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Waldenstrom macroglobulinemia: What can I expect with chemo?

Posted by mrperezy50 @mrperezy50, Dec 21, 2022

I'm 40yr old male, just been recently diagnosed with Waldenstrom macroglobulinemia, I have no symptoms. I'm going to start chemo in a few weeks, what can I expect, does anyone have any experience with this cancer or treatment. Any advice will help.

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ejrquast | @ejrquast | Feb 24 10:02am
In reply to @aann "Hi, my husband had his bone marrow exam twice in the last two years. Once to..." + (show)
@aann

Hi, my husband had his bone marrow exam twice in the last two years. Once to confirm diagnosis, the other before he started on a trial medication. I don’t think we knew to ask specific questions. Are there some we can ask on his next visit, in four weeks?

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The following is a link to an excellent video from the I.W.M.F. 2022 Forum by Dr. Matous . Hopefully this will answer many of your questions and give you direction for your upcoming appointment.
https://m.youtube.com/watch?v=06gndR0JH-g

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ejrquast | @ejrquast | Feb 25 10:11am
In reply to @aann "Waldenstrom’s Husband diagnosed two years ago and has tried four different oral meds but can’t get..." + (show)
@aann

Waldenstrom’s
Husband diagnosed two years ago and has tried four different oral meds but can’t get IGM below 3200. Dr is now recommending chemo. Anyone with a similar story eho has found something other than chemo that worked for them?

Jump to this post

The following is a link to an excellent video from the I.W.M.F. 2022 Forum by Dr. Matous . Hopefully this will answer many of your questions and give you direction for your upcoming appointment. https://m.youtube.com/watch?v=06gndR0JH-g
We are here for you if you have further questions.

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