Vitamin B12 Shots

Posted by wkary @wkary, Sep 21, 2016

Post Live Transplant 2 years. Anyone have experience in receiving B12 shots and were they effective to some degree?

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@rosemarya

@wkary, I see that you are coming off prednisone. How is that going for you? I've been on 5 mg for 7 years. started coming off by tapering to 2.5mg for a month, and then 0 mg. My body did not like coming off of it. Body aches, nausea, fatigue, lethargy. I'm currently back on 2.5 mg. because of my discomfort. I hope you are doing well with coming off the prednisone. Rosemary

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I have to say I have never heard of "exercised induced asthma", but like you I have an extremely hard time not viewing them as consequential. The PCP is the way to go. You only have to come off 5 so in reality you can take your time. Personally if I had to do it again I would have suggested .5 on a 3 week span. Why be in a rush with how long you have been on it. That amount of time has to play a role in your issues. Positive thoughts your way and stay in touch as you start again! Bill

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@rosemarya

@wkary, I see that you are coming off prednisone. How is that going for you? I've been on 5 mg for 7 years. started coming off by tapering to 2.5mg for a month, and then 0 mg. My body did not like coming off of it. Body aches, nausea, fatigue, lethargy. I'm currently back on 2.5 mg. because of my discomfort. I hope you are doing well with coming off the prednisone. Rosemary

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@wkary, I'm talking to my PCP tomorrow about lowering my prednisone. I've been on 2.5 mg for 4 months. We have already discussed a s-l-o-w taper. Keep on sending those good thoughts! Rosemary

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@rosemarya

@wkary, I see that you are coming off prednisone. How is that going for you? I've been on 5 mg for 7 years. started coming off by tapering to 2.5mg for a month, and then 0 mg. My body did not like coming off of it. Body aches, nausea, fatigue, lethargy. I'm currently back on 2.5 mg. because of my discomfort. I hope you are doing well with coming off the prednisone. Rosemary

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@coastalgirl, thanks for your reply. I never had any signs of asthma or any breathing issues before. And it is strange to me that now, I have it - 7 years post transplant, and with lowering prednisone. My local PCP, pulmonologist, and cardiologist all tell me that they don't think there's a connection; that my levels were too low to cause that! But....hmmmm? I will bring this possibility up to my transplant team when I visit them. It is frustrating because I like to think that I'm the one in control (it's the prior teaching career).
On the bright side, I have just returned from a vacation to Utah NPs and was able to do some pretty decent hiking, but still not like before.
Rosemary

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@rosemarya

@wkary, I see that you are coming off prednisone. How is that going for you? I've been on 5 mg for 7 years. started coming off by tapering to 2.5mg for a month, and then 0 mg. My body did not like coming off of it. Body aches, nausea, fatigue, lethargy. I'm currently back on 2.5 mg. because of my discomfort. I hope you are doing well with coming off the prednisone. Rosemary

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So glad you were able to get some hiking in. That is awesome!
I, too, must admit I like to feel I am in control. I was a court reporter for 26 years until retiring last year. I am still clinging to the hope that i will be able to work some but haven't made it there yet.
Anyway, it does sound quite suspicious.
Also, i read that some women actually develop adult onset asthma later in life, too.
Best of luck and love that we can share with each other and find a common ground with someone that truly understands.

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@rosemarya

@wkary, I see that you are coming off prednisone. How is that going for you? I've been on 5 mg for 7 years. started coming off by tapering to 2.5mg for a month, and then 0 mg. My body did not like coming off of it. Body aches, nausea, fatigue, lethargy. I'm currently back on 2.5 mg. because of my discomfort. I hope you are doing well with coming off the prednisone. Rosemary

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Some great news and sending positive thoughts.

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@wkary Thanks. I got the green light! Every other day taper and see how it goes.
Rosemary

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I took a 1000 mcg of Cyanocobalamin. Will this hurt me? It’s been over a week.

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@cduncan123
That amount of B-12 is considered safe but are you sure you need supplemental B-12?
You might talk to your Physician about it and ask for a blood test just so you'll know for sure. Why take something you don't need.
A supplement probably isn't necessary if you eat a healthy diet.
Do you have celiac disease or another condition or take medication that may interfere with its absorption? I take seizure medication which interferes with
B-12 absorption but I eat quite a bit of meat and fruit and other foods and mine is within normal range.
Don't take B-12 with vitamin C.
Vitamin C prevents your body from using
B-12 and should be taken with a meal to be better absorbed.
Take care,
Jake

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