Thank you Merry for sharing this! Great information.
My husband has been using CBD/THC in various forms for 6 months (going on 7) for his cancer of 'unknown primary' or type. Thought I'd share that on diagnosis he was given a few months to live and it's been a year. Unfortunately, they still don't know what type of cancer he has but they are leaning toward lung (as it's in his lung and no where else...except a nearby lymph node, pesky node....). His last scan was a week ago and the results show the tumor has not grown, the lymph node has decreased in size/activity just slightly. The only treatment he is receiving now is the medical marijuana and his tumor has decreased overall and the cancer activity has also decreased. It could be the marijuana, it could be.....well just about anything. The doctors are as confused as we are. But we are of course happy it's not progressing quickly at this point. The tumor was shown to be a high grade/fast growing type via pathology but it's not doing that. Will keep everyone posted in another 3 months. It's a mystery.
The pathology (from 3 biopsies) is inconclusive. It has properties of an upper GI cancer but is located in the lung only. The lymph node where it has spread can be either a lung or Gi cancer. The cancer is officially designated a 'cancer of unknown primary', the doctors do not know where the cancer started. They can't give us a definitive diagnosis of ANY type of cancer at this point. But given that in over a year no primary source can be defined and the tumor is in the lung, they are leaning toward a lung cancer. Because they can't identify a source or type of cancer we're monitoring only. Using chemo would require using multiple types of chemo and not knowing which one or if any would work. Radiation is a possibility but we're monitoring a while longer before we move forward with that. Surgery is not an option they say, due to my husband's health and also because removing the tumor wouldn't necessarily mean they had done anything to reserve or contain the cancer and surgery is more risky to his lungs (as is radiation to some extent). There is a type of cancer that I researched and the doctors are considering called enteric pulmonary adenocarcinoma, which is a lung cancer that presents as a cancer of the GI tract. Currently my husband has no symptoms of cancer specifically so there are also no clues there. My husband had a heart condition that we found answers for during one of his biopies. That condition has been successfully resolved with a heart surgery. When he was first diagnosed with cancer he seemed quite ill because of the heart condition. Since that's been resolved, he is much healthier and the doctors may have more options for us, as he can better tolerate treatments.....but we still don't know what we're treating and the cancer has been getting progressively smaller and less active with each 3 month PET scan.
The pathology (from 3 biopsies) is inconclusive. It has properties of an upper GI cancer but is located in the lung only. The lymph node where it has spread can be either a lung or Gi cancer. The cancer is officially designated a 'cancer of unknown primary', the doctors do not know where the cancer started. They can't give us a definitive diagnosis of ANY type of cancer at this point. But given that in over a year no primary source can be defined and the tumor is in the lung, they are leaning toward a lung cancer. Because they can't identify a source or type of cancer we're monitoring only. Using chemo would require using multiple types of chemo and not knowing which one or if any would work. Radiation is a possibility but we're monitoring a while longer before we move forward with that. Surgery is not an option they say, due to my husband's health and also because removing the tumor wouldn't necessarily mean they had done anything to reserve or contain the cancer and surgery is more risky to his lungs (as is radiation to some extent). There is a type of cancer that I researched and the doctors are considering called enteric pulmonary adenocarcinoma, which is a lung cancer that presents as a cancer of the GI tract. Currently my husband has no symptoms of cancer specifically so there are also no clues there. My husband had a heart condition that we found answers for during one of his biopies. That condition has been successfully resolved with a heart surgery. When he was first diagnosed with cancer he seemed quite ill because of the heart condition. Since that's been resolved, he is much healthier and the doctors may have more options for us, as he can better tolerate treatments.....but we still don't know what we're treating and the cancer has been getting progressively smaller and less active with each 3 month PET scan.
@cindylb - Good for you in doing your own research! And on top of that have found something that the doctors will look at! How are you both holding up?
@cindylb - Good for you in doing your own research! And on top of that have found something that the doctors will look at! How are you both holding up?
Thanks for asking. We're hopeful that 2019 will be a lot less stressful than 2018 which was truly terrible. My husband feels pretty good and we're trying to stay positive that the cancer won't take some wild turn and become really aggressive before we can figure out what treatments may work. We live day by day now (in both good and bad ways...ha ha)
My husband has a tumor in his lung and nearby lymph node but the cancer is not necessarily a lung cancer (it is a cancer of unknown primary), as such after a full year his doctors have had no treatment plan or options. They recommended medical marijuana, which he is using. That is all he is using at this point. Today we go for another PET scan. This is the fourth PET in a year (among other tests and biopies). The tumor has gotten smaller every 3 month scan. We don't know that CBD and THC are the reason but...........perhaps. I will update everyone this week on the latest PET results. We are hopeful but cautious.
My husband has experienced no ill effects from using the CBD and THC (it is legal here in Colorado both recreationally and medically). In fact, it has helped with other pain he experiences from another cause (not cancer) and anxiety. There is limited data as to how marijuana may or may not support cancer care. As it's the only intervention we have at this point, we are hopeful it may help hold off this cancer until we can get a diagnosis.
Hugs to you.
@joangma - Hello, Not all lung cancer patients qualify for immunotherapy It's tricky as whether you have the "right cells" for it, and whether your type of cancer actually have any of the new medicines. But if you can have it, it's a wonderful suggestion!
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@cindylb- Cindy- Did the pathology report say that it was small cell lung cancer or non small cell?
The pathology (from 3 biopsies) is inconclusive. It has properties of an upper GI cancer but is located in the lung only. The lymph node where it has spread can be either a lung or Gi cancer. The cancer is officially designated a 'cancer of unknown primary', the doctors do not know where the cancer started. They can't give us a definitive diagnosis of ANY type of cancer at this point. But given that in over a year no primary source can be defined and the tumor is in the lung, they are leaning toward a lung cancer. Because they can't identify a source or type of cancer we're monitoring only. Using chemo would require using multiple types of chemo and not knowing which one or if any would work. Radiation is a possibility but we're monitoring a while longer before we move forward with that. Surgery is not an option they say, due to my husband's health and also because removing the tumor wouldn't necessarily mean they had done anything to reserve or contain the cancer and surgery is more risky to his lungs (as is radiation to some extent). There is a type of cancer that I researched and the doctors are considering called enteric pulmonary adenocarcinoma, which is a lung cancer that presents as a cancer of the GI tract. Currently my husband has no symptoms of cancer specifically so there are also no clues there. My husband had a heart condition that we found answers for during one of his biopies. That condition has been successfully resolved with a heart surgery. When he was first diagnosed with cancer he seemed quite ill because of the heart condition. Since that's been resolved, he is much healthier and the doctors may have more options for us, as he can better tolerate treatments.....but we still don't know what we're treating and the cancer has been getting progressively smaller and less active with each 3 month PET scan.
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2 Reactions@cindylb - Good for you in doing your own research! And on top of that have found something that the doctors will look at! How are you both holding up?
Thanks for asking. We're hopeful that 2019 will be a lot less stressful than 2018 which was truly terrible. My husband feels pretty good and we're trying to stay positive that the cancer won't take some wild turn and become really aggressive before we can figure out what treatments may work. We live day by day now (in both good and bad ways...ha ha)
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1 Reaction@cindylb- It wasn't the best year for me either. Take care. Stay in touch!
you might try the immunitytherapycenter.com they have done wonders with stage 4 lung cancer
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1 Reaction@joangma - Hello, Not all lung cancer patients qualify for immunotherapy It's tricky as whether you have the "right cells" for it, and whether your type of cancer actually have any of the new medicines. But if you can have it, it's a wonderful suggestion!
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1 ReactionI'm hoping this is our year Merry.............bring on 2019
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1 Reaction***Note from the Community Director***
This message has been removed. Upon investigation, it was discovered to be spam and a scam promising a medically unfounded cure.
@cindylb - Bring it on!