1. < Diabetes & Endocrine System
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Type 1 Surprise

Posted by devanab5 @devanab5, Aug 12, 2018

Hi, does anyone on here talk about type 1? I am only seeing stuff about type 2.

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

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Teresa, Volunteer Mentor | @hopeful33250 | Sep 24, 2018
In reply to @santina "4 weeks" + (show)
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4 weeks

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@santina
Sorry, but I don't have any information about that.

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Sep 24, 2018

Hello @santina,

The BCG - Bacille Calmette-Guérin - vaccine has been administered for almost a century to prevent tuberculosis or TB. It has U.S. Food and Drug Administration approval.

The phase 1 study conducted by researchers at Massachusetts General Hospital (MGH) concluded that:
"Long-term follow-up of participants in clinical trials of a generic vaccine to reverse advanced type 1 diabetes finds significant clinical benefits, including restoration of near-normal blood sugar levels. Three years after receiving two administrations of the bacillus Calmette-Guérin (BCG) vaccine four weeks apart, all members of a group of adults with longstanding type 1 diabetes showed an improvement in HbA1c to near normal levels – improvement that persisted for the following five years."

This FAQ-page, related to BCG vaccine research, may help answer some of your questions:
https://www.massgeneral.org/News/assets/pdf/062118faustman_qa.pdf

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JK | @contentandwell | Sep 24, 2018
In reply to @kanaazpereira "Hello @santina, The BCG - Bacille Calmette-Guérin - vaccine has been administered for almost a century..." + (show)
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Hello @santina,

The BCG - Bacille Calmette-Guérin - vaccine has been administered for almost a century to prevent tuberculosis or TB. It has U.S. Food and Drug Administration approval.

The phase 1 study conducted by researchers at Massachusetts General Hospital (MGH) concluded that:
"Long-term follow-up of participants in clinical trials of a generic vaccine to reverse advanced type 1 diabetes finds significant clinical benefits, including restoration of near-normal blood sugar levels. Three years after receiving two administrations of the bacillus Calmette-Guérin (BCG) vaccine four weeks apart, all members of a group of adults with longstanding type 1 diabetes showed an improvement in HbA1c to near normal levels – improvement that persisted for the following five years."

This FAQ-page, related to BCG vaccine research, may help answer some of your questions:
https://www.massgeneral.org/News/assets/pdf/062118faustman_qa.pdf

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@kanaazpereira this is really interesting. I hope they do discover similar results with type 2.
They are now saying that if you lose a lot of weight (>35 pounds) you can almost reverse type 2 also. I would have to say that has been true for me. My A1c is good even though I have not been nearly as diligent as I should be about limiting carbs.
JK

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santina | @santina | Sep 25, 2018
In reply to @hopeful33250 "Hello @devanab5 Yes, I do recall seeing several members of Connect discuss Type I diabetes. Here..." + (show)
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Hello @devanab5

Yes, I do recall seeing several members of Connect discuss Type I diabetes. Here is a link to one discussion, https://connect.mayoclinic.org/discussion/glucophase-for-type-1/
and https://connect.mayoclinic.org/discussion/the-depression-and-mood-swings-with-type-1-diabetes/ Please feel free to read the posts in each discussion and if you find a topic or a post interesting please feel free to hit "Reply" and ask a question of the person who posted.

Here is some general information about Type I Diabetes from Mayo Clinic's website, https://www.mayoclinic.org/diseases-conditions/type-1-diabetes/symptoms-causes/syc-20353011

@devanab5 Since you wanted to discuss Type I Diabetes, do you have any specific questions about it? If so, please share your questions as you are comfortable doing so. Can I assume that you are the patient with Type I Diabetes or are you asking for a friend or family member? Once again, please share only as you are comfortable doing so.

I look forward to hearing from you again.

Teresa

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my 16 year old was has type 1, I am seeing two doctors one this week and the other next week. we are going to discuss stem cell, with our doctor next week, Wednesday we are going to talk about the vaccination bcg shot, any thoughts, thank you.

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santina | @santina | Oct 2, 2018
In reply to @johnbishop "Hello @santina, Welcome to Connect. I'm sorry to hear that your son has type 1 diabetes..." + (show)
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Hello @santina, Welcome to Connect. I'm sorry to hear that your son has type 1 diabetes but I'm glad you found Connect. It's a great place to meet others with similar health problems and learn what they are doing for treatments. I don't have diabetes but have always been told by my doctors that I am pre-diabetic. I'm hoping other members will add suggestions for you but while you wait you might want to see the following discussions:

Video Q&A about Technology Advances in Diabetes Treatment
-- https://connect.mayoclinic.org/webinar/video-qa-about-technology-advances-in-diabetes-treatment/

Mayo Clinic Minute: Advancing technology making Type 1 diabetes management easier
-- https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-advancing-technology-making-type-1-diabetes-management-easier/

I'm tagging @dawn_giacabazi, @kdubois and @lisalucier to see if they have any suggestions.

@santina after your son was diagnosed with type 1 diabetes did his doctors come up with a treatment plan?

John

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yes, insulin four times per day!

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Teresa, Volunteer Mentor | @hopeful33250 | Oct 30, 2019
In reply to @stephania157 "Hi, I have type1and I want to no why the bottom of my feet feels like..." + (show)
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Hi, I have type1and I want to no why the bottom of my feet feels like I'm walking rocks all on the top of my feet. Is there anything I can do.

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Hi @stephania157,
As it has been a while since you last posted, I was wondering how you are feeling. Has the discomfort in your bottom of your feet improved?
Will you post again with an update?

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santina | @santina | Oct 30, 2019
In reply to @santina "my 16 year old was has type 1, I am seeing two doctors one this week..." + (show)
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my 16 year old was has type 1, I am seeing two doctors one this week and the other next week. we are going to discuss stem cell, with our doctor next week, Wednesday we are going to talk about the vaccination bcg shot, any thoughts, thank you.

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my son received 3 stem cell shots since last year, as of today he is not taken insulin shots on a daily basis, please make sure your doctor gives you the right stem cells, embryonic, unfortunately in this county we can't get fetal stem cells, there is hope that one day stem cell will lead to a promising future for type 1, good luck,

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dorisena | @dorisena | Oct 30, 2019

Santina, my question is, what type of diet does he follow at this time, being a young person exposed to lots of carbs? Dorisena

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santina | @santina | Oct 30, 2019

he don't eat breakfast, I don't like that, however he watches his carbs, mostly chicken, hamburger, some salad wings, some pasta!

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1marzie | @1marzie | Mar 18, 2023

Would like contact information about the trials with TB vaccine?
For Type 1

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