Mayo Clinic Connect
I am looking for suggested starting dosage information
Liked by cindylb, lady1lake, berdyaev11
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This message has been removed. Upon investigation, it was discovered to be spam and a scam promising a medically unfounded cure.
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Thank you for the information that reads very positive for those of us that have SCLC. If my next scan shows any cancer progression I will definitely try Cannabis oil.
Liked by Merry, Volunteer Mentor
@lady1lake – Dr. Brown Nelson is an herbal "doctor". There is nothing that substantiates his claims that CBD oil or THC cures cancer. Medically there is no cure for cancer. We treat cancers. My trust in the medical field, which is science based, is based on years and years of proving theories that are factual, correct and work. There are so many people on line that would sell their first born to make a buck. I'm not saying this guy does but there is no scientific proof for his claims. It's the modern day snake oil salesman pitch.
Please be careful what you try, research what you read about and don't believe anyone who professes something that is seems to good to be true. Otherwise I have a bridge that I'd like to sell you.
Your concern & advice is greatly appreciated. So far I have followed the Mayo recommended protocol after going through many tests & biopsies. If worse comes to worse in maintaining control of the SCLC I would not hesitate to seriously consider cannabis oil.
Lady- I take CBD oil – It's great for calming and many other things. So many cancer patients are vulnerable and want cures that they believe that there could be. CBD oil, as you know, is new on the market. Very little is really known about what it can and can not do. I'm so glad that you are cautious and following and excellent protocol at Mayo!
The post about Dr. Brown and the unsubstantiated claims of cure has been removed. Further investigation revealed that this member has been spamming multiple online patient forums. Please be cautious about what you read on the internet and always evaluate the source.
Here is some of the current evidence about the effectiveness of CBD (cannabinoids) as anticancer agents
There have been recent news stories about the potential promise of CBD and/or THC oil and fighting lung cancer, such as these news stories:
However, you'll note that both articles are quick to point out that any potential positive effects have only been studied in petri dishes or on mice in a laboratory (in vitro). This is not the same as testing and discovering positive effects in humans. So far CBD/THC is still less effective than current drugs and dosages have not been tested or proven.
Here is more information about studies done so far in vitro from the National Cancer Institute: https://www.cancer.gov/about-cancer/treatment/cam/hp/cannabis-pdq#section/_7 (medical professional version)
https://www.cancer.gov/about-cancer/treatment/cam/patient/cannabis-pdq#section/_3 (patient version. See answers to questions 6 and 7)
The review includes a summary of currently ongoing clinical trials evaluating the safety and efficacy of cannabinoids as anticancer agents.
– The current state and future perspectives of cannabinoids in cancer biology https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5852356/
@collenyoung- Thank you for removing it and for all of this great information.
you might try the immunitytherapycenter.com they have done wonders with stage 4 lung cancer
@joangma be sure to do your research regarding alternative therapies and promises of cure. One way to evaluate the claims of an alternate therapy is to look it up on the National Center for Complementary and Integrative Health (NCCIH) website https://nccih.nih.gov/
In the section "Health Topics A-Z" current therapies and conditions are listed explaining the most recent evidence, cautions and potential of future studies.
Thank you Colleen for the web site. I will stay connected with their research via Facebook.
The pathology (from 3 biopsies) is inconclusive. It has properties of an upper GI cancer but is located in the lung only. The lymph node where it has spread can be either a lung or Gi cancer. The cancer is officially designated a 'cancer of unknown primary', the doctors do not know where the cancer started. They can't give us a definitive diagnosis of ANY type of cancer at this point. But given that in over a year no primary source can be defined and the tumor is in the lung, they are leaning toward a lung cancer. Because they can't identify a source or type of cancer we're monitoring only. Using chemo would require using multiple types of chemo and not knowing which one or if any would work. Radiation is a possibility but we're monitoring a while longer before we move forward with that. Surgery is not an option they say, due to my husband's health and also because removing the tumor wouldn't necessarily mean they had done anything to reserve or contain the cancer and surgery is more risky to his lungs (as is radiation to some extent). There is a type of cancer that I researched and the doctors are considering called enteric pulmonary adenocarcinoma, which is a lung cancer that presents as a cancer of the GI tract. Currently my husband has no symptoms of cancer specifically so there are also no clues there. My husband had a heart condition that we found answers for during one of his biopies. That condition has been successfully resolved with a heart surgery. When he was first diagnosed with cancer he seemed quite ill because of the heart condition. Since that's been resolved, he is much healthier and the doctors may have more options for us, as he can better tolerate treatments…..but we still don't know what we're treating and the cancer has been getting progressively smaller and less active with each 3 month PET scan.
I was reading your posts and very encouraged. My Mom has stage 4 colon cancer. What dose of @ Cbd oil does your husband take?
My husband is using both CBD alone and with THC. We weren't given any suggested amounts by either our medical doctors or the medical marijuana clinic. I don't know if there any actual standards or protocols set for this. My husband is using a CBD oil of 1mg and a THC gummy of 25mg. I can't really help with specific amounts unfortunately. He supplements during with some additional CBD throughout the day via vaping (that is for the peripheral neuropathy in his feet). My husband is following the suggestions of the medical marijuana clinic. We started out conservatively and he is adding different products and amounts as we go, slowly, to see how it affects him. He has not experienced any negative side effects but we don't know if what we are doing with this is really the reason his cancer is slowing or regressing. He does have less foot pain (which is from a serious accident/injury from 50 years ago for which there is no treatment as well.)
I believe that anything one can do that seems to be helping and not hurting when one has cancer is worth giving a try. Everyone is different and I strongly suggest consulting with your doctors before starting or adding anything to your treatment. That said, two friends, one who cannot take narcotics and who is facing her seventh knee surgery is going to try marijuana to help with her pain and a second friend with pancreatic cancer just got medical marijuana and is giving it a try as an addition to treatment. Hugs to you.
Colleen and @merpreb , Thanks for looking out for the rest of us! How frustrating to have someone going around doing that.
Liked by Colleen Young, Connect Director, Merry, Volunteer Mentor
@bluelagoon– You are more than welcome! These types of people are all over the place! It's true- Buyer Beware.
I would like the dosages and recommendations for this as well for my husband. My husband still has no definitive diagnosis on his cancer and all the doctors will do is repeat PET scans at this point. It's frustrating and scary. We are looking into as many natural and supportive options possible and CBD/THC is one that we have started but we could use any additional information. Thank you Colleen for the links to the articles.
cindylb, I have stage 4 colon cancer. Do you know the name of a reputable doctor in Colorado who would prescribe cbd oil with THC for me. I live in another state but could drive to Colorado. Also do you know the name of a reputable online drug pharmacy. Thank you for your posting. Marthagail
I don't know how the laws work so I don't know if you can get a doctor here to prescribe if you live in another state. Also, I believe it's illegal to transport marijuana from a legal state (Colorado) to a state where it isn't legal. That said….if you come to Colorado you can buy and use marijuana while here. It would be best to research the laws for your state and transportation across state lines. Here is the problem with marijuana at this point in time……it's still illegal on a Federal basis but states rights allow for people in 'legal' states to use cannabis products. I wish I were more help.
Liked by Colleen Young, Connect Director
Thank you. I’m not sure what the laws are for my state but I’ll check into it.
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