‘‘Twas the Night Before Christmas”

Posted by thumperguy @thumperguy, Dec 24, 2020

Not a creature was stirring not even a mouse. When all of a sudden there arose such a clamor I knew in a moment it must be St. Thumper. So steady the beat I was filled with confidence I had nothing to fear.
He went straight to his work and was soon on his way, but ere he went quiet I heard him declare “May the lungs be healthy and the airways clear.

Merry Christmas 2020 from Thumperguy

You never fail to entertain and provide a boost on this forum. Thank you and Merry Christmas and healthier 2021 to everyone! ( typing this as I nebulize and "thump")

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Did you scare the reindeer? St Nick didn't stop here either – the combined "wreeping" of the current herd of 4 guinea pigs undoubtedly scared them away.
Merry Christmas to all!
Sue

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“Wreeping.” Sue, that’s a term a word junkie can really appreciate. And thanks gej, but I’m getting plenty in the bargain. I’m more than a bit of an attention seeker. Don

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@thumperguy

“Wreeping.” Sue, that’s a term a word junkie can really appreciate. And thanks gej, but I’m getting plenty in the bargain. I’m more than a bit of an attention seeker. Don

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Hmm, wonder if I can use it in Scrabble? Definitely their best attention-seeking or alarm sound! Right now they're all quietly enjoying their breakfast of fresh romaine lettuce.
Sue

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Hi everyone, Merry Xmas to you!

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Merry Christmas everyone and to Thumperguy for his cheery Christmas greeting that few outside this forum would appreciate. I thank everyone for sharing their experience and knowledge as I learned more about this disease and how to “help” my doctors manage it as well as possible. And thanks for the word – wreeping. I am an avid scrabble player and it’s always nice to have a new word to play.

Wishing everyone a happy and healthy New Year!

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@kathyhg

Merry Christmas everyone and to Thumperguy for his cheery Christmas greeting that few outside this forum would appreciate. I thank everyone for sharing their experience and knowledge as I learned more about this disease and how to “help” my doctors manage it as well as possible. And thanks for the word – wreeping. I am an avid scrabble player and it’s always nice to have a new word to play.

Wishing everyone a happy and healthy New Year!

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Hi Kathy & Don – my husband and daughter say the are "wreeting" even though they clearly say "wreep, wreep, wreep" to me! That's what the herd greeted me with this morning when I delayed their breakfast by sleeping until 7:45. They also "wreep" when I use my nebulizer in the kitchen – my husband asked me to move it and I told him I will move when the piggies pay the bills.
Sue

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@sueinmn

Hi Kathy & Don – my husband and daughter say the are "wreeting" even though they clearly say "wreep, wreep, wreep" to me! That's what the herd greeted me with this morning when I delayed their breakfast by sleeping until 7:45. They also "wreep" when I use my nebulizer in the kitchen – my husband asked me to move it and I told him I will move when the piggies pay the bills.
Sue

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sue how are you how long have you been using the nebulizer? I have been on for 9 days I'm having a hard time with all of this but I know I have no choice just need some positive feed back from this all. your post did make me smile about your husband, and the bills hahah

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@jr2366

sue how are you how long have you been using the nebulizer? I have been on for 9 days I'm having a hard time with all of this but I know I have no choice just need some positive feed back from this all. your post did make me smile about your husband, and the bills hahah

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I get the same reaction if I use my nebulizer in the kitchen!

To Jennifer (jr2366) – I know you were asking Sue how she adjusted but i thought I’d add my experience. I found the first few days/weeks to be the most challenging, in adjusting to airway clearance taking up to an hour in the morning and in the evening (after I decided to do it twice a day). I’ve come to accept that this will be a part of my life and I’d rather do this than be on medication again; I was on the Big 3 for 6 months before I developed tinnitus and lost hearing in my right ear. After hearing about other people’s experience, I am grateful to be able to manage with just this twice daily imposition to my day.

I hope you will find this forum as helpful as I have as the information and support make this disease a little more tolerable.

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@kathyhg

I get the same reaction if I use my nebulizer in the kitchen!

To Jennifer (jr2366) – I know you were asking Sue how she adjusted but i thought I’d add my experience. I found the first few days/weeks to be the most challenging, in adjusting to airway clearance taking up to an hour in the morning and in the evening (after I decided to do it twice a day). I’ve come to accept that this will be a part of my life and I’d rather do this than be on medication again; I was on the Big 3 for 6 months before I developed tinnitus and lost hearing in my right ear. After hearing about other people’s experience, I am grateful to be able to manage with just this twice daily imposition to my day.

I hope you will find this forum as helpful as I have as the information and support make this disease a little more tolerable.

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Kathy if you don't mind my questions what did you mean by clearing airway experience and I only do my nebuzier with arikayce medication once a day is what dr prescribed. oh geez so this is a possibility as well the no hearing too I'm happy to be alive and there's medication however I'm still feeling the pain in my lung hopefully the medication will take care of that soon I'm hoping do ;you think so?

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Hi Jennifer. My respirologist calls nebulizing “airway clearance” and I’ve started calling it that after 15 months. I use 7% saline in it; no medication. I started on 3% saline once a day when I went off the Big 3 and switched to 7% twice a day after reading about it on this forum. It has kept my lungs clearer than the Big 3 did (my bacteria count was 3+ when I stopped the meds and has been around 1+ or 0 since about 3 months on the saline). I’m hoping to stay off medication indefinitely or minimally until there is a medication specifically for MAC, as I have read here is in the development/trial process.

I have no experience with other medication (besides the Big 3) but you’ll find many people on this forum can answer your question.

Take care,

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@jr2366

sue how are you how long have you been using the nebulizer? I have been on for 9 days I'm having a hard time with all of this but I know I have no choice just need some positive feed back from this all. your post did make me smile about your husband, and the bills hahah

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Hi Jennifer – Years? But for MAC/bronchiectasis, I have been using 7% saline in the neb for about 15 months – I also learned about it here. I use mine once a day, up it to twice if I fell congested, and add my asthma neb before airway clearance if my asthma is active, too.

I have managed to stay off medications for one year now with no exacerbations (of course, being isolated has helped since I am not exposed at many respiratory illnesses, but this is the first one-year period in over 15 years that I have not had bronchitis, pneumonia, or both! My pulmonologist was very happy at my visit in December.

Airway clearance is a combination of nebulizing, percussion (either manual or using a percussion vest like @thumperguy), aerobic exercise and/or an airway vibratory device like Acapela or Aerobika – followed by "huff coughing" to bring up the mucus in your lungs that provides a safe hiding place for bacteria. Here is a very good description of bronchiectasis and airway clearance in layman's language: https://www.med.unc.edu/medicine/pulmonary/bronchiectasis/patient-care/
A lot of our references seem to be very technical and hard to read all the way through, but I can provide more if you like.

Sue

Liked by kathyhg, poodledoc

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@kathyhg

Hi Jennifer. My respirologist calls nebulizing “airway clearance” and I’ve started calling it that after 15 months. I use 7% saline in it; no medication. I started on 3% saline once a day when I went off the Big 3 and switched to 7% twice a day after reading about it on this forum. It has kept my lungs clearer than the Big 3 did (my bacteria count was 3+ when I stopped the meds and has been around 1+ or 0 since about 3 months on the saline). I’m hoping to stay off medication indefinitely or minimally until there is a medication specifically for MAC, as I have read here is in the development/trial process.

I have no experience with other medication (besides the Big 3) but you’ll find many people on this forum can answer your question.

Take care,

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Kathy, like others on this board you've discovered that 7% rocks. My experience is similar to Sue's in that since beginning 7% the 2 to 3 exacerbations each year have gone bye bye. Currently about 15 months sans flare-up. I use a percussion vest along with the nebulizer. Re: the intrusion into one's daily life and the time it takes. It may seem odd, but I've come to "enjoy" the Thumper time, using it to check the news feed on the iphone, work on a crossword, or occasionally crank out a piece of whimsy like "Ridin' ole Thumper again or a visit from St. Thumper on Xmas eve. Perhaps I should acknowledge that all this is probably easier for me than for many others since I'm fully retired and haven't any children in the house so my daily life has fewer claims on available time. Interacting with people on this board is a gratifying experience as well. Which reminds me; Sue I definitely vote for "Wreeping." What a word! LOL, Don

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Merry Christmas and Happy New Year!

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