Thank you!
This note is to the most kind person who responded to my aneurysm repair question for those over the age of 68. Thank you!
After questioning an increasing number on my echo two years ago, I was told that it was an ascending aortic aneurysm. My cardiologist here told me I would be OK "as long as it didn't burst like John Ritter". I felt numb and confused when I left his office with no information as to what happens next. After arriving home that day, I phoned a retired cardiac nurse acquaintance (75 yrs. old) who told me that she would not have the surgery and to just get my "life affairs in order". Maybe you can imagine how I felt at that point in time. I was only 66.
After the whole encounter settled down a bit in my mind, I went on a quest to learn and find help if possible which lead me to a doc at Mayo with whom I have opened correspondence and sent records. This process took months of research at different hospitals across the country as medical institutions do not readily identify their best surgeons or post outcome stats. The docs here said to forget about going to a large hospital because they would only put me through a lot of tests. I did not agree and have since seen some of the local stats. Consequently, I feel that I am on the right course by turning to Mayo.
My husband (75 yrs. old) has been a great support to me and in that I am very lucky. We have no children or close family members, but do have many good friends who are scattered across the US and Europe. There is no great local support regarding this medical issue, not even a local Mended Hearts Society. Thinking about possible medical complications after such a surgery, we are contemplating moving closer to Mayo. So, next week we will make our first visit to Rochester just to become acquainted a bit with the surroundings and people. I have been reading a lot about Mayo's history on their website as there are some lovely movies, videos, and books to be found. But what impressed me most was their values. I only wish that it would be possible to connect with someone in Rochester or even a Mended Hearts Society member to feel more at home this coming week and in the future.
Thank you for listening.
Sincerely,
Deby
Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.
I had my triple A repair at Abbott in the cities. I was 70. My Dr.was Sullivan. Excellent Dr. I am just fine the operation was a success. Get the repair..
Thank you for your hopeful message!
Mayo is the number one hospital for heart and heart problems. Unless you really want to move to Rochester, your surgery will be over and you will go home in a week or so. Rehab can be done in your home town. Then most of the follow up can be done by your doctor at home directed by Mayo. I now have one CT scan a year that is sent to Mayo plus periodic blood tests the doctors at Mayo prescribe. Surgery was May, 2016. My feeling and it is only that, by having surgery at Mayo, there is little chance of complications. As you leave the hospital, you should be able to do most anything for which you have energy. I was able to walk easily, prepare meals etc- just rest a lot and don’t overdo. Again, good luck to you!
I too have an ascending aortic aneurysm only discovered eight months ago and growing. Since I am 95, I am most concerned, but if there is a chance
I shall certainly go to Mayo Clinic. Please do go to Mayo for your surgery.
Dear Carol,
Thank you for your kind post to me. I shall remember your words and go to Mayo for surgery when it is indicated.
For you, do you have an advocate to help you get to Mayo for an evaluation? I live far away from MN at the moment or I would take you there myself. Everyone needs someone else to help. Do not put it off as this is the time to travel...summer & good weather. Perhaps there is an easier solution to help you than a large surgery. They will know and point you in the right direction.
Please keep me posted as to how you are doing. All the best of luck to you.
Sincerely,
Deby
Thank you so much for this wonderful advice. It gives me a better understanding of everything.
It is so nice to know more about what to expect.