Tonmya is a game changer for me!

Posted by Beejenigma @beejenigma, Dec 26, 2025

Just got an RX for the new drug, Tonmya. It is amazing. My sleep has completely changed now. Used to have chronic insomnia. I would take arthritis strength tylenol, 300 mg gaba, 8 mg LDN, 10 mg THC and sometimes even .5 alpraz to go to sleep and I would still not get to sleep for 3 hours. I would frequently wake up around 3! Now I am sleeping within an hour and sleeping until 7 or 8 a.m.! See if you can get an RX for it. I don't know if this is going to last but it is great.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Profile picture for daisy17 @daisy17

@beejenigma If it works for you, that's great.

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@daisy17 It gave me mouth sores. Not using it anymore

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Profile picture for Beejenigma @beejenigma

@daisy17 It gave me mouth sores. Not using it anymore

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@beejenigma Tomnya gave you mouth sores? That's too bad. Did you ever try LDN low-dose naltrexone?

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Profile picture for ericamonique @ericamonique

@daisy17 My doctor prescribed Tonmya but the cost will be over $400/month. I'm on Medicare and a Regence (a supplemental insurance) and I was approved. Once I saw the cost I declined the prescription. I then asked for cyclobenzaprine but the doctor (not my regular doc) refused to prescribe it bc I'm 70 yo. I'm so disappointed! I was hoping to be able to fall asleep easily and have less fibro pain.

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My wife has had mild fibromyalgia most of her life, but never progressed until about 20 years ago. Now she suffers considerable from it. Approximately 15 years ago, a doctor prescribed Savella to her (she's now 74) and it worked great!! However, after several months of use (and total relief) the side effects abruptly hit her, shortness of breath, very elevated BP, and increased heart rate. After the 2nd time unfortunately she had to quit the medicine. It worked great, but side effects were, for her, too significant.
Now, since taking the covid shots (first 3, to keep her nursing license, then quit) she has developed severe migraines. Never had them until after the shots. The migraines are MUCH worse than the fibromyalgia.

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Profile picture for steve92 @steve92

My wife has had mild fibromyalgia most of her life, but never progressed until about 20 years ago. Now she suffers considerable from it. Approximately 15 years ago, a doctor prescribed Savella to her (she's now 74) and it worked great!! However, after several months of use (and total relief) the side effects abruptly hit her, shortness of breath, very elevated BP, and increased heart rate. After the 2nd time unfortunately she had to quit the medicine. It worked great, but side effects were, for her, too significant.
Now, since taking the covid shots (first 3, to keep her nursing license, then quit) she has developed severe migraines. Never had them until after the shots. The migraines are MUCH worse than the fibromyalgia.

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@steve92 Your wife should look into LDN, low-dose naltrexone, for her fibromyalgia, which can include headaches as one of the symptoms. There's lots of discussion about LDN on various discussion sites in this support group.

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Absolutely will tell her! Thank you!!

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Profile picture for steve92 @steve92

My wife has had mild fibromyalgia most of her life, but never progressed until about 20 years ago. Now she suffers considerable from it. Approximately 15 years ago, a doctor prescribed Savella to her (she's now 74) and it worked great!! However, after several months of use (and total relief) the side effects abruptly hit her, shortness of breath, very elevated BP, and increased heart rate. After the 2nd time unfortunately she had to quit the medicine. It worked great, but side effects were, for her, too significant.
Now, since taking the covid shots (first 3, to keep her nursing license, then quit) she has developed severe migraines. Never had them until after the shots. The migraines are MUCH worse than the fibromyalgia.

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@steve92 Medical cannabis works well

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Profile picture for daisy17 @daisy17

@beejenigma Tomnya gave you mouth sores? That's too bad. Did you ever try LDN low-dose naltrexone?

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@daisy17 Been on it for years now. I cannot tell whether it does any good or not but I do take it.

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Profile picture for daisy17 @daisy17

@steve92 Your wife should look into LDN, low-dose naltrexone, for her fibromyalgia, which can include headaches as one of the symptoms. There's lots of discussion about LDN on various discussion sites in this support group.

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@daisy17 thank you. My wife is a retired RN and I'll tell your recommendation and have her look it up.
Thanks agsin!

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Profile picture for steve92 @steve92

@daisy17 thank you. My wife is a retired RN and I'll tell your recommendation and have her look it up.
Thanks agsin!

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@steve92 There's many articles on-line about this, here is one: https://www.verywellhealth.com/low-dose-naltrexone-ldn-for-fibromyalgia-cfs-716070

I'd be happy to answer any questions your wife has about how LDN has helped me with my fibromyalgia symptoms.

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Profile picture for Beejenigma @beejenigma

@steve92 Medical cannabis works well

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@beejenigma Good to know! in which form? How much THC? I’ve tried a tincture and gummies and didn’t work at all.

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