Chronic Pain members - Welcome, please introduce yourself

Hey all!!
My name is Cheryl and one of my many conditions happens to be Chronic Pain!! I live in a small town in NC. Hubby and I are almost empty nesters.

Hello, I honestly can’t remember if I already introduced myself or not. Ain’t brain fog fun? Lol
I’m Misty and I have multiple chronic pain conditions. I have hEDS, CRPS, trigeminal neuralgia, cranio-cervical instability, fibromyalgia, sacroiliitis, cervical spinal stenosis, DDD, and osteoarthritis.
I have a spinal cord stimulator for my CRPS pain because I am intolerant to literally ALL the meds they typically use to treat it because of my MCAS (mast cell activation syndrome).
Other than that I only have muscle relaxers, prescription lidocaine patches when I can afford them and otc meds to help with the test of my pain. Well, and acupuncture and a pain psychologist that I meet with twice a month and physical therapy to try and strengthen my muscles around my joints so they can maybe stop dislocating so often and the muscles not tear from trying to hold them in because they’re currently too weak to do so since my tendons and ligaments are basically the consistency of taffy and hold nothing in.
My EDS doctor and I are discussing trying LDN at the moment so crossing fingers that works.
Nice to meet you all!

@archie2 Sounds like even though the pain pump has given you a little relief, not enough to really improve your quality of life? Can't imagine how you would be feeling without it.
I chose Heisenberg for the exact reason you stated. Life is, to a degree, very uncertain. Unless you have faith in the author of Life.
At one time anyone aged eighty would have been an "elderly geezer". Now, at age 77, not so much. How did we reach this point in our lives? Ha,ha! I just had a trial of the WaveWriter SCS by Boston Scientific. Did not go well due to scar tissue from previous scar tissue. I have asked my neurosurgeon to make my case to the insurance company for the permanent implant. Not likely to be approved, but if you don't ask...
Hope you can get the trial and some relief.

I'm Rebecca and I have been suffering from chronic pain for a long time due to several different conditions. My dog and my 5 year old grand daughter help keep me going.

My granddaughter and my dog keep me going also

Heisenberg Uncertainty Principle. Not to be confused with the Hindenburg Certainty Principle: "With what's floatin' us, I'm certain we're headed for trouble in Lakehurst."

have you tried calmare/scrambler tx for your neuropathy?

im mike

Hi Mike @10247mylife, Welcome to Connect. It sounds like you might also be dealing with chronic pain. Have you found anything that helps?

Hi I’m Debbie from England West Yorkshire..uk..
I’m 42 and have fibromyalgia/pots syndrome/psoriatic & rheumatoid arthritis…oh and I’ve just started the perimenopause too 😭 the pain affects me daily and every week guaranteed I have a flare up and I’m bedbound for 2-3 days, it’s horrendous! The chronic pain and fatigue, so debilitating. I often get depressed 😔 especially on my bad days usually when I have a flare up. It’s frustrating because in my mind, I want to get up and get things done so if I do get a good hour I’ll blitz the house but then I end up paying for it when the flare starts! Just need to learn to pace myself…
I stay hydrated and rest whenever it’s can, so important to listen to our bodies..I’m on pregablin, nefopam and codeine & also (mirtazerpine antidepressants).
I take all the vitamins b12, c & d as well as magnesium as that’s really helping! I drink electrolytes too and they give me a boost, make me feel more normal and function better…
(needed as I’ve got pots syndrome) nice to meet you all, I’m so happy I’ve found such a lovely group, who understands exactly how chronic pain affects us physically and mentally. Other people just don’t get it xx