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jboisjolie
@jboisjolie

Posts: 3
Joined: Jun 16, 2018

Triple Negative Breast Cancer

Posted by @jboisjolie, Jun 17, 2018

Does anyone have triple negative breast cancer? I am on my second diagnosis within 2 1/2 years. What have your side effects? Each time has been different. I will be headed to Rochester in a few weeks to have Stage 3 surgery.

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Looking for any experiences with Xeloda. TNBC diagnosed in March 2016 had chemo, lumpectomy and radiation. Nov. 24, 2017 discovered it metastasized to the brain with 2 tumors. Surgery and cyber knife radiation. Scans were looking ok until July when they saw 2 new tumors in the brain but also found it moved to lungs in the form of several tumors. Started Xeloda Saturday at 2000mg morning and 2000mg evening. Of course I have read everything there is about it but was wondering if anyone had any personal experience they could share.

@kerstin1

Looking for any experiences with Xeloda. TNBC diagnosed in March 2016 had chemo, lumpectomy and radiation. Nov. 24, 2017 discovered it metastasized to the brain with 2 tumors. Surgery and cyber knife radiation. Scans were looking ok until July when they saw 2 new tumors in the brain but also found it moved to lungs in the form of several tumors. Started Xeloda Saturday at 2000mg morning and 2000mg evening. Of course I have read everything there is about it but was wondering if anyone had any personal experience they could share.

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Hi @kerstin1, Welcome to Connect.
Members are talking about Xeloda in the Colorectal Cancer group in these discussions if your interested:
– Diet for Rectal Cancer Radiation with Chemo https://connect.mayoclinic.org/discussion/diet-for-rectal-cancer-radiation-with-chemo
– Xeloda https://connect.mayoclinic.org/discussion/xeloda/

@regionrat took Xeloda for breast cancer for a while and may be able to share her experiences with you.

Kerstin, I know it's only been a few days, but how are you doing on Xeloda so far? Is there something in particular that you are concerned about based on your readings so far?

@kerstin1

Looking for any experiences with Xeloda. TNBC diagnosed in March 2016 had chemo, lumpectomy and radiation. Nov. 24, 2017 discovered it metastasized to the brain with 2 tumors. Surgery and cyber knife radiation. Scans were looking ok until July when they saw 2 new tumors in the brain but also found it moved to lungs in the form of several tumors. Started Xeloda Saturday at 2000mg morning and 2000mg evening. Of course I have read everything there is about it but was wondering if anyone had any personal experience they could share.

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Thank you for the links. I will check them out. Yes it has only been a few days but I guess I'm just a little nervous thinking that the bottom is going to drop out soon as far as side effects. I was also looking for any comments about success or failure on Xeloda.

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