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Transplant waiting time with live donor

Posted by dhrubasen @dhrubasen, Jun 24, 2025

I am reading that with a live donor, everything (transplant etc) gets done in 3-5 months. I have a live donor - 8 months have passed but not a single test has been done with him - even just to check if his kidney is healthy enough to be donated. When he asks why - he is told that the transplant team waiting on some tests on me.

Sounds very poor management.

Can anyone throw light as to what is going on ?

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dhrubasen | @dhrubasen | Jun 27, 2025
In reply to @kzeiss "Thank you for your feedback. Will connect through private message function, Could you please review the..." + (show)
Profile picture for kzeiss @kzeiss

Thank you for your feedback. Will connect through private message function, Could you please review the best way to do this? I am very empathetic for everyone anxiously awaiting a kidney transplant. I thought that by sharing hospital information, we might be able to ascertain informed next steps if this seems to be a problem with one particular hospital. Hope to connect with this person and really hope we are both just facing fixable situations.

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I sent u a pvt message.
Check and revert

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dhrubasen | @dhrubasen | Aug 2, 2025

My live donor is waiting for more than 8 months - not a single test done. I am told that all MY tests need to complete before any test is started on the donor.

Not sure why - not even check if he has a healthy kidney to donate or even if his blood group is OK for me.

Anyone in this group has similar experience?

Thanks !!

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Ginger, Volunteer Mentor | @gingerw | Aug 2, 2025
In reply to @dhrubasen "My live donor is waiting for more than 8 months - not a single test done...." + (show)
Profile picture for dhrubasen @dhrubasen

My live donor is waiting for more than 8 months - not a single test done. I am told that all MY tests need to complete before any test is started on the donor.

Not sure why - not even check if he has a healthy kidney to donate or even if his blood group is OK for me.

Anyone in this group has similar experience?

Thanks !!

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@dhrubasen Have you contacted your transplant coordinator to find out what tests you may need to complete? Perhaps you have some other health issues they are also dealing with you? Personally, I would be so thankful my donor is being so patient, and staying healthy themselves! And then I would get ticked off at my transplant team, and push hard to get some answers!
Ginger

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