Type 1 Surprise

Posted by devanab5 @devanab5, Aug 12, 2018

Hi, does anyone on here talk about type 1? I am only seeing stuff about type 2.

Hello @santina

What a good question! Perhaps someone will post who has been involved in a clinical trial regarding this. In the meantime, Mayo Clinic has a department for Regenerative Medicine and when I looked at their website it appears as if they are working on this for diabetics.

Here is a link to a website about stem cell research for diabetes, https://www.mayoclinic.org/search/search-results?q=diabetes%20stem%20cell%20treatment

How long have you had Diabetes?

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@kanaazpereira

Hello @santina,

I'd like to add my welcome, and also let you know that I moved your discussion and combined it with this existing discussion as I thought it would be beneficial for you to be introduced to other members talking about Type 1 diabetes.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

I also found a recently published study, that shows how patients who had been treated with the BCG vaccine – vaccine used to prevent tuberculosis – had normal blood sugar levels eight years after the trial ended, and their Type 1 diabetes was reversed to almost undetectable levels. You can read the details here:
https://www.nature.com/articles/s41541-018-0062-8
@santina and @johnbishop @hopeful33250 are you familiar with these findings?

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thank you so much, do you know anyone that reversed type one?

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@santina
No I don't. Perhaps someone will respond to your post, though. I hope so!

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@hopeful33250

Hello @santina

What a good question! Perhaps someone will post who has been involved in a clinical trial regarding this. In the meantime, Mayo Clinic has a department for Regenerative Medicine and when I looked at their website it appears as if they are working on this for diabetics.

Here is a link to a website about stem cell research for diabetes, https://www.mayoclinic.org/search/search-results?q=diabetes%20stem%20cell%20treatment

How long have you had Diabetes?

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Dear Teresa, who would administer this vaccine?

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@hopeful33250

Hello @santina

What a good question! Perhaps someone will post who has been involved in a clinical trial regarding this. In the meantime, Mayo Clinic has a department for Regenerative Medicine and when I looked at their website it appears as if they are working on this for diabetics.

Here is a link to a website about stem cell research for diabetes, https://www.mayoclinic.org/search/search-results?q=diabetes%20stem%20cell%20treatment

How long have you had Diabetes?

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4 weeks

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In reply to @santina "4 weeks" + (show)
@santina

@santina
Sorry, but I don't have any information about that.

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Hello @santina,

The BCG – Bacille Calmette-Guérin – vaccine has been administered for almost a century to prevent tuberculosis or TB. It has U.S. Food and Drug Administration approval.

The phase 1 study conducted by researchers at Massachusetts General Hospital (MGH) concluded that:
"Long-term follow-up of participants in clinical trials of a generic vaccine to reverse advanced type 1 diabetes finds significant clinical benefits, including restoration of near-normal blood sugar levels. Three years after receiving two administrations of the bacillus Calmette-Guérin (BCG) vaccine four weeks apart, all members of a group of adults with longstanding type 1 diabetes showed an improvement in HbA1c to near normal levels – improvement that persisted for the following five years."

This FAQ-page, related to BCG vaccine research, may help answer some of your questions:
https://www.massgeneral.org/News/assets/pdf/062118faustman_qa.pdf

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@kanaazpereira

Hello @santina,

The BCG – Bacille Calmette-Guérin – vaccine has been administered for almost a century to prevent tuberculosis or TB. It has U.S. Food and Drug Administration approval.

The phase 1 study conducted by researchers at Massachusetts General Hospital (MGH) concluded that:
"Long-term follow-up of participants in clinical trials of a generic vaccine to reverse advanced type 1 diabetes finds significant clinical benefits, including restoration of near-normal blood sugar levels. Three years after receiving two administrations of the bacillus Calmette-Guérin (BCG) vaccine four weeks apart, all members of a group of adults with longstanding type 1 diabetes showed an improvement in HbA1c to near normal levels – improvement that persisted for the following five years."

This FAQ-page, related to BCG vaccine research, may help answer some of your questions:
https://www.massgeneral.org/News/assets/pdf/062118faustman_qa.pdf

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@kanaazpereira this is really interesting. I hope they do discover similar results with type 2.
They are now saying that if you lose a lot of weight (>35 pounds) you can almost reverse type 2 also. I would have to say that has been true for me. My A1c is good even though I have not been nearly as diligent as I should be about limiting carbs.
JK

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@hopeful33250

Hello @devanab5

Yes, I do recall seeing several members of Connect discuss Type I diabetes. Here is a link to one discussion, https://connect.mayoclinic.org/discussion/glucophase-for-type-1/
and https://connect.mayoclinic.org/discussion/the-depression-and-mood-swings-with-type-1-diabetes/ Please feel free to read the posts in each discussion and if you find a topic or a post interesting please feel free to hit "Reply" and ask a question of the person who posted.

Here is some general information about Type I Diabetes from Mayo Clinic's website, https://www.mayoclinic.org/diseases-conditions/type-1-diabetes/symptoms-causes/syc-20353011

@devanab5 Since you wanted to discuss Type I Diabetes, do you have any specific questions about it? If so, please share your questions as you are comfortable doing so. Can I assume that you are the patient with Type I Diabetes or are you asking for a friend or family member? Once again, please share only as you are comfortable doing so.

I look forward to hearing from you again.

Teresa

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my 16 year old was has type 1, I am seeing two doctors one this week and the other next week. we are going to discuss stem cell, with our doctor next week, Wednesday we are going to talk about the vaccination bcg shot, any thoughts, thank you.

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@johnbishop

Hello @santina, Welcome to Connect. I'm sorry to hear that your son has type 1 diabetes but I'm glad you found Connect. It's a great place to meet others with similar health problems and learn what they are doing for treatments. I don't have diabetes but have always been told by my doctors that I am pre-diabetic. I'm hoping other members will add suggestions for you but while you wait you might want to see the following discussions:

Video Q&A about Technology Advances in Diabetes Treatment
https://connect.mayoclinic.org/webinar/video-qa-about-technology-advances-in-diabetes-treatment/

Mayo Clinic Minute: Advancing technology making Type 1 diabetes management easier
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-advancing-technology-making-type-1-diabetes-management-easier/

I'm tagging @dawn_giacabazi, @kdubois and @lisalucier to see if they have any suggestions.

@santina after your son was diagnosed with type 1 diabetes did his doctors come up with a treatment plan?

John

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yes, insulin four times per day!

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@stephania157

Hi, I have type1and I want to no why the bottom of my feet feels like I'm walking rocks all on the top of my feet. Is there anything I can do.

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Hi @stephania157,
As it has been a while since you last posted, I was wondering how you are feeling. Has the discomfort in your bottom of your feet improved?
Will you post again with an update?

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@santina

my 16 year old was has type 1, I am seeing two doctors one this week and the other next week. we are going to discuss stem cell, with our doctor next week, Wednesday we are going to talk about the vaccination bcg shot, any thoughts, thank you.

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my son received 3 stem cell shots since last year, as of today he is not taken insulin shots on a daily basis, please make sure your doctor gives you the right stem cells, embryonic, unfortunately in this county we can't get fetal stem cells, there is hope that one day stem cell will lead to a promising future for type 1, good luck,

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Santina, my question is, what type of diet does he follow at this time, being a young person exposed to lots of carbs? Dorisena

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he don't eat breakfast, I don't like that, however he watches his carbs, mostly chicken, hamburger, some salad wings, some pasta!

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