1. < Hypertrophic Cardiomyopathy (HCM)

Trouble eating with HCM

Posted by auntsusie33 @auntsusie33, Feb 7, 2023

Hi, I’m here asking if anyone has issues with eating a full meal with HCM? I can only eat very little before I feel sick and possibly vomit. I have a resting gradient of 37mm left ventricle. Looking for advice. I see my cardiologist next week to address this. I’ve lost nearly 28 pounds in several months.
Thank you for listening!

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brumasterj | @brumasterj | Jan 5 5:46pm
In reply to @kimberlysroc "I can't eat before doing anything - even a granola bar makes me later unable to..." + (show)
@kimberlysroc

I can't eat before doing anything - even a granola bar makes me later unable to walk about without shortness of breath. Many days when I need to walk I skip meals until I'm back home to rest, which makes my cardiologist a bit testy. I was approved for surgery last year but we've switched to getting me enrolled in the Camzyos program, which will help, I hope!

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Exactly how mine is been dealing with this for years and telling my doctor about it! Always was told its either exercise induced or allergens in the air! It wasnt until i had two back to back heart failures that i was diagonosed with HCM severe LVOTO 122mmHg
Started me on camzyos to get me to feeling better to await surgery! After 3 weeks on camzyos 31mmhg
I could not believe how much better i feel althoufh im a ways away feom being 100%

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