Unruptured Brain Aneurysm

Posted by badnaples @badnaples, Nov 22, 2021

Hello! I recently found out I have a 4mm ACOM during a CT scan, waiting CT angio appointment, question is....live life normally? OK, to travel (fly), exercise etc. Can't get answers from doc, they say all this will be covered during pre-op which is weeks away and in the meantime causing me anxiety not knowing what I should or should not do. Not sure if I have symptoms, various headaches, mild, dull, various areas of the head, but have those often and for long time, and stuffy nose so assume its sinus. Any help is appreciated, suppose to travel in 48 hours. I read all this about rupturing and frightens me. Is it something that would happen suddenly or gradually from a leak. Help! THank you.

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Profile picture for lisa930 @lisa930

Hello Friends! I have five brain aneurysms. Long story about how they were all found (thankfully before one ruptured). I’ve had three surgeries to treat them. One coiled, one clamped and three with the pipeline embolism devices. I would really like to hear from someone that’s had this similar situation. And how they are doing. My last surgery was just three weeks ago. Thanks! Lisa

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Hi @lisa930 - I moved your post here so you could return to where you were chatting with others such as @smilton @mkoch @srodriguez25 and others about your unruptured brain aneurysms.

How has your recovery gone since your surgery three weeks ago?

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @lisa930 - I moved your post here so you could return to where you were chatting with others such as @smilton @mkoch @srodriguez25 and others about your unruptured brain aneurysms.

How has your recovery gone since your surgery three weeks ago?

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@lisalucier thank you! I’m doing well. I have some after effects that will hopefully lessen or go away. Having the Dr up in my brain three times, well actually four bc he went into the left and right sides this past surgery. All within a nine month period was really tough. Thank you for asking and switching me over to the correct group! ❤️🧠

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Profile picture for minnmitzi @minnmitzi

I am a 77 yo female with previous heart attack 12 years ago, but always with good BP. I had an MRI finding in May 2024 that I have a 3.9mm x 3.9mm size aneurysm in my right cavernous carotid artery. Took me totally by surprise, though it probably shouldn’t have due to my father’s history of multiple cardiovascular disease. The purpose of the MRI was to evaluate me for mild but constant dizziness that had begun months earlier.
Consult with neurosurgery PA told me that it is considered a cerebral aneurysm, but that it is NOT a cause of my dizziness, that it is considered “benign” and that all they would do at this time is to watch me for symptoms and repeat the MRI annually to watch for increase in size. At 3.9mm I’m on the cusp of small to medium size aneurysm.
I’ve been able to, mostly, put this out of my mind - it may reappear in my thought only a few times a month. Part of that, I think, is due to having numerous other health issues to manage every day. I also have a regular social group with whom I engage weekly, belong to a Bible Study group and a book club and I do volunteer work. In other words, I’m just going about my life as usual. Disappointingly, my dizziness is still there and no one can figure that out - it’s another of my daily challenges.
I truly appreciate this forum to learn about others experiences which helps me to evaluate my own. Thanks to everyone!

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@minnmitzi hello, my mom has been recently diagnosed with 3 cerebral aneurysms and has been advised to have them surgically repaired. My question is at what size are aneurysms considered for surgery. My dad wants her to get a second opinion. Thanks!

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Profile picture for tressy @tressy

@minnmitzi hello, my mom has been recently diagnosed with 3 cerebral aneurysms and has been advised to have them surgically repaired. My question is at what size are aneurysms considered for surgery. My dad wants her to get a second opinion. Thanks!

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@tressy Sorry to hear about your Mom's medical challenge. It will be a challenge for you and your Dad as well. I do not know at what point cerebral aneurysms are considered to be candidates for surgical repair. However, I do know that in addition to size, its location and position are factors, too. In my case, I was told because it is located in the boney "cavern" at the base of the skull it has lower risk for leakage. So, both size and location were important in deciding about surgical repair. Wishing your Mom and all your family well in this.

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Profile picture for tressy @tressy

@minnmitzi hello, my mom has been recently diagnosed with 3 cerebral aneurysms and has been advised to have them surgically repaired. My question is at what size are aneurysms considered for surgery. My dad wants her to get a second opinion. Thanks!

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@tressy: The aneurysm I had coiled a year and a half ago was 5.5ish and the neurosurgeon I consulted with said that anything over 5 mm. is when you should look into having the aneurysm repaired. But as "minnmitzi" stated, location also plays a big part in deciding what to do, as well as one's age/state of health.

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If the aneurysm is an ophthalmic segment internal carotid artery (ICA) aneurysm in the C6 segment. What are the risks of that location?

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Profile picture for aigul29 @aigul29

If the aneurysm is an ophthalmic segment internal carotid artery (ICA) aneurysm in the C6 segment. What are the risks of that location?

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@aigul29: A neurosurgeon who specializes in aneurysms is your best friend and the one who will give you the correct answer to the question you are asking. I've had both an aneurysm and a meningioma taking up real estate in my brain. At the teaching university/hospital I go to one neurosurgeon who specializes in aneurysms did my coiling procedure, and a different neurosurgeon who specializes in meningiomas did that surgery. But while waiting for my aneurysm repair I was advised to not hang upside down and my keep blood pressure at 130 or below.

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Profile picture for smilton @smilton

Live life normal but don’t really over extend yourself with hard exercise/ but exercise and stay fit/ don’t hang upside down- or ride anything that twist or turns fast/ex . Six flags rides- don’t get over angry or stressed out- and smile a lot😊- life is short- be happy!!

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@smilton
All good advice.

I have recently been diagnosed with Bilateral symmetric C6 ICA aneurysms. Right 8x7x6mm. Left 6x7x6mm. Does anyone else have similar?

I've spoken to a neurosurgeon who was fabulous - we went over treatment options (coiling / surgical clipping), I've decided to take the "watch and wait route" as the risk of rupture is .5% each (so in my case it would be 1% risk since I have two) but the risk of surgical complications is 3-5%.

Wondering if anyone else has had experience with this...

We will do another CT Angiogram in a year.

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Hi!
I'm new to this group and wanted to share my experience. It's been a hellish medical journey over the past year. Starting with a scary episode of vertigo which landed me in the ER. Later, I was diagnosed with unruptured wide necked 2-3mm brain aneurysm along the vertical petrous segment of the left ICA. In addition, I also have slight hearing loss in my left ear (not the same side as the vertigo) and tinnitus ever since. Multitude of doctors and tests -- have spent more on medical last year (and this year) than I probably ever have.
My Neurosurgeon/Vascular doc will be doing follow-up MRA every year to keep a check on it to make sure it is not growing and he advised me to "just live my life". I'm doing my best to follow that advice.
I've always been active and pretty healthy -- no high blood pressure, no diabetes, etc. But, last year changed that for me for whatever reason. It has been an adjustment to say the least.
This is what I've been diagnosed with over the past year: Vertigo, hearing loss, tinnitus, cerebellar stroke (an "old silent" stroke, they say), heart defect (PFO), Sleep Apnea, and if that wasn't enough -- a torn gluteal minimus!
Seriously?! The end result of most of these ailments is just to monitor and live my life. Sleep Apnea and torn glute I'm actively working on and I take a daily aspirin because of the stroke. I guess the upside is that I've already met my health insurance deductible this year. LOL

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I am not sure if I am in the right group or not? I ended up in the ER in late March for a bad headache, off balance, and double vision. They did two ct scans and an mri. They found a tumor and an aneurysm. The aneurysm is a M2 6 mm and the Tumor is a 1. 5.8 cm frontal brain mass crossing the midline, most suggestive of a low- grade glioma, but could also be a typical tumor or high-grade malignancy. They could not do surgery then b/c of the 800mg Motrin I had taken that morning. Wanted me to stay there for 7 days to get it out of my system. I decided to go home and then follow up with a neurosurgeon. Went for console a week later and the decided to get a second opinion b/c I wasn’t getting any answers answered. I was rushed in and out. My primary doctor referred me to the Brain and Spine Institute. The Doctor I saw there I liked a lot more. He wants me to have an Angiogram before surgery. He referred me to another doctor to have that done. I went for console on May 30th and have been waiting ever since for the office to call me with a date. For the last two and a half weeks I have called that office and his assistants number as well and haven’t been able to talk to anyone yet. I leave messages every time and get none in return. Ive asked the Brain Institute to please refer me to another dr. So I can get this done. Any suggestions are welcome. I am a 70 year old widow who lives alone and I’m very scared. My symptoms vary from day to day but my neck pain is crazy bad all the time. Thanks for reading

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