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The caring doesn't stop
How do u deal with knowing you will die a carer?? I have cared for family for decades, mum /dad/brother all of whom are gone now. It leaves daughter with her disabilities. Now at 65 I am starting to have my own health issues. I am angry that I have done so much for so many ( not just family) and now I need help there is none. I am worn out beyond lack of sleep or changing my diet.
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It would be good to see a list of steps to take to find a caregiver. A social worker in your health care facility may be a place to start. Maybe there's a questionnaire to fill out explaining your situation and health issues.
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5 ReactionsI heard about a group called Seniors Helping Senior last week, you may want to look into that. I have not personally used them, but will when I get to that point. My husband was diagnosed with glioblastoma in the spring.
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3 ReactionsIs there any reason you can’t end your caregiving role? I might explore how to get your daughter the care she needs from other sources. I’m in the process of doing that now for my mom. I’ve chosen to reclaim my life.
In Australia it is hard enough to get help for the severely disabled so for a higher functioning like my daughter it doesnt exist. Our politicians have the attitude " you do for family" they dont consider we dont all have extended family and we dont live forever
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