Thoracic aortic aneurysm: Anyone had surgery?

Posted by jbsb93 @jbsb93, Jul 28, 2011

I was born with a hole in my heart and have had 2 surgeries. One to fix hole and the other a valve replacement. I've been recently told the I have a thoracic aneurysm and possibly will need more surgery.. Anyone gone th ru this before??

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

How do they determine the cause ? I had GCA (diagnosed via ultrasound) put on 60 mg pred (7 years ago) they have rechecked the ultrasound and found it had resolved. However, PMR has come visiting, and I've been on and off pred ever since. Previously, I had been fighting high blood pressure (trying natural suppliments ) finally put on a couple meds that made me cough like my lungs were comming out. Finally on verapamil that has me me pretty stable around normal pressure. The GCA was diagnosed just after that. My Rheumatologist wants to put me on kevzara as I can't seem to get off pred, so she did a ct and found my 4.6 assending aorta "dilation" along with 3.5 pulmonary trunk "dilation" no mention of the valves just this "Heart is normal in size. No coronary artery calcifications. No pericardial effusion." So would that hi res ct show valve trouble ? Or, how do they tell if you have those other syndromes?
I have other questions on hospitals / drs... that will be next.

REPLY
Profile picture for catherine25 @catherine25

I’m so happy to hear your success story! I have an Ascending Thoracic Aneurysm also. About 6 months ago it was 5.0cm. I have been thinking because I am 77 years old that I will not have surgery.

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I'm 79 and in good shape.
When I heard I'm having an 5,2 cm AAA in September 2024, I decided " oh no, I never will undergo such a major surgery".
But 6 month later the CD showed, it was 5,3 cm.
I had a consultation with my surgeon again. He explained everything to my husband and me so understandable, that I trusted him, EVERYTHING IS GOING TO BE OK.

Dr. XYDAS and his team are geniuses. If you see me now, 4 month later, I'm totally back to normal as before. I'm doing my exercises and daily work, like nothing has happened.

Wishing you the same.

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Profile picture for claudiafoeh @claudiafoeh

If you have to undergo surgery, read my success story. I'm more than greatful, how I recovered. Being back to normal 100%.

My Ascending Thoracic Aneurysm was 5,3 cm. I got surgery 4 month ago at Mount Sinai Hospital Miami Beach.
My excellent surgeon was Dr. Xydas.
I never had pain (except if I needed to caugh. Of course, I hugged myself).
Right after surgery, I got good pain killers, understandable. But they've been taken off after a week or so. Still no pain, a miracle to me.
All my organs kicked in again, right away in ICU, From there on, all my blood values were "excellent". I started Rehab the second day, a short distance walking, all went well.
8 days at the hospital room, and 8 days in inpatient Rehab at the same Mount Sinai Hospital.
I got a chair in my shower at home. So, I could independent shower and even washing my hair - avoiding stretching over head.
All I can say, I'm more than grateful, having back my life, without fear of the Aorta bursting. I couldn't even go on an airplane anymore.
I hope to help you, getting more inside, God bless you.
See my scar, almost invisible 4 weeks post surgery.

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Thank you for that encouraging story! I am 72 and recently found out I have a 4.7 AAA.
We are "watching" it and Im supposed to have regular screenings. I hope it stays the same and I never have to have the surgery, but if not I plan to fix it right away.
Blessings to you as you recover! ❤️

REPLY
Profile picture for claudiafoeh @claudiafoeh

If you have to undergo surgery, read my success story. I'm more than greatful, how I recovered. Being back to normal 100%.

My Ascending Thoracic Aneurysm was 5,3 cm. I got surgery 4 month ago at Mount Sinai Hospital Miami Beach.
My excellent surgeon was Dr. Xydas.
I never had pain (except if I needed to caugh. Of course, I hugged myself).
Right after surgery, I got good pain killers, understandable. But they've been taken off after a week or so. Still no pain, a miracle to me.
All my organs kicked in again, right away in ICU, From there on, all my blood values were "excellent". I started Rehab the second day, a short distance walking, all went well.
8 days at the hospital room, and 8 days in inpatient Rehab at the same Mount Sinai Hospital.
I got a chair in my shower at home. So, I could independent shower and even washing my hair - avoiding stretching over head.
All I can say, I'm more than grateful, having back my life, without fear of the Aorta bursting. I couldn't even go on an airplane anymore.
I hope to help you, getting more inside, God bless you.
See my scar, almost invisible 4 weeks post surgery.

Jump to this post

I’m so happy to hear your success story! I have an Ascending Thoracic Aneurysm also. About 6 months ago it was 5.0cm. I have been thinking because I am 77 years old that I will not have surgery.

REPLY
Profile picture for janagain @janagain

Correction, I said the aneurysm was noted 3yrs ago. And I've had the aneurysm since 2015. Geeze ... that's a long time.

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Well Doctor maybe you are Super-man

Thanks again!

REPLY
Profile picture for janagain @janagain

The stories I read on here are so interesting. It's a wonderful thing to have a place where we can relate and get a better understanding and support. I was dx with a ascending aortic aneurysm about 3 years ago. It started at 3.2 and was discovered when I had an MRI. Through the past few years it has enlarged to 4.5 and I have it monitored every 6 months. I attribute this to working to hard all my life at everything. I love working in my yard and have been known to work really hard and for quite some time so that it all look great. I paid a big price for that hard work. I was moving boulders, pushing and pulling a lawn mower, trimming trees and cutting up huge limbs, scooping up large mounds of dirt, pulling around heavy trash cans, building a fence around my garden and built a pergola for the sitting area. Why? because I really enjoyed making a plan, buying lumber, trees and flowers, bags of mulch etc. At the end of the day, I was worn out! I never at any time thought that I shouldn't be working so hard. I was well into my 50's when the aortic aneurysm was noted. Now, I'm 68yrs old and I've slowed down. I have osteoarthritis in my spine and scheduled to have laminectomy with cervical fusion. A thyroid nodule was just discovered after a routine chest x ray. I have changed my life style and adapted to a more sensible plan outside. Thank you moonboy for reminding me that I have a "heads up" on my health and I'm very grateful for that.
Best to all, Janagain

Jump to this post

If you have to undergo surgery, read my success story. I'm more than greatful, how I recovered. Being back to normal 100%.

My Ascending Thoracic Aneurysm was 5,3 cm. I got surgery 4 month ago at Mount Sinai Hospital Miami Beach.
My excellent surgeon was Dr. Xydas.
I never had pain (except if I needed to caugh. Of course, I hugged myself).
Right after surgery, I got good pain killers, understandable. But they've been taken off after a week or so. Still no pain, a miracle to me.
All my organs kicked in again, right away in ICU, From there on, all my blood values were "excellent". I started Rehab the second day, a short distance walking, all went well.
8 days at the hospital room, and 8 days in inpatient Rehab at the same Mount Sinai Hospital.
I got a chair in my shower at home. So, I could independent shower and even washing my hair - avoiding stretching over head.
All I can say, I'm more than grateful, having back my life, without fear of the Aorta bursting. I couldn't even go on an airplane anymore.
I hope to help you, getting more inside, God bless you.
See my scar, almost invisible 4 weeks post surgery.

REPLY
Profile picture for cajario @cajario

Very helpful, thank you so much
Your advise is very consolatory

Amen

Jump to this post

Correction, I said the aneurysm was noted 3yrs ago. And I've had the aneurysm since 2015. Geeze ... that's a long time.

REPLY
Profile picture for drmpicardi @drmpicardi

The important thing is to make sure it is within reach at surgery. I am 80yrs and in 2014 I had 3 A-V fistulas embolized in my brain with awake anesthesia. It was done at Mayo in Jacksonville and I was very scared also. They reached the area thru my groin and I had no pain. I was told they do a similar procedure for aneurysms. I did well and have enjoyed many years after.Now they even have more advanced equipment and technology so be at peace, it will go well. Make sure you are referred to a reputable medical center. Good luck, the Lord will be with you
Dr. Picardi

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Thank you Dr Picardy. I am listening.
God is great!

REPLY
Profile picture for moonboy @moonboy

Carry: You are not alone in how you feel. I remember those same fears—wishing someone could just look me in the eyes and tell me I would be OK. When I was 50, I had an aortic dissection in the middle of the night while on a work trip. It ripped open my aorta, and the doctors told me later that most people don’t survive. But here I am, nearly 10 years later. That night changed everything, and I know what it’s like to stare down your mortality.

You are still here. And the fact that they found the aneurysm by MRI means you have a head start. You’re not waiting for a disaster to happen in the dark—you are in the light, working with real information, with doctors who can help. August 28th might feel far away, but you have time. If anything changes before then, you go to the ER. But in the meantime, you breathe. You keep showing up. You are stronger than you know.

I also hear what you said about God's plan. If this were your time, you wouldn’t be reading this. But you are. That means there’s still work to do, people who need your voice, your stories, your light. From one survivor to another: You are going to be OK today. And tomorrow. And the day after that. One sunrise at a time. Peace.

Jump to this post

Very helpful, thank you so much
Your advise is very consolatory

Amen

REPLY

The stories I read on here are so interesting. It's a wonderful thing to have a place where we can relate and get a better understanding and support. I was dx with a ascending aortic aneurysm about 3 years ago. It started at 3.2 and was discovered when I had an MRI. Through the past few years it has enlarged to 4.5 and I have it monitored every 6 months. I attribute this to working to hard all my life at everything. I love working in my yard and have been known to work really hard and for quite some time so that it all look great. I paid a big price for that hard work. I was moving boulders, pushing and pulling a lawn mower, trimming trees and cutting up huge limbs, scooping up large mounds of dirt, pulling around heavy trash cans, building a fence around my garden and built a pergola for the sitting area. Why? because I really enjoyed making a plan, buying lumber, trees and flowers, bags of mulch etc. At the end of the day, I was worn out! I never at any time thought that I shouldn't be working so hard. I was well into my 50's when the aortic aneurysm was noted. Now, I'm 68yrs old and I've slowed down. I have osteoarthritis in my spine and scheduled to have laminectomy with cervical fusion. A thyroid nodule was just discovered after a routine chest x ray. I have changed my life style and adapted to a more sensible plan outside. Thank you moonboy for reminding me that I have a "heads up" on my health and I'm very grateful for that.
Best to all, Janagain

REPLY
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