I have a very high calcium score. What next?

Posted by dpframing @dpframing, Aug 24, 2018

Just joined the site and I'm looking to share with others who have had a high calcium score. I found out today that mine is 2996 and I am scared by this. I am 61 and I am totally asymptomatic. Now I feel like a walking time bomb. I am thinking of requesting an angiogram to see if there's any narrowing anywhere and if it can be corrected with a stent. After a second heart doctor told me that the plaque buildup might be uniform over the course of years with no big problem areas, I am encouraged. But the score still freaks me out, specifically my LAD at 1333. I don't smoke or drink but I have to lose 40 lbs.

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@hikerguy62

@pumaguy79 At a CAC score of 8000, did you ever need a stent? Have you ever felt any chest pain? That's quite a score! My score this past March was 2534 (at 61 years of age). Absolutely asymptomatic at this point. I consider myself pretty fit for my age. I walk about a mile 5-6x a week, exercise every other day (sandbag training), mostly vegetarian, no alcohol, no smoking. I was put on 20mg Crestor/Rosuvastatin shortly after receiving my score and started taking D3, K2 and CoQ10 shortly after receiving my score. I chose NOT to go on a baby aspirin though due to the risk of stroke, brain hemorrhage and stomach ulcers.

Just curious how you feel with a score that high.

Thanks,

Andy

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Speaking of baby aspirin, I too decided NOT to take it but only after realizing I am one of those people to whom it causes major heartburn. It got so bad one night, I thought I was having a heart attack but no, it was only baby aspirin. My doc told me that when they did original studies, there found this subgroup of people who cannot tolerate the aspirin but it's not widely publicized....gee, I wonder why not? 🙂

p

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@questionofbalance

I'm 64 and thought in decent shape, a bit overweight, and scored 700. I was shocked as many and there isn't guidance except seeing cardiologist, who are booked for two months. Epidemic?
I eat well and make most meals, mostly plant based with seafood and chicken.
Hurt my knee last year and after 45 years of running had to back down to walking 4 miles.
I'd like to do some light jogging/walking for four miles and I'm doing knee exercises. I got heart rate up to 168 jogging but worried should I not push myself more? Most info says diet and exercise but limits according to score aren't mentioned.
My goal was to back down to 10mg of Lipitor after being on 20 for 20 years. Doc said yes, but first do calcium score. After score he advised going up to 40mg and take aspirin. Aspirin bothers my system so i stopped taking it.
Reading more about K2 helping with heart but it clots blood. Also, seems I should have been taking CoQ10, which I'm doing now. I backed off of K2 because I think more research needed and trying to get it from pasture raised eggs, some cheeses (which is saturated fat) high in K2, and other prepped foods high in K2.
Off for a light run/walk - thinking I go light until I see cardiologist. May last run I felt fine.

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Where did you hear about K2 causing clots? What I am being told is that it removes calcium from the blood stream and increases calcium in the bone (where it belongs). I would hate to be taking the wrong supplement.

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@christianzane

Cardiologists… BTDT, been there done that. If you are otherwise a healthy individual with no symptoms the most a reputable cardiologist will do is put you on a statin and perhaps give a stress echocardiogram or nuclear scan. If the stress echo results are normal the doctor will advocate for aggressive lifestyle changes: regular exercise, balanced mostly plant based diet, abstaining from smoking and excessive alcohol and keep BP in check. Regular check-ups/blood work with your GP are important.

Also keep in mind if you have an elevated calcium score it has been high for a VERY long time. And how are you doing now? Fine and probably asymptomatic.

CAC score isn’t a death sentence; it’s a wake-up call.

If no symptoms don’t get tricked into an invasive coronary angiogram without any functional testing like stress echocardiogram or nuclear testing. And resist the unnecessary angioplasty.

Get on a statin. I resisted like an dummy for 20 years, my father started taking them when they first came out in the 1980s I believe it was, and when he recently turned 85 years old I realized he was just doing fine on them and my fears were irrational. The statin will stabilize the soft plaque and prevent it from breaking off and forming clots.

Calcium is just one piece of the puzzle, while this illustration isn't scientific it gives a good overall picture.

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#christianzane. Thanks for your comment. Two weeks ago I got a score of 535. I have taken an 2d echo and today a nuclear stress test. The 2d echo was great. I have great blood pressure, always have. And healthy weight.

If the stress test doesn’t show anything, I believe my doc is just recommending lifestyle changes: diet, exercise, statin, hydration, etc. I was thinking I needed another doc, to see about more testing. Listening to YouTube Cardiologist, I am hearing CT Angiogram, CIMT, etc.
I thought my doc wasn’t doing enough.

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@questionofbalance

I'm 64 and thought in decent shape, a bit overweight, and scored 700. I was shocked as many and there isn't guidance except seeing cardiologist, who are booked for two months. Epidemic?
I eat well and make most meals, mostly plant based with seafood and chicken.
Hurt my knee last year and after 45 years of running had to back down to walking 4 miles.
I'd like to do some light jogging/walking for four miles and I'm doing knee exercises. I got heart rate up to 168 jogging but worried should I not push myself more? Most info says diet and exercise but limits according to score aren't mentioned.
My goal was to back down to 10mg of Lipitor after being on 20 for 20 years. Doc said yes, but first do calcium score. After score he advised going up to 40mg and take aspirin. Aspirin bothers my system so i stopped taking it.
Reading more about K2 helping with heart but it clots blood. Also, seems I should have been taking CoQ10, which I'm doing now. I backed off of K2 because I think more research needed and trying to get it from pasture raised eggs, some cheeses (which is saturated fat) high in K2, and other prepped foods high in K2.
Off for a light run/walk - thinking I go light until I see cardiologist. May last run I felt fine.

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@questionofbalance : I was in a similar situation a few months ago. I had to take 4 months off running (after running for more than 20 years) because of Polymyalgia Rheumatica, an inflammatory thingie. At the end of that time, I got a score of 600. I had a stress test before I started running again. I was told that aerobic exercise is fine, but to avoid an RPE of “hard”. I think you are wise to wait to start ramping up until you talk to someone and get a stress test. But I think you will absolutely be able to get back to training at a decent level. I found the book “Beat the Heart Attack Gene” to be helpful. Sometimes books in the popular literature are iffy, but most of the things the book mentions I have also found to be true in my light read of more ‘“trusted” resources. It’s at least a place to get started trying to get your arms around this diagnosis.

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@questionofbalance

I'm 64 and thought in decent shape, a bit overweight, and scored 700. I was shocked as many and there isn't guidance except seeing cardiologist, who are booked for two months. Epidemic?
I eat well and make most meals, mostly plant based with seafood and chicken.
Hurt my knee last year and after 45 years of running had to back down to walking 4 miles.
I'd like to do some light jogging/walking for four miles and I'm doing knee exercises. I got heart rate up to 168 jogging but worried should I not push myself more? Most info says diet and exercise but limits according to score aren't mentioned.
My goal was to back down to 10mg of Lipitor after being on 20 for 20 years. Doc said yes, but first do calcium score. After score he advised going up to 40mg and take aspirin. Aspirin bothers my system so i stopped taking it.
Reading more about K2 helping with heart but it clots blood. Also, seems I should have been taking CoQ10, which I'm doing now. I backed off of K2 because I think more research needed and trying to get it from pasture raised eggs, some cheeses (which is saturated fat) high in K2, and other prepped foods high in K2.
Off for a light run/walk - thinking I go light until I see cardiologist. May last run I felt fine.

Jump to this post

Cardiologists… BTDT, been there done that. If you are otherwise a healthy individual with no symptoms the most a reputable cardiologist will do is put you on a statin and perhaps give a stress echocardiogram or nuclear scan. If the stress echo results are normal the doctor will advocate for aggressive lifestyle changes: regular exercise, balanced mostly plant based diet, abstaining from smoking and excessive alcohol and keep BP in check. Regular check-ups/blood work with your GP are important.

Also keep in mind if you have an elevated calcium score it has been high for a VERY long time. And how are you doing now? Fine and probably asymptomatic.

CAC score isn’t a death sentence; it’s a wake-up call.

If no symptoms don’t get tricked into an invasive coronary angiogram without any functional testing like stress echocardiogram or nuclear testing. And resist the unnecessary angioplasty.

Get on a statin. I resisted like an dummy for 20 years, my father started taking them when they first came out in the 1980s I believe it was, and when he recently turned 85 years old I realized he was just doing fine on them and my fears were irrational. The statin will stabilize the soft plaque and prevent it from breaking off and forming clots.

Calcium is just one piece of the puzzle, while this illustration isn't scientific it gives a good overall picture.

REPLY
@questionofbalance

I'm 64 and thought in decent shape, a bit overweight, and scored 700. I was shocked as many and there isn't guidance except seeing cardiologist, who are booked for two months. Epidemic?
I eat well and make most meals, mostly plant based with seafood and chicken.
Hurt my knee last year and after 45 years of running had to back down to walking 4 miles.
I'd like to do some light jogging/walking for four miles and I'm doing knee exercises. I got heart rate up to 168 jogging but worried should I not push myself more? Most info says diet and exercise but limits according to score aren't mentioned.
My goal was to back down to 10mg of Lipitor after being on 20 for 20 years. Doc said yes, but first do calcium score. After score he advised going up to 40mg and take aspirin. Aspirin bothers my system so i stopped taking it.
Reading more about K2 helping with heart but it clots blood. Also, seems I should have been taking CoQ10, which I'm doing now. I backed off of K2 because I think more research needed and trying to get it from pasture raised eggs, some cheeses (which is saturated fat) high in K2, and other prepped foods high in K2.
Off for a light run/walk - thinking I go light until I see cardiologist. May last run I felt fine.

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question,

You don't mention your BP ... is it high?

And, yeah, that's a long time running/jogging - hard to stop, but sounds like it's time.

Does a single 81 mg coated aspirin really bother you? It's different for all of us, but I never noticed it.

Did you have stress test with echo?
Peripheral artery disease ultrasound?
Advanced lipids panel (CardioIQ)?

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I'm 64 and thought in decent shape, a bit overweight, and scored 700. I was shocked as many and there isn't guidance except seeing cardiologist, who are booked for two months. Epidemic?
I eat well and make most meals, mostly plant based with seafood and chicken.
Hurt my knee last year and after 45 years of running had to back down to walking 4 miles.
I'd like to do some light jogging/walking for four miles and I'm doing knee exercises. I got heart rate up to 168 jogging but worried should I not push myself more? Most info says diet and exercise but limits according to score aren't mentioned.
My goal was to back down to 10mg of Lipitor after being on 20 for 20 years. Doc said yes, but first do calcium score. After score he advised going up to 40mg and take aspirin. Aspirin bothers my system so i stopped taking it.
Reading more about K2 helping with heart but it clots blood. Also, seems I should have been taking CoQ10, which I'm doing now. I backed off of K2 because I think more research needed and trying to get it from pasture raised eggs, some cheeses (which is saturated fat) high in K2, and other prepped foods high in K2.
Off for a light run/walk - thinking I go light until I see cardiologist. May last run I felt fine.

REPLY
@mayoconnectuser1

pumaguy79,

I completely disagree with your broad statement re being over tested/treated ... sure, it might seem that way while medical professionals are searching for causes, and perhaps informed and aggressive testing hasn't yet saved your life, but the processes have certainly saved hundreds of thousands, maybe millions of other lives.

Now, less broadly, some testing and treatment may be "over," but the question is, as always with large populations of circumstances - where is the line?

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There isn't a reputable doctor in America that would rush a patient in for an angiogram, stents etc after getting a CAC score if the patient is otherwise healthy and asymptomatic. I voluntarily took a stress test but my doctor recommended I didn't need it. When symptoms arise (whether you have a CAC score or not) including shortness of breath, chest pain (or pain in shoulders, arms, neck, jaw, back or stomach), weakness/fatigue, etc then it's time for invasive testing.

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pumaguy79,

I completely disagree with your broad statement re being over tested/treated ... sure, it might seem that way while medical professionals are searching for causes, and perhaps informed and aggressive testing hasn't yet saved your life, but the processes have certainly saved hundreds of thousands, maybe millions of other lives.

Now, less broadly, some testing and treatment may be "over," but the question is, as always with large populations of circumstances - where is the line?

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I understand your concern for your calcium score. Mine is 2235. Last fall I was having some left arm pain with minimal exercise. An MRI showed narrowing in two heart arteries and I received two stents. I saw the MRI results and it looked like stalactites and stalagmites reaching toward each other.

As I understand it, stents are more likely to gather calcification as time goes by. I will be taking Plavix for the rest of my life to keep platelets from settling around the stents and causing a blockage. If the stents get blockages (more likely after 10 years) , I will need by-pass surgery. So, bottom line is to work with your cardiologist to determine if further diagnostic testing is recommended. I personally think it is best to wait as long as possible before getting a stent. And a stent isn't recommended for everyone with high calcium scores. Some people never develop the localized narrowing of the arteries so a stent would not be helpful.

I know it is horrible having heart disease and never knowing when a blockage may develop. For me the left arm pain was pretty distinctive -- was definitely not a sore muscle. It came on with even mild exertion; no question in my mind that it was THE left arm pain associated with heart blockage. I did not have chest pain but others may experience things differently.

I wish you good health and peace of mind.

Donna

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