Third month of Camzyos my ef dropped to 30-35. At what point do they

Posted by rebaheizer @rebaheizer, Sep 25 9:56am

After three months of progress my recent echo shows a steep decline of EF On Camzyos. Monthly echoes continue and if I rebound they will put me on a smaller dose. At what point do they consider surgery?

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As long as my RF stays within normal range, my specialty cardiologist will continue me on Camzyy and no surgery.

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My HCM cardiologist initially gave me 3 choices, alcohol ablation, Camzyos or surgery. I was afraid of Camzyos because of the side effects. I had a cardiac cath, TEE and met with the cardiac surgeon and decided to go with the surgery. After these tests, they said I wasn’t a candidate for the alcohol ablation. I already have a pacemaker. My symptoms of SOB and dizziness get worse with high heat and humidity.

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Heat and humidity affect me so much. I can tell by my level of strength and breathing when I’m inside with a/c whether or not it’s hot or humid. Much more difficult to function outside. Long summer this year

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I have the same issue with heat and humidity.

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Profile picture for lakehappy @lakehappy

Heat and humidity affect me so much. I can tell by my level of strength and breathing when I’m inside with a/c whether or not it’s hot or humid. Much more difficult to function outside. Long summer this year

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@lakehappy
The Humidity wipes me out. I can not wait for winter! It has been a long summer in the south.

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