Treatment resistant depression help.

Posted by melbourneaussie69 @melbourneaussie69, Dec 10, 2024

I was diagnosed with Interstitial Lung Disease in September 2020, as time went on, I was lucky enough to receive a lung transplant. I have also dealt with chronic back pain for over 25 years. After my experience in hospital, I was left with PTSD and panic attacks. I was seeing a Psychiatrist and taking Mirtazapine, this seemed to have a negative effect on my behaviour and mood so I stopped taking it. In a search for help I tried many avenues only to be met with constant recommendations to take anti-depressants. Eventually I disengaged with the Psychiatrist and began medicinal cannabis. This has to be done carefully as it clashes with Tacrolimus. I have found it to be beneficial but not a magic bullet. Am I alone in having suicidal ideations after having a transplant? I should be grateful for having a second chance, but I am not.

Interested in more discussions like this? Go to the Depression & Anxiety Support Group.

Profile picture for januaryjane @januaryjane

Ive been diagnosed with depression, anxiety, ptsd for over 20 years. I grew up with a lot of trauma and neglect. Ive never done ECT or the ketamine sprays, Im so afraid of them. Ive done a wide array of medications and therapy.
Im so lost right now, I can't seem to thrive, I am disabled because of it.
My mom is having cognitive decline so it's a lot of stress. We have a rocky relationship but she's still my mom.
We are not fighting as much which I like but I am so sad for her and feel helpless. I worry because my dad and brother dont.
So I feel stuck myself.

Not sure what to do when throwing meds at it isn't helping and therapy has me going nowhere right now.

There are very limited resources, no support groups, just AA. Im not sure how to find community, relearn to socialize and find a life for me again.

Should I try something else? Im at a loss

Jump to this post

I would say always try something else. You never know if the next thing will be the one that pulls you out of your depression. Posting here is a good start. If therapy isn’t helping, maybe you need a different therapist. I started taking Vraylar about 6 months ago and it helped my 20 year long treatment resistant depression tremendously. It’s actually for schizophrenia (which I don’t have) but is being prescribed for depression with a lot of success.
I’m not a doctor or any type of medical professional, just a person with a history of bipolar depression and a daughter with a declining mother.
I feel your pain and frustration and hope that you can find the little bit of light I’m trying to send you.

REPLY
Profile picture for januaryjane @januaryjane

Ive been diagnosed with depression, anxiety, ptsd for over 20 years. I grew up with a lot of trauma and neglect. Ive never done ECT or the ketamine sprays, Im so afraid of them. Ive done a wide array of medications and therapy.
Im so lost right now, I can't seem to thrive, I am disabled because of it.
My mom is having cognitive decline so it's a lot of stress. We have a rocky relationship but she's still my mom.
We are not fighting as much which I like but I am so sad for her and feel helpless. I worry because my dad and brother dont.
So I feel stuck myself.

Not sure what to do when throwing meds at it isn't helping and therapy has me going nowhere right now.

There are very limited resources, no support groups, just AA. Im not sure how to find community, relearn to socialize and find a life for me again.

Should I try something else? Im at a loss

Jump to this post

The reason, some believe, the AA helps people is because it provides a depth of Human connection, where they are able to open up to complete strangers but each willing to share their deepest, most guarded, embarrassing flaws.

The former Surgeon General, Vivek Murthy, believed that lack of human connection in our modern world is behind a number of health issues such as depression, dementia, and early death.
There is also a study that has used the nurses in USA to understand many health problems. They found that while nurses died 66% more often when they lacked social integration, their breast cancer death rate was twice as much than those with close connections. Most surprising though was that those who had many close friends, they were even far better in terms of survival than even those who had family connections but no friends.

Who knew what costs us nothing is also the most potent source of our health.

No wonder it's absence, loneliness, is as bad as smoking 15 cigarettes a day.

Maybe this why Aristotle has said, "Life without a friend is not worth living."
https://ascopubs.org/doi/abs/10.1200/jco.2005.04.2846

REPLY
Profile picture for sisyphus @sisyphus

The reason, some believe, the AA helps people is because it provides a depth of Human connection, where they are able to open up to complete strangers but each willing to share their deepest, most guarded, embarrassing flaws.

The former Surgeon General, Vivek Murthy, believed that lack of human connection in our modern world is behind a number of health issues such as depression, dementia, and early death.
There is also a study that has used the nurses in USA to understand many health problems. They found that while nurses died 66% more often when they lacked social integration, their breast cancer death rate was twice as much than those with close connections. Most surprising though was that those who had many close friends, they were even far better in terms of survival than even those who had family connections but no friends.

Who knew what costs us nothing is also the most potent source of our health.

No wonder it's absence, loneliness, is as bad as smoking 15 cigarettes a day.

Maybe this why Aristotle has said, "Life without a friend is not worth living."
https://ascopubs.org/doi/abs/10.1200/jco.2005.04.2846

Jump to this post

Yes maybe I'll give it a try. I know it's not good for me. Thanks for your comment

REPLY
Profile picture for juliie @juliie

What about ETC?

Jump to this post

Im scared to do ect, have you done it? Ive known people who got memory loss and other issues, they say it isnt worth it.

REPLY
Profile picture for meryw @meryw

I would say always try something else. You never know if the next thing will be the one that pulls you out of your depression. Posting here is a good start. If therapy isn’t helping, maybe you need a different therapist. I started taking Vraylar about 6 months ago and it helped my 20 year long treatment resistant depression tremendously. It’s actually for schizophrenia (which I don’t have) but is being prescribed for depression with a lot of success.
I’m not a doctor or any type of medical professional, just a person with a history of bipolar depression and a daughter with a declining mother.
I feel your pain and frustration and hope that you can find the little bit of light I’m trying to send you.

Jump to this post

Thanks for your reply. Does your insurance cover Vraylar since you dont have schizophrenia?
Im sorry about your mother. I think a major part of my depression right now are the changes in my mom. Im grieving, worried and sometimes have long crying spells. I am deteriorating.

REPLY
Profile picture for januaryjane @januaryjane

Thanks for your reply. Does your insurance cover Vraylar since you dont have schizophrenia?
Im sorry about your mother. I think a major part of my depression right now are the changes in my mom. Im grieving, worried and sometimes have long crying spells. I am deteriorating.

Jump to this post

Yes. My insurance (CDPHP) covers Vraylar.
I’m very worried about you. I hope that you can find something or someone to help you stop this downward spiral.
I’m sorry about your Mom too.
I sometimes hate to admit it, but the truth is that what helped me most with my mother was finding an excellent memory care facility for her. I had to admit to myself that under my and my sister’s care, she was getting worse. She now has professional help 24/7 and the type of care that we could never give her.
I sometimes still feel guilty about not being able to care for her but taking that step was the best decision I ever made. And trust me, she absolutely did not want to go. Lots of crying and screaming and threats of no longer speaking to me. But you know what? She’s happier now. Truly. Calmer, more social and gaining a little weight. Her memory continues to deteriorate but not as fast as it was.
I don’t know where you live but I’m in Upstate New York and it’s starting to get dark a lot earlier here. I think this adversely affects my mood as I too have been feeling more depressed lately. My solution is to make more art and to participate more at my volunteer job.
Please hang on. It always somehow, some way, gets better.

REPLY
Profile picture for januaryjane @januaryjane

Ive been diagnosed with depression, anxiety, ptsd for over 20 years. I grew up with a lot of trauma and neglect. Ive never done ECT or the ketamine sprays, Im so afraid of them. Ive done a wide array of medications and therapy.
Im so lost right now, I can't seem to thrive, I am disabled because of it.
My mom is having cognitive decline so it's a lot of stress. We have a rocky relationship but she's still my mom.
We are not fighting as much which I like but I am so sad for her and feel helpless. I worry because my dad and brother dont.
So I feel stuck myself.

Not sure what to do when throwing meds at it isn't helping and therapy has me going nowhere right now.

There are very limited resources, no support groups, just AA. Im not sure how to find community, relearn to socialize and find a life for me again.

Should I try something else? Im at a loss

Jump to this post

P.S. JUST MY ADVICE
About ECT
DON’T DO IT

REPLY
Profile picture for januaryjane @januaryjane

Im in therapy. Just a lot of problems and burnout. I have trouble functioning a lot.

Jump to this post

same

REPLY
Profile picture for januaryjane @januaryjane

Ive been diagnosed with depression, anxiety, ptsd for over 20 years. I grew up with a lot of trauma and neglect. Ive never done ECT or the ketamine sprays, Im so afraid of them. Ive done a wide array of medications and therapy.
Im so lost right now, I can't seem to thrive, I am disabled because of it.
My mom is having cognitive decline so it's a lot of stress. We have a rocky relationship but she's still my mom.
We are not fighting as much which I like but I am so sad for her and feel helpless. I worry because my dad and brother dont.
So I feel stuck myself.

Not sure what to do when throwing meds at it isn't helping and therapy has me going nowhere right now.

There are very limited resources, no support groups, just AA. Im not sure how to find community, relearn to socialize and find a life for me again.

Should I try something else? Im at a loss

Jump to this post

There are support groups that are free. Just google “depression support groups” and a lot of things will pop up including NAMI (national alliance on mental health) connection click on that. You can find free support groups at the local, state level. A lot are online. There are others like Hey Peer as well. You just have to look. Best of luck.

REPLY
Profile picture for meryw @meryw

Yes. My insurance (CDPHP) covers Vraylar.
I’m very worried about you. I hope that you can find something or someone to help you stop this downward spiral.
I’m sorry about your Mom too.
I sometimes hate to admit it, but the truth is that what helped me most with my mother was finding an excellent memory care facility for her. I had to admit to myself that under my and my sister’s care, she was getting worse. She now has professional help 24/7 and the type of care that we could never give her.
I sometimes still feel guilty about not being able to care for her but taking that step was the best decision I ever made. And trust me, she absolutely did not want to go. Lots of crying and screaming and threats of no longer speaking to me. But you know what? She’s happier now. Truly. Calmer, more social and gaining a little weight. Her memory continues to deteriorate but not as fast as it was.
I don’t know where you live but I’m in Upstate New York and it’s starting to get dark a lot earlier here. I think this adversely affects my mood as I too have been feeling more depressed lately. My solution is to make more art and to participate more at my volunteer job.
Please hang on. It always somehow, some way, gets better.

Jump to this post

@meryw thank you so much for your reply! I really needed your kind words. Ive switched therapists and am looking for a support group regarding my mom. She is not bad enough yet to really take any action, so I do what I can but I have no say right now. Sorry about your mother.
I just didn't expect it to happen this soon, whatever it is. She just turned 70.

REPLY
Please sign in or register to post a reply.