Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@lyssia

Hi Jim, thanks for responding so quickly. I have cervical facet joint problems and myofascial pain syndrome and was just looking to see what other people do to help their chronic pain. I get facet joint injections about every 6-9 months and they work very good for me at this time. I used various other things to help with the myofascial pain.

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Hi @lauren123, myofascial pain syndrome is when the fascia (connective tissue that covers the muscles) is injured and causes painful muscle spasms with trigger points. I usually get trigger point injections (with an anesthetic) when they are really bad, I also use other techniques as well such as my tens unit, lidocaine patch, muscle relaxants, anti-inflammatories, heating pad and my hand held massager. I will occasionally use pain meds if I can’t get relief from any of the other things I have tried. For my Facet Joint problem I take some pain meds when I have a flare up but the injections I get are steroid injections to the affected joints in my neck and so far they have always relieved the pain for 6-9 months. I get really bad headaches and pain down my shoulders/back when it is time to get the injections again. Hope I explained the syndrome good. What is the Trigeminal nerve?

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@carsalespapa

I may have introduced myself in the wrong place. I’m Anthony, not real sure how this forum is laid out but I am really hoping to find some answers to my lower back/leg/hip/pain and numbness/pins & needles.

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He had me on 3200 mg of ibuprofen a day for like 6 months, he’s given me muscle relaxers, and played it off as if I am imagining the pain. He’s not sent me to a specialist yet but after the MRI results today he said he would schedule me for physical therapy then to see a neurosurgeon. Sometimes my legs feel like jello. It feels I have a can opener in my spine during the day then after I get home I am exhausted from pain all day. I feel bad when I go to sleep (which is about 4:00 to 5:00 am and I feel worse when I get up.

I have no idea where to turn, I have to support my family.

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@carsalespapa

I may have introduced myself in the wrong place. I’m Anthony, not real sure how this forum is laid out but I am really hoping to find some answers to my lower back/leg/hip/pain and numbness/pins & needles.

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@carsalespapa

I responded to your other post. All I can say is that I’d be looking for a new doctor.

Jim

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@liz1945

Hello group. My name is Liz and I’m looking for conversation from people who’ve attended the chronic pain clinic at Mayo’s in Rochester

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I am also looking as am thinking of going

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@carsalespapa

I may have introduced myself in the wrong place. I’m Anthony, not real sure how this forum is laid out but I am really hoping to find some answers to my lower back/leg/hip/pain and numbness/pins & needles.

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Hi carsalespapa,
I have had chronic pain for over 10 years and I know the feeling of needing to work. I live alone and I am my sole source of support. Had I not had an excellent pain doctor who was willing to prescribe medication but who was very careful about it, I would not have been able to work as long as I have. I am turning 63 in a few weeks and so am very close to retirement now. If I were you I would check around with people you know or online in your area and find a pain doctor. These docs can help with injections, testing to really isolate the problem and finding the right medications that might at least get you some relief so that you can sleep. 3200 mg of ibuprofen seems like an awful lot and that stuff can really mess with your stomach after a while. I am no doctor but I have had a number of doctors tell me that. Not sure where you are located but do you have the ability to self refer to a pain specialist or do you have to get your doctor to refer you? Going to a neurologist may also be a good idea but I think you need to get some relief and that is why I say a good competent pain specialist is who I would try to see if I were you. Are you able to do this?

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@geneo

Name geneo, was recently diagnosed with spinal stenosis in March 2017 at that time it got so bad I needed a walker then I went to a Charapractor for 8 weekly visits very little help at that time I was on a cane,finally decided to go to an Orthopedic surgeon who had a MRI was told that not much could be done other then try steroid shots but could not say it would help. I left the office still in pain went home and started my own treatment.Today I have very little pain only in the morning but I’m almost completely free of pain and can walk without any help it has been 6 months since I left the Doctors. I tried everything from scanning the internet to reading medical papers. What I finally did and it worked was
One spoonful of Tumeric mixed in juice
Lower back excersize in morning
20 minutes in my Jacuzzi
2 times a day using a cold laser I purchased off the Internet for $100.
Ice pack for 20 minutes a day
All I can say it works for me when I almost could not even walk without lower back and both legs pain

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It all started last March,after shoveling snow,then it got worse I could not walk unless I was bent over or used a walker, I was told by my Orthopedic surgeon that is a classic symptom of Spinal Synosies,of which an MRI showed that and disc deteriations and Arthritis.I took the disc home went on “You Tube” and learned how to look at the images. I then compared it to a healthy one and was able to see most of the problems. I saw a lot of bone spurs and discs that looked like they went thru a wringer. Apparently I had this for a long time but why now did it start hurting and my guess was the snow shoveling. It took 6 months to finally start to see improvement, see my other introduction as to what I did to help stop the pain.

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@liz1945

Hello group. My name is Liz and I’m looking for conversation from people who’ve attended the chronic pain clinic at Mayo’s in Rochester

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I’ve visited the clinic in August. I think the three week plan would be great. I’m just not sure how much it would cost to stay up there and feed myself for three weeks. Do you know anybody who’s been through the treatment plan

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@liz1945 and @lynettegable – Rochester Mayo Clinic has free Concierge Services that I’m pretty sure can help you with information about the costs. Here’s a link to the Mayo Clinic Concierge Service page: http://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services

John

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@geneo

Name geneo, was recently diagnosed with spinal stenosis in March 2017 at that time it got so bad I needed a walker then I went to a Charapractor for 8 weekly visits very little help at that time I was on a cane,finally decided to go to an Orthopedic surgeon who had a MRI was told that not much could be done other then try steroid shots but could not say it would help. I left the office still in pain went home and started my own treatment.Today I have very little pain only in the morning but I’m almost completely free of pain and can walk without any help it has been 6 months since I left the Doctors. I tried everything from scanning the internet to reading medical papers. What I finally did and it worked was
One spoonful of Tumeric mixed in juice
Lower back excersize in morning
20 minutes in my Jacuzzi
2 times a day using a cold laser I purchased off the Internet for $100.
Ice pack for 20 minutes a day
All I can say it works for me when I almost could not even walk without lower back and both legs pain

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Hi Gail, sorry a little late getting back to you but a lot of people have been asking me questions, but for you I hope I didn’t allude that an operation would not help it’s that Insurance company’s want you to try non evasive techniques first. They want the spinal needles first or maybe PTs last but not least an operation. I’m not thrilled by operations and now the want me to look into what they call Burst stimulation, again To much risk of every thing from infections to paralysis and then some. Since you first read my situation
Every thing is going fine as long as I don’t push it, the exercise I got off of ( you tube) there are differant types but you have to try each one to see what works best. You want to strep the ligaments without over doing it, I believe this what causes the sciatic nerve to become inflamed and cause inflammation which is the killer.
Keep in touch I hope I can help,and don’t forget the Turmeric
Geno

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@geneo

Name geneo, was recently diagnosed with spinal stenosis in March 2017 at that time it got so bad I needed a walker then I went to a Charapractor for 8 weekly visits very little help at that time I was on a cane,finally decided to go to an Orthopedic surgeon who had a MRI was told that not much could be done other then try steroid shots but could not say it would help. I left the office still in pain went home and started my own treatment.Today I have very little pain only in the morning but I’m almost completely free of pain and can walk without any help it has been 6 months since I left the Doctors. I tried everything from scanning the internet to reading medical papers. What I finally did and it worked was
One spoonful of Tumeric mixed in juice
Lower back excersize in morning
20 minutes in my Jacuzzi
2 times a day using a cold laser I purchased off the Internet for $100.
Ice pack for 20 minutes a day
All I can say it works for me when I almost could not even walk without lower back and both legs pain

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I think you sent this to the wrong Gail.

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@carsalespapa

I may have introduced myself in the wrong place. I’m Anthony, not real sure how this forum is laid out but I am really hoping to find some answers to my lower back/leg/hip/pain and numbness/pins & needles.

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@carsalespapa, I too think you need to find another doctor before your current one causes you further problems. I had to stop taking ibuprofen because it gave me ulcers. I think it’s horribly irresponsible for the doctor to have you taking that much ibuprofen! Of course I am not a medical professional. If you’re able, find a good spinal surgeon or as suggested, a neurosurgeon. What did your MRI show as problems? I wouldn’t start with PT until you have shown your MRI to a spinal specialist–surgeon or neurosurgeon. I don’t think your doctor knows how to deal with your back issues.

I have had back problems with symptoms that sound similar to yours. My primary care doctor referred me to a spinal surgeon, who I then researched to find out his background and reputation through Google. I knew the first time I met him that he was an expert. He and his assistant showed me my MRI, and my xray and talked to me in great depth about the problems the images showed. He discussed the different treatments and options to treat my problems. Last December I had an outpatient surgery called a “laminectomy” where he shaved off a small portion of my L5-S1 disk in order to relieve the pressure on my spinal cord. I went home immediately after the surgery, and I have a 2 inch scar. I then waited until about 8 or 9 weeks before he had me start on PT. The acute pain on my left side was completely gone after the surgery. However, I still had deep pain on my right side lumbar, sciatic, leg, knee, calf and ankle.

The spine surgeon said I would need major surgery with rods and pins in order to repair the damage on my right side. He recommended that I try other more conservative therapies first. I had already been referred to a pain doctor prior to my surgery, so that doctor kept me on the pain medications for my right side pain. They helped, but I still had (and continue to have) pain that awakens me at night. I finished 3 months of PT, with no relief to my right side pain.

Then, I read on this site (Mayo Connect) about ART, Active Release Technique. I researched what it was, and looked for a practitioner in my area Yorba Linda, California, on Google. Google listed all the certifications of the professionals who were all chiropractors to my surprise. I then asked a friend of mine who is a masseuse if he could recommend a good ART professional, and he named the same doctor I had picked based on his training. I saw the ART doctor for 6 sessions of very deep muscle massage at the same time he was moving my leg. It was VERY painful, but it was working from the first session. It’s 4 months later and I’m completely out of pain on my right side, except for some that continues to awaken me at about 3 a.m. I go in for 1 session a month now. I can’t tell you what a relief it is not being in pain all the time. I can go up and down steps now and wal pretty long distances without tiring.

I hope you find good doctors to help you find relief. Dont start PT until you understand what is wrong and a doctor says you can do PT without causing more damage. Good luck, Gail B Ledesma

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@carsalespapa

I may have introduced myself in the wrong place. I’m Anthony, not real sure how this forum is laid out but I am really hoping to find some answers to my lower back/leg/hip/pain and numbness/pins & needles.

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@carsalespapa and @gailb

I took 80mg of Ibuprofen 4x a day for many years, like around 25 years, until 7 years ago, when I had surgery for peptic ulcers. 25 years is probably too long to take that much Ibuprofen. I should add, to be up front, that for awhile I took a lot more than was prescribed when I went through a suicidal phase. Now, I’m not supposed to take any NSAIDS, but I do take some for arthritis. I had an endoscopy a month ago and have no signs of polyps or ulcers.

But, yes, NSAIDS can certainly cause gastric problems, so beware, Anthony.

Jim

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I am a 86 year old female. Basically I am healthy except for back pain. I had 3 back surgeries, one 33 years ago and a spinal fusion in 2005 and 2006. I also have two hip replacements, one 12 years old and one 30 years old. I have non stop pain coming from the thoracic area and was told my back has too many problems to do surgery again. I am seeing a pain management doctor who has given me injections, but none seem to work. Therapy has not helped either. Now I take 2 ibuprofen 3x a day and at night add tramadol 50 mgs. I would love feedback from others.

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Hi I still use my school nickname of FreaKers I live in the UK & also like to spend time in Ireland and have an interesting story re my chronic pain situation which I will be posting

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@freakers

Hi I still use my school nickname of FreaKers I live in the UK & also like to spend time in Ireland and have an interesting story re my chronic pain situation which I will be posting

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Hi FreaKers (@freakers) – Welcome to Mayo Connect! We are happy you found us and look forward to reading your chronic pain story. Also, don’t hesitate to ask any questions you may have as Connect is a great place to find out what other Connect members are doing for their chronic pain and other health concerns.

John

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