Treatment experience for urothelial cancer with plasmcytoid variant

Hello @gs121 and welcome to Connect/Bladder Cancer. So sorry you are now included in this diagnosis, especially with such a rare variant. Perhaps someone with personal experience will step in and share their information.
My husband is a 6 year survivor of a highly aggressive muscle invasive urothelial cell carcinoma. He chose radical cystectomy after a couple years of unsuccessful treatments and many recurrences. He is satisfied with the neobladder surgery although he had many complications postop. He is currently cancer free.
Mt best recommendation is to seek care/second opinion at a large referral or cancer facility for the best options with a rare cancer. My head and neck cancer location was very rare and I have been lucky to be a patient of Mayo Clinic in Rochester MN for 14 years. We drive 10 hours from Ohio but my medical team is the best. I am so grateful. Are you comfortable with your current medical facility or have you considered a second opinion?

Thank you Sue. Glad to hear your husband is cancer free. My diagnosis is has been 7 days ago, and it this point the cancer is not fully staged. I do know it is a plasmacytoid variant ..not fully plasmacytoid but parts of it is what i was told. Your suggestion to seek/care 2nd opinion at a large cancer society is something i have to do. We got this diagnosis from my urologist. He supports getting a 2nd opinion. We live i Western North Carolina...and the big regional hospital near us is not known for Oncology. Thank you again this is helpful.