The Use of a Trilogy Machine

Posted by Errol, Volunteer Mentor @duvie, Mar 2, 2018

Hello Everyone, Pt diagnosed with COPD and congestive heart failure this time last year. Has been readmitted 1/19/18 to 1/31/18 out for about 2 weeks and admitted again for 4 days for shortness of breath and slight fever. Went to the PCP Tues. for follow-up and there was talk of placing her on a triolgy machine. She currently uses an oxygen cannula during the day and a Bipap at night.

My questions are;
1)…Is this almost the same as a Bipap?
2)…How is it different?
3)…Do they prescribe this for end stage COPD?
4)…Does the use of a Triolgy machine mean permanent use?
5)…What are the pros and cons of use?
6)…How do patients feel about use it?
7)…Any questions to ask the pulmonary Dr next Friday?

Any help is greatly appreciated.

@ethanmcconkey

Hi @sulaha143 I personally do not use the machine but from what I have understood in my research is that it works similar to a bipap machine. You can find some information on how bipap machines work in the study that I mentioned in my previous post.
Here's a link to that study: https://www.ncbi.nlm.nih.gov/pubmed/7697242

Also due to the research from @duvie as you can see above, the Trilogy machine has various benefits:
– It's portable
– Has the ability to be calibrated more exact than a bipap machine
– Adjust to your breathing
The full post containing this information is at this link, also note the post below it for more information: https://connect.mayoclinic.org/discussion/the-use-of-a-triolgy-machine/?pg=1#comment-95147

As for you, what information have you found? Also, you mentioned you have flare up way to often, how often are they?

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I was put on the Trilogy recently after using a CPAP for years. I was recently diagnosed with COPD with CO2 retention. I almost passed into the afterlife after having kidney failure and septic shock. After two hospital stays in 2 months I started using the Trilogy. I found it easy to adjust to vs. CPAP. Because it most resembles your normal breathing pattern. The machine eliminates the CO2 build up by venting thru the upper mask. I also use oxygen hooked to it at night. I this machine will keep me alive and out of the hospital. That is worth the cost alone. It is pricey but I was able to get multiple cost breaks. I highly recommend it and advocate for its use. Every pulmonary dr. Has praised its technology.

Thanks for the insight and recommendation. Greatly appreciated. Breathe easy!

My sister has been on the trilogy for almost two years now, as I'm writing this she is her last few hours of life. Her doctor have given her 6 months to live on at least 4 occasions. First started about 6 years ago. This machine has helped to keep her around far longer than anyone could have guessed. She is on 30lpm @90%. She has had to be on the trilogy or an airvo (which she use so she could eat). We have found this to be a wonderful machine. What we found when we were trying to get one is that they are very difficult to get for every day home use. You have to get them through a medical phacilialty. Nursing home, hospice or hospital. It is very much like a ventalor but is NON-invasive.

@bowens

My sister has been on the trilogy for almost two years now, as I'm writing this she is her last few hours of life. Her doctor have given her 6 months to live on at least 4 occasions. First started about 6 years ago. This machine has helped to keep her around far longer than anyone could have guessed. She is on 30lpm @90%. She has had to be on the trilogy or an airvo (which she use so she could eat). We have found this to be a wonderful machine. What we found when we were trying to get one is that they are very difficult to get for every day home use. You have to get them through a medical phacilialty. Nursing home, hospice or hospital. It is very much like a ventalor but is NON-invasive.

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Welcome to Connect, @bowens. Thank you for sharing your insights on the Trilogy Machine as you accompany your sister in her final hours. Are you in a hospice setting or at home with her?

@copdwontbeatme

I was put on the Trilogy recently after using a CPAP for years. I was recently diagnosed with COPD with CO2 retention. I almost passed into the afterlife after having kidney failure and septic shock. After two hospital stays in 2 months I started using the Trilogy. I found it easy to adjust to vs. CPAP. Because it most resembles your normal breathing pattern. The machine eliminates the CO2 build up by venting thru the upper mask. I also use oxygen hooked to it at night. I this machine will keep me alive and out of the hospital. That is worth the cost alone. It is pricey but I was able to get multiple cost breaks. I highly recommend it and advocate for its use. Every pulmonary dr. Has praised its technology.

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Wow

Liked by karenoc

I’m with the VA n I don’t know if they would approve of this

Do you know if it’s VA approved?

If I am doing fine on inhaler 2x/day and oxygen at night to sleep, is there any reason I should switch to the Trilogy machine…or is that the next step??

@cchristoph

If I am doing fine on inhaler 2x/day and oxygen at night to sleep, is there any reason I should switch to the Trilogy machine…or is that the next step??

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If it works don’t mess with it

@cchristoph

If I am doing fine on inhaler 2x/day and oxygen at night to sleep, is there any reason I should switch to the Trilogy machine…or is that the next step??

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I’ve heard good things bout trilogy

@bowens

My sister has been on the trilogy for almost two years now, as I'm writing this she is her last few hours of life. Her doctor have given her 6 months to live on at least 4 occasions. First started about 6 years ago. This machine has helped to keep her around far longer than anyone could have guessed. She is on 30lpm @90%. She has had to be on the trilogy or an airvo (which she use so she could eat). We have found this to be a wonderful machine. What we found when we were trying to get one is that they are very difficult to get for every day home use. You have to get them through a medical phacilialty. Nursing home, hospice or hospital. It is very much like a ventalor but is NON-invasive.

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I’m at a nursing home owed by the VA don’t know if they recognized or approved of that trilogy yet

@walkro9

I’m at a nursing home owed by the VA don’t know if they recognized or approved of that trilogy yet

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I’m trying to get n answer

@bowens

My sister has been on the trilogy for almost two years now, as I'm writing this she is her last few hours of life. Her doctor have given her 6 months to live on at least 4 occasions. First started about 6 years ago. This machine has helped to keep her around far longer than anyone could have guessed. She is on 30lpm @90%. She has had to be on the trilogy or an airvo (which she use so she could eat). We have found this to be a wonderful machine. What we found when we were trying to get one is that they are very difficult to get for every day home use. You have to get them through a medical phacilialty. Nursing home, hospice or hospital. It is very much like a ventalor but is NON-invasive.

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Bowens, I hope you and your family are well. Thank you for sharing your sister’s experience. My mom has just been prescribed trilogy. Her health was very dire so we have been so hopeful for this “new” treatment plan.

This is the best machine for copd patients ive been on it for 2 yrs almost 3 and it keeps me out of the hospital.I was on life support last April for 9 days im truly blessed to be here Stage 3 C O P D The trilogy cleans carbon monixcide out of your system and if your short of breath it will help catch you back up.If you can get one need to get it Medicare covers the whole bill on it

I can't seem to locate it but I received a comment about Trilogy machines being covered 100$ by Medicare. Any truth to that?

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