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Anyone got first vaccine shot while experiencing long COVID symptoms?

Posted by aae @aae, Mar 4, 2022

Has anyone received their first shot of vaccine post infection while experiencing Long Covid symptoms? Did it improve your symptoms? This subject is all over the news lately, but I am interested in learning about personal experiences of this.

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covid2021 | @covid2019 | Mar 19, 2022

I had Covid Sept 2021 and am still on oxygen 24/7 due to lung damage. I was opposed to getting vaccinated but after having this illness I changed primary Drs and trust her so when she told me I needed to be vaccinated I did so, I had no after affect from the first vaccination but didn't feel very good day 2 after the second one. Nothing like having Covid, however my Dr said if I get a booster she suggests I take Steroids prior to doing so. Sorry I first had a user name with 2019, I had Covid in 2021 so I corrected that. My short term memory has been affected although I'm not sure if it's just being overwhelmed since my husband didn't make it. All this paperwork and things has been hard. He had Covid first and within days of being in the hospital he had a Cardiac Arrest because they didn't catch the fact he had a 100% heart blockage. I still can't believe it. Or maybe it's what they call brain fog from Covid, I really want my lungs to heal...

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cd54016 | @cd54016 | Mar 21, 2022
In reply to @colleenyoung "Here's some information from Mayo Clinic about getting vaccinated after being infected with COVID "Getting COVID-19..." + (show)
@colleenyoung

Here's some information from Mayo Clinic about getting vaccinated after being infected with COVID
"Getting COVID-19 offers some natural protection or immunity from reinfection with the virus that causes COVID-19. It's estimated that getting COVID-19 and COVID-19 vaccination both result in a low risk of another infection with a similar variant for at least six months.

But because reinfection is possible and COVID-19 can cause severe medical complications, it's recommended that people who have already had COVID-19 get a COVID-19 vaccine. In addition, COVID-19 vaccination might offer better protection than getting sick with COVID-19. A recent study showed that unvaccinated people who already had COVID-19 are more than twice as likely as fully vaccinated people to be reinfected with COVID-19.

Recent research also suggests that people who got COVID-19 in 2020 and then received mRNA vaccines produce very high levels of antibodies that are likely effective against current and, possibly, future variants. Some scientists call this hybrid immunity. Further research is needed."
Read more https://www.mayoclinic.org/coronavirus-covid-19/vaccine-if-already-had-covid

An informal survey of 450 people by Survivor Corps, a patient advocacy group for people with long COVID, found that 171 people said their condition improved after vaccination. But additional research is needed to understand what’s really going on here. Read more here:
- Can a COVID-19 Vaccine Improve Symptoms for People with Long COVID? https://www.healthline.com/health-news/can-a-covid-19-vaccine-improve-symptoms-for-people-with-long-covid#Anecdotal-evidence-suggests-vaccine-relieves-long-COVID

Are you considering vaccination, @aae? Or have you already been vaccinated?

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.......171 people out of 450 people said condition improved. What did the other 279 people say?
I was unvaccinated, had CV19, and 2.5 months after recovering received my first dose of Pfizer and five days after that first dose started to experience Long Covid symptoms of chest pressure, mild pain, fatigue, shortness of breath after low physical activity and more severe symptoms and longer lasting after strenuous activity. That started in August and even today, late March of the following year I have these symptoms.
I'm not going to recommend the vaccine to those of us that have had and survived the CV19 until I see even more sets of data and studies that I can trust. It is hard to trust any data at this point. I can only trust my experience(s) and experience of others that I know and trust.

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Colleen Young, Connect Director | @colleenyoung | Mar 21, 2022
In reply to @cd54016 ".......171 people out of 450 people said condition improved. What did the other 279 people say?..." + (show)
@cd54016

.......171 people out of 450 people said condition improved. What did the other 279 people say?
I was unvaccinated, had CV19, and 2.5 months after recovering received my first dose of Pfizer and five days after that first dose started to experience Long Covid symptoms of chest pressure, mild pain, fatigue, shortness of breath after low physical activity and more severe symptoms and longer lasting after strenuous activity. That started in August and even today, late March of the following year I have these symptoms.
I'm not going to recommend the vaccine to those of us that have had and survived the CV19 until I see even more sets of data and studies that I can trust. It is hard to trust any data at this point. I can only trust my experience(s) and experience of others that I know and trust.

Jump to this post

@cd54016 @aae, unfortunately, the article cited didn't report all the details of the study. Read more in these articles:
- Anecdotal evidence suggests vaccine relieves long COVID https://www.healthline.com/health-news/can-a-covid-19-vaccine-improve-symptoms-for-people-with-long-covid#Anecdotal-evidence-suggests-vaccine-relieves-long-COVID
- Some long-haul covid-19 patients say their symptoms are subsiding after getting vaccines https://www.washingtonpost.com/health/long-haul-covid-vaccine/2021/03/16/6effcb28-859e-11eb-82bc-e58213caa38e_story.html

As you know anecdotal evidence is only the beginning of research. Researchers are now examining the relationship of getting vaccinated after COVID infection.
- Change in Symptoms and Immune Response in People with Post-Acute Sequelae of SARS-Cov-2 Infection (PASC) After SARS-Cov-2 Vaccination https://www.medrxiv.org/content/10.1101/2021.07.21.21260391v2.full-text

The Yale School of Medicine is conducting The Yale Covid Recovery Study. If you're interested in participating, see more information here:
The Yale Covid Recovery Study https://medicine.yale.edu/ycci/covid-recovery-study/

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