Squamous Cell Vulvar Cancer: Who out there has this cancer?

Posted by bobette1 @bobette1, Oct 10, 2022

Just diagnosed a week ago. Who is out there with this cancer? Looking for advise, tips and what to expect as I start my journey. TIA

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

nomikins | @nomikins | Nov 2 2:54pm

In reply to @scm "The pet scan will show if you have cancer anywhere. It is easy! Do not worry!..." + (show)

Is it with X-rays? Or sound like an MRI?

scm | @scm | Nov 2 8:59pm

No. It does not bang like an MRI! I have now had four at Mayo in Rochester! You stay in your clothes and you can have whatever type of music playing for you. You are in and out of a tube for about twenty minutes. The only bad part is that they will put you in a dark room for an hour before and infuse you with the radiation dye that will go through your system and identify any cancer. It is the latest and greatest at identifying any cancer anywhere in the body.

andwho | @andwho | 3 days ago

Looking for some advice.
I was diagnosed with vulvar cancer 2 yrs ago. 32 rounds of radiation (no surgery) 3 rounds of chemo. As of now no sign of cancer. Still dealing with irritation in that area that comes & first. Any cream suggestions? Also suffering with loss of bladder & bowel control.
Otherwise glad to be alive!
Any feedback would help!

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