Waldenström's Macroglobulinemia

Posted by Yellersam @yellersam, Jan 31, 2012

Hi, my dad has recently been diagnosed with WM. First things first; he told me 90% of his bone marrow was infected with the cancer. How severe would that be compared to other patients? He also falls into the high risk category. Has anybody here with WM fall into the high risk category as well?
Much thanks to all!

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Colleen Young, Connect Director | @colleenyoung | Jan 20, 2017

In reply to @colleenyoung "Welcome to Connect, @dcp45. I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia...." + (show)

DCP - What treatments have you had or currently undergoing? Is the neturopenia managed by transfusions or G-CSF injections? Do you have to manage low red blood cell counts as well as the white blood cells?

@azjulie - how is your husband doing? What treatment is he having?

dcp45 | @dcp45 | Jan 20, 2017

In reply to @colleenyoung "Welcome to Connect, @dcp45. I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia...." + (show)

Thank you for the link.
I was diagnosed in early 2014 with Stage IVA lymphoplasmacytic lymphoma/Waldenstrom's Macroglobulinemia with concomitant T-large granular lymphocyte leukaemia complicated by severe neutropenia

Colleen Young, Connect Director | @colleenyoung | Jan 20, 2017

Welcome to Connect, @dcp45.
I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia. You may also be interested in this discussion thread.
- Waldenstroms and amyloidosis http://mayocl.in/2dOVhlz

DCP - is this a recent diagnosis for you? We look forward to getting to know you.

dcp45 | @dcp45 | Jan 19, 2017

Just wondering if anyone else with this diagnosis

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