Venting

Posted by stk @stk, Sep 4 6:59am

Forgive me, I am here to vent to individuals who have a similar condition as I.

Shortly after I was diagnosed with a 4.5 cm thoracic aortic aneurysm I went to see a cardiologist. The cardiologist then, appropriately, took an EKG. The result of the EKG was posted on my patient portal. The printout stated that I have a problem with my heart’s conduction system. This scared me (an understatement). I sent a message to the doctor’s office and was told that the diagnosis was due to a software glitch and that my heart is good. If only that information had been provided to begin with.

A few months later I used the portal to send another message regarding my health. The response to my message included reference to my being on a med I don’t take and have never taken.

Of course I would now like to see a different cardiologist in a different office. Which, where I live, leaves me with limited options. I am currently thinking that I may have to move to get an area where I can get better care (and to where my wife can actually get an appointment with a rheumatologist).

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@stk You said, "...I am currently thinking that I may have to move to get an area where I can get better care (and to where my wife can actually get an appointment with a rheumatologist)."

I say "Look before you leap!" Access to excellent medical care is a concern shared by millions in this country. With the aging population, insurance companies dictating many aspects of care, and fewer young people entering hands-on patient-centric specialties, even in major "medical marketplaces" ready access to care is uncertain. Unfortunately, the highest density of specialists often is in the highest-cost living areas.

Is there a middle path for you? Can you look at a major metro area near you, but within reasonable travel distance, where both of you can find care? Even if it requires the occasional overnight stay in a hotel, it would be cheaper and less disruptive to life than a relocation.

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Profile picture for Sue, Volunteer Mentor @sueinmn

@stk You said, "...I am currently thinking that I may have to move to get an area where I can get better care (and to where my wife can actually get an appointment with a rheumatologist)."

I say "Look before you leap!" Access to excellent medical care is a concern shared by millions in this country. With the aging population, insurance companies dictating many aspects of care, and fewer young people entering hands-on patient-centric specialties, even in major "medical marketplaces" ready access to care is uncertain. Unfortunately, the highest density of specialists often is in the highest-cost living areas.

Is there a middle path for you? Can you look at a major metro area near you, but within reasonable travel distance, where both of you can find care? Even if it requires the occasional overnight stay in a hotel, it would be cheaper and less disruptive to life than a relocation.

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@sueinmn You are correct. There are two larger nearby metro areas that I will look into. Thank you.

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Hello, I just wanted to reiterate that I totally agree with @sueinmn and add support to her suggestions. I, too, live in a rural area with limited medical resources but I travel to a larger metro city for second opinions or for some speciality services. I ensure that copies of all medical notes/tests, etc., are forwarded to my rural cardiologist so that they have all the clinical information available. I have learned that “the grass isn’t always greener” the hard way, and I know I that have to stay proactive on keeping my medical care team informed. Our overall healthcare system has become very fragmented post-COVID and requires our own due diligence of our health information. Sounds like you are on top of your health information too which I feel is so important these days. Best of luck to you and your wife in your health care journey.

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