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Squamous Cell Vulvar Cancer: Who out there has this cancer?

Posted by bobette1 @bobette1, Oct 10, 2022

Just diagnosed a week ago. Who is out there with this cancer? Looking for advise, tips and what to expect as I start my journey. TIA

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kate14 | @kate14 | 5 days ago
In reply to @andwho "Thank you for sharing what you are going thru. I am thankful my radiologist treated my..." + (show)
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Thank you for sharing what you are going thru. I am thankful my radiologist treated my condition, I am cancer free but had no idea about any possible side effects. Rectum prolapse definitely interferes with quality of life. What a surprise & frightening at the same time.
Does any of this ever go away or is this the new me??

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@kate14
Thank you for your candid comments. I have a scan next week and surgery several days later. Am a severe claustrophobic. Getting a few pills for "anxiety". You are correct in that there doesn't seem to be much information from anyone regarding what side effects devastate. My hospital "team" has been slow to support. Scared.

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kate14 | @kate14 | 5 days ago

Pet scan and surgery three days later. Scared. Claustrophobic. Not much help from care "team" so feel alone and frustrated.

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uniqueibe | @uniqueibe | 4 days ago

I too had claustrophobia...my doc requested sedation.

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