Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@smilie

Hi I’m smilie and I usually post in the depression group, but right now I want to be here. I still don’t know how to post so I’m doing it this way. My joints hurt and I can never sit in the bathtub again, I can’t get in or out. I don’t know how to stop crossing my legs at the knees. It looks like a number four, I do it with both legs and my physician said stop doing that. I even do that when I’m lying down in my bed. Any ideas? Thank you!

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Have you seen a neurologist?

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@jenniferhunter

@migizii Ah yes, those famous Minnesota winters… and snow season has already begun. When I had spine surgery in Rochester 3 years ago, we waited an extra day before driving back home because of some snow. There are some books and videos about self treatment on the MFR website that might help, but that won't take the place of working with a therapist. In case a travel option would work for you, John Barnes has clinics in Sedona and Pennsylvania and you can go there for a week of some intensive treatments, kind of working on it all at once. I've never done that, and my insurance wouldn't cover something like that, but it is an option if you can afford it. Even doing Yoga is fascial stretching.

I've been doing MFR for several years and have gotten pretty good at inventing ways to stretch my problem areas and listening to my body, and it complements what my therapist is doing. I have small balls that I can lay on, and a question mark shaped massage thing that has rubber knobs on the end that are great to push and pull on the skin to get a shearing action for fascial stretching. I used that and kept working on a tight spot she had started worked on, and got a breakthrough and significant improvement in that spot just last week. I bought that tool at a discount store ( 5 Below ). It sounds like you live in a remote and beautiful area of the country. When I was growing up, we had a canoe that was built in Bimidji.

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Thx for the ideas. Yes it is beautiful and remote here but can be pretty brutal, weather wise in the winter. I like the idea of taking a week vacation and Sedona is a beautiful place;certainly worth exploring😊

Liked by Jennifer Hunter

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@vklittle61

Have you seen a neurologist?

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Yes and I’m seeing her again tomorrow. It really and my knees hurt too.

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@migizii

Unfortunately for me, I checked into certified MFR practitioners in my area too late in the year and it’s about a two hour drive to anyone from where I live anwith working full time and winter weather for the next many months, I will need to wait——-but I will check into it next summer!

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Hi Lisa again to update you on my neuropathy journey.
Saw a neurologist this week.
Yes I have neuropathy. In both of my feet, but nerve damage in my hand,
wrist, arm.
Will be doing an EMG. Will be putting a splint on that arm for a long term,
ugh. Crossing fingers though. No pain meds prescribed to me.
But have been told I can take CBD oil-that I have been taking for a month
now. Been sick and oddly the pain was small. Now that I am getting better
from that nasty cold the pain has returned full force. Has anyone else had
That experience with their pain giving them a break with a cold?

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@lisash

Hi Lisa again to update you on my neuropathy journey.
Saw a neurologist this week.
Yes I have neuropathy. In both of my feet, but nerve damage in my hand,
wrist, arm.
Will be doing an EMG. Will be putting a splint on that arm for a long term,
ugh. Crossing fingers though. No pain meds prescribed to me.
But have been told I can take CBD oil-that I have been taking for a month
now. Been sick and oddly the pain was small. Now that I am getting better
from that nasty cold the pain has returned full force. Has anyone else had
That experience with their pain giving them a break with a cold?

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@lisash You know, come to think of it, I have had that experience, also. I think my mind was so busy trying to cope with the cold and its symptoms, my chronic pain had to take a backseat! The medications I was taking to relieve might have also played a role.
Ginger

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Cold medicine I took really isnt that strong. I am not saying that anyone should run out to get cold medicine. I think really that I have been so aggravated with this cough and it took my mind off the pain and onto the cough.

But now the cold is just about gone still have a lagging cough, but the pain is full on back. And worse than I remember.
Thank you for commenting, I was not sure if I was in the right place any more, I never know where to jump in at.

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@subaroux01

Suba here. I've suffered chronic bilateral foot pain for over 20 years. Once an excellent athlete, I can now stand for maybe 10 minutes without suffering. Multiple surgeries for nerve release. Injections. Therapy. Nothing has worked. So I'm here looking for any possible next step. I see some literature on dorsal root ganglion and have hope!

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Have you looked into trying Myofascial release therapy or MFR? I too have had trouble standing or sitting for more than 5-10 minutes before my feet start to burn. Since I’ve been having MFR therapy, I have been able to do much more , still have some pain but is tolerable enough to enjoy life. I too was very active but a fall and 5 back surgeries, including a spinal fusion, a Neuro stimulator, and many more alternative options gave me no hope until I found the benefits of MFR. It’s a specialized form of PT, so if you do pursue, be careful to make sure the therapist has had the special training.
Good luck and hope things improve your quality of life !

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Hello catCatanzaro just saying Hello Chronic pain entered my life the last five years. It is so disturbing. It changes whom you are. I do everything I can to stop the pain. I have pain patches, bio creme pain reliever, and Celebrex, and tens daily. Gabapentin and Flexeril as needed. I do ice and heat. It is hard to carry on at times. Happy Thanksgiving to everyone!

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@mlross4508

Have you looked into trying Myofascial release therapy or MFR? I too have had trouble standing or sitting for more than 5-10 minutes before my feet start to burn. Since I’ve been having MFR therapy, I have been able to do much more , still have some pain but is tolerable enough to enjoy life. I too was very active but a fall and 5 back surgeries, including a spinal fusion, a Neuro stimulator, and many more alternative options gave me no hope until I found the benefits of MFR. It’s a specialized form of PT, so if you do pursue, be careful to make sure the therapist has had the special training.
Good luck and hope things improve your quality of life !

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Thank u I am going to try this

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@catcatanzaro60

Hello catCatanzaro just saying Hello Chronic pain entered my life the last five years. It is so disturbing. It changes whom you are. I do everything I can to stop the pain. I have pain patches, bio creme pain reliever, and Celebrex, and tens daily. Gabapentin and Flexeril as needed. I do ice and heat. It is hard to carry on at times. Happy Thanksgiving to everyone!

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@catcatanzaro60
What sort of pain are you experiencing? I know that five years is a long time to be hurting. That's about the same time my peripheral neuropathy made the leap from tingling and pins and needles in my feet and legs to burning pain, starting in the balls of my feet. Not too long ago it grew to include the tops of my feet and my ankles. It sounds like your pain is interfering with your daily life. The number of OTC and prescription pain meds means it can take forever to find the ones that give relief, can't it. Do you take Gabapentin for nerve pain? I tried it several years ago and it didn't help me, even though my siblings all swear by it. I wish you success in your search for the solution to the pain.

Jim

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My pain specialist doctor said that gabapentin and lyrica have to be taken daily on schedule to be effective; the relief is cumulative. They are not pain killers, they are anti-seizure medicine: they calm the nervous system so that it stops sending out false pain messages (my feet and legs feel like there is a fire burning inside but there is no fire anywhere so the message is false but the pain is real). I take 225 mg of lyrica at night (I can't take it during the day because it makes me sleepy) and 1200 mg gaba twice during the day. I started in 2018 with 1 gaba each morning … as the demise of my nervous system spreads upward, the pain increases so the meds have been increased to compensate. I have learned a lot about neuropathy from the other people on this forum – things that doctors can't tell us because they don't know what this condition feels like unless they have it. My neurologist has RLS (restless leg syndrome) which some of us have – it is nice to have a doctor who has the same symptoms and takes the same meds I take – but I haven't found a doctor who has neuropathy and I'm not looking for one because there probably isn't one. Peggy

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Hi everyone! My name is Julie Souther, and I'm a 44 year old wife and mother of 3 beautiful daughters. Currently, I'm a 3rd grade teacher.
I've lived with chronic pain for over 15 years due to migraines, fibromyalgia and bipolar depression disorder. Over the past few months, my "flare ups" with pain have increased in quality and quantity. I have difficulty functioning on a daily basis whether it's going to an event for one of my children, doing housework, going out to see friends, traveling, or even taking a shower without pain. Also, I am in fear of losing my job due to numerous absences, because I could not get out of my bed.
About twice a month I have a flare up of painful symptoms that can last from 3-6 days before I can just enough to get through the day. I will wake up and feel as though I have been hit by a truck. I have terrible pain in my hands, feet, eyes, lower back, hips and legs. Oftentimes, the pain will move from one location to another in my body. I end up with a migraine and in bed for at least a few days. A few weeks ago, I missed an entire week of teaching because of the flare up and a visit to the ER with severe stomach pain and difficulty breathing. In addition, my blood pressure, even with medication, ranges between 165-185 daily for no particular reason. I have neck pain on the left side that will not go away, incontinence, no libido, and sensitivity to heat just to name a few of my symptoms. I've tried various medications, acupuncture, allergy testing, change in my diet, and even reiki, without any significant help.
This year I've had blood work completed that showed nothing concerning. This month I had an MRI on my brain and spine conducted by the MS Center of Atlanta, which showed absolutely nothing wrong. I had an EEG today and am waiting on those results. I'm at a loss and feel like a failure to my family and students. Each month is becoming more of a vicious cycle of flare ups, migraines and depression.
I've never had any physical trauma in my life to bring on these symptoms. There does not seem to be a specific trigger to my flare ups either. Currently, I am on Pristiq, Lamictal, and clonazapam for my depression. I take rizatriptam for migraines even though I've had botox and shots in the past. I am on Lyrica for the fibromyalgia. Do you have any advice or suggestions? I am willing to do anything to try and get back to somewhat of a normal life before all of this pain.

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@julie2019

Hi everyone! My name is Julie Souther, and I'm a 44 year old wife and mother of 3 beautiful daughters. Currently, I'm a 3rd grade teacher.
I've lived with chronic pain for over 15 years due to migraines, fibromyalgia and bipolar depression disorder. Over the past few months, my "flare ups" with pain have increased in quality and quantity. I have difficulty functioning on a daily basis whether it's going to an event for one of my children, doing housework, going out to see friends, traveling, or even taking a shower without pain. Also, I am in fear of losing my job due to numerous absences, because I could not get out of my bed.
About twice a month I have a flare up of painful symptoms that can last from 3-6 days before I can just enough to get through the day. I will wake up and feel as though I have been hit by a truck. I have terrible pain in my hands, feet, eyes, lower back, hips and legs. Oftentimes, the pain will move from one location to another in my body. I end up with a migraine and in bed for at least a few days. A few weeks ago, I missed an entire week of teaching because of the flare up and a visit to the ER with severe stomach pain and difficulty breathing. In addition, my blood pressure, even with medication, ranges between 165-185 daily for no particular reason. I have neck pain on the left side that will not go away, incontinence, no libido, and sensitivity to heat just to name a few of my symptoms. I've tried various medications, acupuncture, allergy testing, change in my diet, and even reiki, without any significant help.
This year I've had blood work completed that showed nothing concerning. This month I had an MRI on my brain and spine conducted by the MS Center of Atlanta, which showed absolutely nothing wrong. I had an EEG today and am waiting on those results. I'm at a loss and feel like a failure to my family and students. Each month is becoming more of a vicious cycle of flare ups, migraines and depression.
I've never had any physical trauma in my life to bring on these symptoms. There does not seem to be a specific trigger to my flare ups either. Currently, I am on Pristiq, Lamictal, and clonazapam for my depression. I take rizatriptam for migraines even though I've had botox and shots in the past. I am on Lyrica for the fibromyalgia. Do you have any advice or suggestions? I am willing to do anything to try and get back to somewhat of a normal life before all of this pain.

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@julie2019 Welcome to Mayo Connect. We are a diverse group of people, patients and caregivers alike, who share their experiences and support to help others along their journey. One thing that stuck out to me was your comment "Each month is becoming more of a vicious cycle of flare ups, migraines and depression." Given your age and other factors, might there be a hormonal component to this all? If you have not had a workup by an internal medicine doctor, or endocrinologist, perhaps that might help solve your current issues? Any changes like a different living situation or work environment might be at play, with a reaction to something environmental. I hope this has given you some thoughts of pathways to pursue, and that you will let us know what you find out.
Ginger

Liked by lioness, julie2019

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@julie2019

Hi everyone! My name is Julie Souther, and I'm a 44 year old wife and mother of 3 beautiful daughters. Currently, I'm a 3rd grade teacher.
I've lived with chronic pain for over 15 years due to migraines, fibromyalgia and bipolar depression disorder. Over the past few months, my "flare ups" with pain have increased in quality and quantity. I have difficulty functioning on a daily basis whether it's going to an event for one of my children, doing housework, going out to see friends, traveling, or even taking a shower without pain. Also, I am in fear of losing my job due to numerous absences, because I could not get out of my bed.
About twice a month I have a flare up of painful symptoms that can last from 3-6 days before I can just enough to get through the day. I will wake up and feel as though I have been hit by a truck. I have terrible pain in my hands, feet, eyes, lower back, hips and legs. Oftentimes, the pain will move from one location to another in my body. I end up with a migraine and in bed for at least a few days. A few weeks ago, I missed an entire week of teaching because of the flare up and a visit to the ER with severe stomach pain and difficulty breathing. In addition, my blood pressure, even with medication, ranges between 165-185 daily for no particular reason. I have neck pain on the left side that will not go away, incontinence, no libido, and sensitivity to heat just to name a few of my symptoms. I've tried various medications, acupuncture, allergy testing, change in my diet, and even reiki, without any significant help.
This year I've had blood work completed that showed nothing concerning. This month I had an MRI on my brain and spine conducted by the MS Center of Atlanta, which showed absolutely nothing wrong. I had an EEG today and am waiting on those results. I'm at a loss and feel like a failure to my family and students. Each month is becoming more of a vicious cycle of flare ups, migraines and depression.
I've never had any physical trauma in my life to bring on these symptoms. There does not seem to be a specific trigger to my flare ups either. Currently, I am on Pristiq, Lamictal, and clonazapam for my depression. I take rizatriptam for migraines even though I've had botox and shots in the past. I am on Lyrica for the fibromyalgia. Do you have any advice or suggestions? I am willing to do anything to try and get back to somewhat of a normal life before all of this pain.

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Hi Julie and welcome!
I must say you sound like a brave, persevering woman who seems to be at the end of her rope. No matter the diagnosis, day to day chronic pain is absolutely exhausting. Then sprinkle in the kids, spouse, house, job…
there is only so much pushing one person can do. Important to understand when you've reached your limit. I lived and worked through alot as to not let my family, friends, employer, employees down. Ultimately my perseverance was admirable but, at the end of the day I did no favors for anyone including myself.

I eventually consented to short term disability and worked very hard at figuring out my health, having treatments, trying new medications. Thought I could figure it all out during that time and miraculously get fixed. My story was built around eye disease, chronic migraine and cervical/spinal pain. My temporary disability turned permanent and I later was diagnosed with Small Fiber Poly Neuropathy. This, after 3 years of searching, and alot of trial and error, finally made sense of my random wide spread sensations and pains. I used to wake up and feel like Id been hit by train.

I'm truly sorry to hear your story and do relate. My wish for you is that you recognize your needs, demand to be your best advocate (which you deserve), keep pushing Drs to explore or find new doctors like a neurologist, if you haven't already, to rule things out. Being on Connect is a great way to be your own advocate. Research, look and listen. You will find a wealth of knowledge and experience to learn from.

Good luck in your journey and all the best.
Be well.
Rachel

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Hi new here. I have autoimmune issues also chronic fatigue, pinched nerve. Trying the steriod shots soon for neck pain due to pinched nerves. Anyone go down this road?

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