Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
Thank you for sharing with me. I will look into that.
I hear you. I had a small abdominal muscle tear in 2010...I waited 6 years in bed/ in horrific pain for 40 mins laparoscopic repair.
The small injury left unattended has destroyed my health. I now struggle to move/ eat etc... I wish you luck, pls let us know if it works.
I am on my forth Medtronic pain pump. Had Fentanyl in there for many years until my legs felt like road rash and burning right leg and hip and foot. When they replaced the third pump four months ago they went with Methadone and road rash went away and right leg was better. I just did not like the icky dull sick nauseous feeling in my stomach. So they decided to go with 3.002 mg a day of Hydromorphon. Now my legs and feet burn and sting like hell. It’s even in my face with flushing. I get 3 100 mg bolus doses a day and they put me to sleep for a hour. I am thinking of going back to Methadone and deal with the sick stomach. I have been on 15 mg of oxycodone and 1 mg of clonazepam for years for break through pain and that is what helps me get by. But I can only take it every 8 hours and it runs out after 6 hours and I suffer with the burning in legs and feet so bad it half ass destroys me for that two hour wait. I have failed back surgery from one two three with rods, Scar tissue and Stenosis pretty bad. I’m afraid of back surgery my third time and have no idea who to trust. I’m 70 in a month and a half and I’m at a lost for what to do. I’m also afraid of that growth called Gradanoma. Probably spelled that wrong. Thank you if you read this.
Have they tried Hydromorphone(Dilaudid)? It's supposed to be about five times stronger then morphine. I had two trials by injection. The first used morphine which did nothing. The second was with Dilaudid which dropped my pain from about a seven down to a two. The permanent implant has not produced the same effect yet. I am in the process of having the output increased to the point at which I will feel some pain relief. I wish you all the best.
Good luck to you also. Never ending battle. I was wondering if you have burning in legs and feet and if you did - did it help. Thank you Jeff
I had failed back surgery in 1976. Then for the next 20 years + I about went out of my mind with pain. I did pain clinics, gravity lumbar traction, bio feedback , TENS unit until my brain could not be fooled any longer. nerve blocks even a morphine block. Lots and lots of therapy just what ever they suggested. I for most part had caring doctors. At one point I went to Mayos and had surgery for nerve entrapment. That did away
With the pain in my side that was coming from my back. Finally my doctor sent me to a pain management doctor. The pain doctor said you have tried everything so let’s try something new. I start pain meds. Finally after all those years I had relief. It did not take all my pain but it helped and that is where I am today over 30 years later. Still grateful and taking the meds.
Hi, my name is Karen and I suffer from chronic pain due to a TBI and I am disabled. I suffer from daily intractable chronic migraines . I’ve seen many neurologists and have been to the Michigan pain hospital for treatment, but nothing helped for over 39 years. I recently began seeing a pain specialist and he put me on Suboxone and started giving me Botox for my neck pain. I got a lot of relief at first, but they have come back full force. I am looking forward to meeting others are suffering like I am and understand what it’s really all about, because I don’t know anyone personally that has been through something similar. I hope we can help each other.
Karen, Bless you sweet lady. I have not had a TBI, but, have had migraines since I was in
the 3rd grade. I do not have them daily (bless you), but, can have them 15 days in a row.
My Neurologist recently and recommended alternating Maxalt and Ubrelvy for migraines. Stay tuned.... Allergies, Sinus infections & Asthma tend to be triggers for me, lack of sleep, barometric pressure changes & certain foods that I have to stay away from. Sugar, Sodium & Caffeine tend to be culprits as well.
This humid summer has added to the list. Staying hydrated is very important for migraine sufferers as is taking Magnesium Glycinate as us migrainers tend to be low in Magnesium.
I also take B2 for migraines.
I cannot take NSAIDS, so that limits what I can take for pain for one along with the Triptan.
Honestly, Prednisone works the best for me, but, not a drug I want to have to stay on due to
the longterm side effects
.
I hardly have a migraine when I am on a Prednisone taper for upper respiratory infections.
Migraines are caused by inflammation, so that would make sense as to why the Prednisone
helps so much. I also have in the past taken a 4 day Low Prednisone Taper to break the migraine cycle when I have had one for several days in a row.
Have you ever tried the Magnesium Infusion or Migraine Cocktail? Also, my doctor
recommended that I come in for a Torodol Injection. I have never done any of the above,
but have heard they help a lot of folks.
I do find that soaks in Epsom salt in the tub, voltaren gel on my back, neck and shoulders (I have a lot of arthritis) and the Bedbuddy heat pack helps a lot.
I get a massage and it helps after I've had a migraine. I could not tolerate one while having a
migraine.
Praying for you to get some relief. I empathize and I care. I'm so sorry you have so
much pain. Blessings....
Hi Karen ! My name is Amie and I also suffered a TBI about 20 years ago. It's great that you are working with pain management. It's really important to let them know what works and what doesn't so they can adjust the meds. My Dr started me on Norco, Cyclobenezine and then added Oxy to the mix. I started seeing a neurologist who has helped me immensely. After the TBI I started getting killer migraines and she put me on a shot once a month for them plus Ubrevly which ended up being a godsend to me.
I hope are able to find some relief. Take care !
Amie
Hi Amie, thanks for reaching out to me. I’m so glad Urbrevly is helping you. I hoped it would help me, but my neurologist tried every med under the sun to help mine and nothing touched them. I am so blessed to find a pain specialist that finally has helped a little. I hope you will continue to feel better. Take care! Karen