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Unruptured Brain Aneurysm

Posted by badnaples @badnaples, Nov 22, 2021

Hello! I recently found out I have a 4mm ACOM during a CT scan, waiting CT angio appointment, question is....live life normally? OK, to travel (fly), exercise etc. Can't get answers from doc, they say all this will be covered during pre-op which is weeks away and in the meantime causing me anxiety not knowing what I should or should not do. Not sure if I have symptoms, various headaches, mild, dull, various areas of the head, but have those often and for long time, and stuffy nose so assume its sinus. Any help is appreciated, suppose to travel in 48 hours. I read all this about rupturing and frightens me. Is it something that would happen suddenly or gradually from a leak. Help! THank you.

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Lisa Lucier, Moderator | @lisalucier | May 28 10:39pm
In reply to @lizheathmn "I am not sure if I am in the right group or not? I ended up..." + (show)
Profile picture for lizheathmn @lizheathmn

I am not sure if I am in the right group or not? I ended up in the ER in late March for a bad headache, off balance, and double vision. They did two ct scans and an mri. They found a tumor and an aneurysm. The aneurysm is a M2 6 mm and the Tumor is a 1. 5.8 cm frontal brain mass crossing the midline, most suggestive of a low- grade glioma, but could also be a typical tumor or high-grade malignancy. They could not do surgery then b/c of the 800mg Motrin I had taken that morning. Wanted me to stay there for 7 days to get it out of my system. I decided to go home and then follow up with a neurosurgeon. Went for console a week later and the decided to get a second opinion b/c I wasn’t getting any answers answered. I was rushed in and out. My primary doctor referred me to the Brain and Spine Institute. The Doctor I saw there I liked a lot more. He wants me to have an Angiogram before surgery. He referred me to another doctor to have that done. I went for console on May 30th and have been waiting ever since for the office to call me with a date. For the last two and a half weeks I have called that office and his assistants number as well and haven’t been able to talk to anyone yet. I leave messages every time and get none in return. Ive asked the Brain Institute to please refer me to another dr. So I can get this done. Any suggestions are welcome. I am a 70 year old widow who lives alone and I’m very scared. My symptoms vary from day to day but my neck pain is crazy bad all the time. Thanks for reading

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@lizheathmn - welcome to Mayo Clinic Connect. You've been through quite a bit with your health recently.

You posted in this discussion, which is perfect for the aneurysm you mentioned:

- Unruptured Brain Aneurysm https://connect.mayoclinic.org/discussion/unruptured-brain-aneurysm/.

For your tumor finding, you might want to check out this group and its many discussions:

- Brain Tumor Support Group https://connect.mayoclinic.org/group/brain-tumor-support-group/. Members there can support as you learn more about your tumor and move into treatment, if appropriate.

What is the current plan for your aneurysm? Or is that yet to be determined?

REPLY
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Maryann | @mkoch | May 29 12:14pm
In reply to @lizheathmn "I am not sure if I am in the right group or not? I ended up..." + (show)
Profile picture for lizheathmn @lizheathmn

I am not sure if I am in the right group or not? I ended up in the ER in late March for a bad headache, off balance, and double vision. They did two ct scans and an mri. They found a tumor and an aneurysm. The aneurysm is a M2 6 mm and the Tumor is a 1. 5.8 cm frontal brain mass crossing the midline, most suggestive of a low- grade glioma, but could also be a typical tumor or high-grade malignancy. They could not do surgery then b/c of the 800mg Motrin I had taken that morning. Wanted me to stay there for 7 days to get it out of my system. I decided to go home and then follow up with a neurosurgeon. Went for console a week later and the decided to get a second opinion b/c I wasn’t getting any answers answered. I was rushed in and out. My primary doctor referred me to the Brain and Spine Institute. The Doctor I saw there I liked a lot more. He wants me to have an Angiogram before surgery. He referred me to another doctor to have that done. I went for console on May 30th and have been waiting ever since for the office to call me with a date. For the last two and a half weeks I have called that office and his assistants number as well and haven’t been able to talk to anyone yet. I leave messages every time and get none in return. Ive asked the Brain Institute to please refer me to another dr. So I can get this done. Any suggestions are welcome. I am a 70 year old widow who lives alone and I’m very scared. My symptoms vary from day to day but my neck pain is crazy bad all the time. Thanks for reading

Jump to this post

@lizheathmn: The primary care physician who referred you to the Brain and Spine Institute should intercede on your behalf. Please contact him. I worry that the lack of response from the B & S Institute may indicate the kind of care you will get from that facility in general. So perhaps your PCP could refer you elsewhere (is there a teaching hospital associated with a university within a 2 hour radius?) and at the very least your PCP should call the B & S Institute to speed things up. Also, is your PCP aware that you are no longer taking Motrin? He should prescribe something else for your neck pain that won't interfere with you being scheduled for surgery.

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