Thoracic aortic aneurysm: Anyone had surgery?
I was born with a hole in my heart and have had 2 surgeries. One to fix hole and the other a valve replacement. I've been recently told the I have a thoracic aneurysm and possibly will need more surgery.. Anyone gone th ru this before??
Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.
How do they determine the cause ? I had GCA (diagnosed via ultrasound) put on 60 mg pred (7 years ago) they have rechecked the ultrasound and found it had resolved. However, PMR has come visiting, and I've been on and off pred ever since. Previously, I had been fighting high blood pressure (trying natural suppliments ) finally put on a couple meds that made me cough like my lungs were comming out. Finally on verapamil that has me me pretty stable around normal pressure. The GCA was diagnosed just after that. My Rheumatologist wants to put me on kevzara as I can't seem to get off pred, so she did a ct and found my 4.6 assending aorta "dilation" along with 3.5 pulmonary trunk "dilation" no mention of the valves just this "Heart is normal in size. No coronary artery calcifications. No pericardial effusion." So would that hi res ct show valve trouble ? Or, how do they tell if you have those other syndromes?
I have other questions on hospitals / drs... that will be next.
I'm 79 and in good shape.
When I heard I'm having an 5,2 cm AAA in September 2024, I decided " oh no, I never will undergo such a major surgery".
But 6 month later the CD showed, it was 5,3 cm.
I had a consultation with my surgeon again. He explained everything to my husband and me so understandable, that I trusted him, EVERYTHING IS GOING TO BE OK.
Dr. XYDAS and his team are geniuses. If you see me now, 4 month later, I'm totally back to normal as before. I'm doing my exercises and daily work, like nothing has happened.
Wishing you the same.
Thank you for that encouraging story! I am 72 and recently found out I have a 4.7 AAA.
We are "watching" it and Im supposed to have regular screenings. I hope it stays the same and I never have to have the surgery, but if not I plan to fix it right away.
Blessings to you as you recover! ❤️
I’m so happy to hear your success story! I have an Ascending Thoracic Aneurysm also. About 6 months ago it was 5.0cm. I have been thinking because I am 77 years old that I will not have surgery.
Well Doctor maybe you are Super-man
Thanks again!
If you have to undergo surgery, read my success story. I'm more than greatful, how I recovered. Being back to normal 100%.
My Ascending Thoracic Aneurysm was 5,3 cm. I got surgery 4 month ago at Mount Sinai Hospital Miami Beach.
My excellent surgeon was Dr. Xydas.
I never had pain (except if I needed to caugh. Of course, I hugged myself).
Right after surgery, I got good pain killers, understandable. But they've been taken off after a week or so. Still no pain, a miracle to me.
All my organs kicked in again, right away in ICU, From there on, all my blood values were "excellent". I started Rehab the second day, a short distance walking, all went well.
8 days at the hospital room, and 8 days in inpatient Rehab at the same Mount Sinai Hospital.
I got a chair in my shower at home. So, I could independent shower and even washing my hair - avoiding stretching over head.
All I can say, I'm more than grateful, having back my life, without fear of the Aorta bursting. I couldn't even go on an airplane anymore.
I hope to help you, getting more inside, God bless you.
See my scar, almost invisible 4 weeks post surgery.
Correction, I said the aneurysm was noted 3yrs ago. And I've had the aneurysm since 2015. Geeze ... that's a long time.
Thank you Dr Picardy. I am listening.
God is great!
Very helpful, thank you so much
Your advise is very consolatory
Amen
The stories I read on here are so interesting. It's a wonderful thing to have a place where we can relate and get a better understanding and support. I was dx with a ascending aortic aneurysm about 3 years ago. It started at 3.2 and was discovered when I had an MRI. Through the past few years it has enlarged to 4.5 and I have it monitored every 6 months. I attribute this to working to hard all my life at everything. I love working in my yard and have been known to work really hard and for quite some time so that it all look great. I paid a big price for that hard work. I was moving boulders, pushing and pulling a lawn mower, trimming trees and cutting up huge limbs, scooping up large mounds of dirt, pulling around heavy trash cans, building a fence around my garden and built a pergola for the sitting area. Why? because I really enjoyed making a plan, buying lumber, trees and flowers, bags of mulch etc. At the end of the day, I was worn out! I never at any time thought that I shouldn't be working so hard. I was well into my 50's when the aortic aneurysm was noted. Now, I'm 68yrs old and I've slowed down. I have osteoarthritis in my spine and scheduled to have laminectomy with cervical fusion. A thyroid nodule was just discovered after a routine chest x ray. I have changed my life style and adapted to a more sensible plan outside. Thank you moonboy for reminding me that I have a "heads up" on my health and I'm very grateful for that.
Best to all, Janagain