Treatment resistant depression help.

Posted by melbourneaussie69 @melbourneaussie69, Dec 10, 2024

I was diagnosed with Interstitial Lung Disease in September 2020, as time went on, I was lucky enough to receive a lung transplant. I have also dealt with chronic back pain for over 25 years. After my experience in hospital, I was left with PTSD and panic attacks. I was seeing a Psychiatrist and taking Mirtazapine, this seemed to have a negative effect on my behaviour and mood so I stopped taking it. In a search for help I tried many avenues only to be met with constant recommendations to take anti-depressants. Eventually I disengaged with the Psychiatrist and began medicinal cannabis. This has to be done carefully as it clashes with Tacrolimus. I have found it to be beneficial but not a magic bullet. Am I alone in having suicidal ideations after having a transplant? I should be grateful for having a second chance, but I am not.

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Profile picture for januaryjane @januaryjane

Ive been diagnosed with depression, anxiety, ptsd for over 20 years. I grew up with a lot of trauma and neglect. Ive never done ECT or the ketamine sprays, Im so afraid of them. Ive done a wide array of medications and therapy.
Im so lost right now, I can't seem to thrive, I am disabled because of it.
My mom is having cognitive decline so it's a lot of stress. We have a rocky relationship but she's still my mom.
We are not fighting as much which I like but I am so sad for her and feel helpless. I worry because my dad and brother dont.
So I feel stuck myself.

Not sure what to do when throwing meds at it isn't helping and therapy has me going nowhere right now.

There are very limited resources, no support groups, just AA. Im not sure how to find community, relearn to socialize and find a life for me again.

Should I try something else? Im at a loss

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I feel very sorry for your situation, you suffer from depression for many years and like many others you have difficulty with getting the right help and medication. It’s truly sad that when a family member gets sick the help is not available, this is only adding to your mental health issues. If you could find someone where you get your help and ask them for advice or referrals to other facilities, even if you have to travel outside of your area, this is often the case for some people who don’t have access to enough resources, also you can use your computer to find connections to help you find what you need, I hope that helps a little, I know it’s all so overwhelming right now but I’m sure you’ll find something that works for you soon enough, best wishes to you.

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Profile picture for gravity3 @gravity3

I am sorry that you have had such a struggle finding treatments that work for you. I wonder, have you had a licensed therapist who had training and experience using EMDR? If not, I wonder if it might be useful for you.

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Yes I've done emdr

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Profile picture for januaryjane @januaryjane

Ive been diagnosed with depression, anxiety, ptsd for over 20 years. I grew up with a lot of trauma and neglect. Ive never done ECT or the ketamine sprays, Im so afraid of them. Ive done a wide array of medications and therapy.
Im so lost right now, I can't seem to thrive, I am disabled because of it.
My mom is having cognitive decline so it's a lot of stress. We have a rocky relationship but she's still my mom.
We are not fighting as much which I like but I am so sad for her and feel helpless. I worry because my dad and brother dont.
So I feel stuck myself.

Not sure what to do when throwing meds at it isn't helping and therapy has me going nowhere right now.

There are very limited resources, no support groups, just AA. Im not sure how to find community, relearn to socialize and find a life for me again.

Should I try something else? Im at a loss

Jump to this post

You might try Eventbrite. They have many types of support groups, both online and in person

REPLY
Profile picture for januaryjane @januaryjane

Ive been diagnosed with depression, anxiety, ptsd for over 20 years. I grew up with a lot of trauma and neglect. Ive never done ECT or the ketamine sprays, Im so afraid of them. Ive done a wide array of medications and therapy.
Im so lost right now, I can't seem to thrive, I am disabled because of it.
My mom is having cognitive decline so it's a lot of stress. We have a rocky relationship but she's still my mom.
We are not fighting as much which I like but I am so sad for her and feel helpless. I worry because my dad and brother dont.
So I feel stuck myself.

Not sure what to do when throwing meds at it isn't helping and therapy has me going nowhere right now.

There are very limited resources, no support groups, just AA. Im not sure how to find community, relearn to socialize and find a life for me again.

Should I try something else? Im at a loss

Jump to this post

I know there are pros and cons to gene testing and whether one's insurance will cover it or not. Is that something you can consider? It can possibly identify which class of anti-depressants may work and whether you need to supplement with L-methylfolate to help the anti-depressant cross the blood brain barrier. Also, is TMS offered in your area and covered by your insurance? All the best to you.

REPLY
Profile picture for januaryjane @januaryjane

Ive been diagnosed with depression, anxiety, ptsd for over 20 years. I grew up with a lot of trauma and neglect. Ive never done ECT or the ketamine sprays, Im so afraid of them. Ive done a wide array of medications and therapy.
Im so lost right now, I can't seem to thrive, I am disabled because of it.
My mom is having cognitive decline so it's a lot of stress. We have a rocky relationship but she's still my mom.
We are not fighting as much which I like but I am so sad for her and feel helpless. I worry because my dad and brother dont.
So I feel stuck myself.

Not sure what to do when throwing meds at it isn't helping and therapy has me going nowhere right now.

There are very limited resources, no support groups, just AA. Im not sure how to find community, relearn to socialize and find a life for me again.

Should I try something else? Im at a loss

Jump to this post

Many of us, regardless of political affiliation, are scared now. It’s important to figure out if you’re scared because you’re depressed or depressed because you’re scared. I’ve had to learn to go back into the (my) recent past to see if there is anything triggering my mood. Sometimes, it’s just sadness. Family has moved away, loss of job and friends, physical pain. Other times I am just depressed. It’s one of my diagnoses.
I’m fortunate in that I’ve been this way so long that I usually can tell the difference. That said, I can’t always control how I react to it.
AA might give you relief because there are people going thru the same things. Also, do you have access to any dual diagnosis groups? They may help with the back and forth us addicts feel.
I definitely would talk to a mental health professional, maybe even a forensic psychiatrist. (That’s how I was diagnosed around 25 years ago.)
Don’t accept that there isn’t anything more that can be done. You are your best - and sometimes only - advocate.
I don’t know what else to say except don’t give up. Every little step is huge.

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Profile picture for januaryjane @januaryjane

Ive been diagnosed with depression, anxiety, ptsd for over 20 years. I grew up with a lot of trauma and neglect. Ive never done ECT or the ketamine sprays, Im so afraid of them. Ive done a wide array of medications and therapy.
Im so lost right now, I can't seem to thrive, I am disabled because of it.
My mom is having cognitive decline so it's a lot of stress. We have a rocky relationship but she's still my mom.
We are not fighting as much which I like but I am so sad for her and feel helpless. I worry because my dad and brother dont.
So I feel stuck myself.

Not sure what to do when throwing meds at it isn't helping and therapy has me going nowhere right now.

There are very limited resources, no support groups, just AA. Im not sure how to find community, relearn to socialize and find a life for me again.

Should I try something else? Im at a loss

Jump to this post

I am very sorry for your distress. Is therapy an option?

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Profile picture for laura1970 @laura1970

You might try Eventbrite. They have many types of support groups, both online and in person

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Thanks, I'll look it up.

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Profile picture for kb2014 @kb2014

I am very sorry for your distress. Is therapy an option?

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Im in therapy. Just a lot of problems and burnout. I have trouble functioning a lot.

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Profile picture for ngk1 @ngk1

I know there are pros and cons to gene testing and whether one's insurance will cover it or not. Is that something you can consider? It can possibly identify which class of anti-depressants may work and whether you need to supplement with L-methylfolate to help the anti-depressant cross the blood brain barrier. Also, is TMS offered in your area and covered by your insurance? All the best to you.

Jump to this post

Ive done it once, a long time ago. Not sure it helped. Ive been on just about everything more than once. I haven't seen TMS offered. Thanks for the suggestions.

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Profile picture for januaryjane @januaryjane

Ive been diagnosed with depression, anxiety, ptsd for over 20 years. I grew up with a lot of trauma and neglect. Ive never done ECT or the ketamine sprays, Im so afraid of them. Ive done a wide array of medications and therapy.
Im so lost right now, I can't seem to thrive, I am disabled because of it.
My mom is having cognitive decline so it's a lot of stress. We have a rocky relationship but she's still my mom.
We are not fighting as much which I like but I am so sad for her and feel helpless. I worry because my dad and brother dont.
So I feel stuck myself.

Not sure what to do when throwing meds at it isn't helping and therapy has me going nowhere right now.

There are very limited resources, no support groups, just AA. Im not sure how to find community, relearn to socialize and find a life for me again.

Should I try something else? Im at a loss

Jump to this post

What about ETC?

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