended. I see a pain management doctor now, as well as my neurologist and he prescribed Suboxone for me and it has helped a little. I also take magnesium glycinate.
I can’t imagine having migraines beginning at age three that must’ve been so horrible for you. I’m so sorry you had to experience that as a child and still do until this day.
Thank you for sharing your story and for your support.
I empathize and care and will be praying for you, also. Many blessings..🙏
Hi. I’ve had chronic pain since 2005. I received chemo for NHL then a clinical trial chemo, and within one month of completing all the chemo, began to have excruciating pain. The initial dx was fibromyalgia, chronic fatigue syndrome and chronic myofascial pain. Years later, three EMG’s confirmed a diagnosis of CIPN. I was awarded SSDI after the pain started in 2005.. I had worked as an RN for 30 years and couldn’t return to work. What surprises me is the progression of symptoms. Foot drop, loss of fine motor skills, pain in my legs and arms, burning sensations, muscle weakness in my arms and legs, and several other things.
I appreciate being able to join this group and would welcome any suggestions that may have helped any of you deal with these type things. Thanks!
My name is Jacqueline it's been 9 years of chronic pain from a shingles outbreak that damaged my nerves. Nobody understands your life but others who are experiences pain daily. I'm exhausted. Overwhelmed.
I texted about my chronic back pain but I also have occipital neuralgia that travels from my neck over my ear and into my right eye. It has been compared to migraines. That eye also had a hole in the macula, then surgery , then it formed a cathartic so more surgery so now a wrinkle so this very difficult to read much. I also am on oxygen 24/7 and have been for years. I have COPD which is a progressive disease and it is progressing. I can start to feel depressed just texting that. I try not to dwell on on my health problems but they are hard to ignore when you feel bad so much of the time.
Hi John, I am sorry you suffer. If you have most of time people do not realize how exhausting and tired you get. Physically and mentally. People love stories about people who suffer in silence and are saints with their pain! I want scream and tell people to give me a break but I don’t.
Hello Kelsey and group. I just joined because I thought it might be helpful to have solidarity with other people who are in chronic pain. And perhaps learn some coping strategies. I am 80 years old and mostly dealing with back and hand pain plus pain from knee replacements that didn’t work out all that well and I’m wondering if my hip replacement is wearing out too- it’s 13 years old now and in the last few months I’ve developed pain there too. I also walk now at a 90° angle. I went to a surgeon to see if maybe a rod in my back would help which he didn’t recommend. After the MRI, he said I had no low back muscles! It’s overwhelming to deal with all the things that go wrong. I sincerely believe we’re all living too long. I often look back at the good years where I could move freely. One tries not to complain because who wants to hear it and I don’t want to upset my family. I’m sure you all understand. Thank you.
It is exhausting. And I have read about “invisible diseases”. People can’t see what we’re going through. And you’re right. People can’t understand what it’s like. Big hug to you!
Thank you, both, for showing support!!
Hello in new here but not new to pain unfortunately.
Hi everyone! I have had constant pain in my lower back since I was in a motorcycle accident when I was 21, Im now 65, almost 66. Ive had pain, numbness pretty much all over, especially lower back all these years. tried opiates for years, but they quit working after a few years and I was afraid I wouldnt have an alternative as I got older, so I quit those and went on Suboxone and pregabelin plus a muscle relaxer. I still have quite a bit of pain, so I have to be carefull what I do. Some people I found online are trying to do a trial for the Nevro HFX Stimulator on me, thats why Im here. Trying to get info on how other people have done after having it permanetly implanted. Thx, Tina