Any longhaulers noticing vision changes?

I had Covid in Dec 2020 and Sept 2021 and have lung kidney scarring and had myocarditis for almost 18 mos as a result of the infection. I am still taking medications for this but at least off steroids.
I am also a nurse so have a pretty good understanding of most medical related conditions.

Having said all of that... YES vision changes. I had a recent eye exam due to one of the medications I am on and the exam didnt show any damage but it did not check my prescription . that will be a separate appt. But my vision is awful and changes or seems to change day to day sometimes. Hoping its inflammation related and will eventually improve .

Most long hauler physical symptoms driven by Covid are due to an inflammatory process. Use some moisturizing eye drops , read up on ways to reduce inflammation in the body with diet exercise, supplements , medications for chronic conditions etc.. and do what you can to reduce the inflammatory processes in your body and see if that helps at all.

For certain follow with your ophthalmologist and stay with it to rule out other causes or changes . Make sure whatever provider sees you for this knows you are post covid too.

Best wishes!

Yes, my vision has gone from bad to worse. I've had long covid 11 months now. Just had a new eye exam. Dr couldn't believe how worse my vision has gotten in a year.

Welcome, @jimmerz26. As you can see from this discussion, you're not alone with dealing with worsening vision. Was your doctor able to determine if there was any damage or a specific cause?

I’ve noticed a change in my vision after I had covid in Feb 2022.

Approx 2-3 months I was at both of my boys’ football games. This is about 8-9am. And noticed the sun was extremely bright and became very uncomfortable. I started to look for shade. Didn’t think too much of the first time but then the following week …Same thing.
Maybe another 112 months go by and I notice my prescription eyeglasses weren’t working for me anymore. As if I needed a stronger prescription.
Now recently when I do wear them I feel more dizzy than I normally do. So I just take them off.
Also when I drive especially in the daytime I always lower my visor and passengers to minimize the brightness of the day.
At work I can only tolerate so many hours of working under Fluorescent lighting where as before having covid the artificial lighting was not a problem for me.

I had Covid in October,2021. My eyesight has steadily gotten worse. I am so light sensitive I must wear sunglasses not only outside but inside on bright days that allows sunlight inside. Bright lights are extremely insulting to my eyes. My eyesight becomes foggy to the point I cannot read. My ophthalmologist has no answer.
Extremely dry eyes. I use various wetting drops throughout the day and night. Finally got a new Rx drug that is sprayed into the inside of my nostrils that really helps. The name is Tyrvava. Doc gave me a sample to try and I went the whole night without waking with my lids glued shut. I have been using it over six months with great relief. I still have the sensitivity to light.
Since Covid, I am so fatigued I keep falling asleep throughout the day and can only walk short distance’s without resting.
My Cardiologist told me they are seeing a lot of this among their patients who are in their 80s and had Covid. I am almost 85.

The sensory overload you are experiencing may be due to brain stem inflammation. I have a Covid vaccine neurological injury, which resembles Long Covid. I'm a member of the Neuro V Long-Haulers Facebook group. A Danish physician who is helping us attributes the sensory overload symptoms you describe to brain stem inflammation. He recommends anti-inflammatory supplements such as palmitoylethanolamide (PEA).

Have the supplements helped you at all?

My injury is peripheral neuropathy, but, based on the advice of the Danish physician for another patient, I have been taking PEA and it seems to have accelerated my recovery. There is good research evidence that it reduces neuroinflammation. It has a good safety profile.

The vision changes aren’t usually anatomical. It’s most important to remember you see with your brain. I experienced this. It was only after I learned to retrain my brain at Mayo my vision was restore after 18 months. Central Sensitization Syndrome is the cause. You can look up helpful info on my Instagram #covidrecovermama it does get better when you learn how fix the actual program. Your not alone.