terrible pain 2yrs after TKR

Posted by sprinrosa64 @sprinrosa64, Feb 16, 2021

Checking to see if anyone has used Desensitization Therapy, due to possible CRPS or Biofeedback to help with pain after TKR .

Interested in more discussions like this? Go to the Joint Replacements group.

@sprinrosa64 Two years is a long time to have knee pain. Did your provider suggest desensitization therapy or biofeedback possible complex regional pain syndrome?

Members like @auxiliary @mr11344 @janete718 @irol @janete718 @acamel @golfshrink @wildebjef @buickturboman have recently discussed TKR and may be able to help answer your question.

May I ask what different kinds of therapy and/or treatments you have tried?

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Erika,yes 2yrs 4mons is way to long. I am 64yr old male , fit and active , or I was before. Since my surgery I have had months and months of PT but never desensitization, never told about it. Instead I have had 8 different nerve block shots, nerves cut and a revision and Stemwave PNS , all with no good results. I believe I was missed handled from the very start, so now on my own I am looking into desensitization and biofeedback. Hope it not to late if it's CRPS . Any direction would be great, I am just looking to be able to walk without pain in the 8 to 9 range

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2 year post op pain

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@bestfriend2

2 year post op pain

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I am 2 yrs post op TNR. I have a lot of pain, feeling of tightness and hyperextention. No swelling, great flexion and extension. I am regretting surgery. Anyone else have problems so long after?

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@bestfriend2

I am 2 yrs post op TNR. I have a lot of pain, feeling of tightness and hyperextention. No swelling, great flexion and extension. I am regretting surgery. Anyone else have problems so long after?

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Hi @bestfriend2 and welcome to Mayo Clinic Connect. You will see that I moved your post to a discussion about pain after a TKR. I did this to introduce you to @sprinrosa64 who has had a rough time after his TKR.

You may also want to read these discussions as well:
How well is pain controlled after total knee replacement?:
https://connect.mayoclinic.org/discussion/how-well-is-pain-controlled-after-total-knee-replacement/
The Rehabilitation Process for a TKR:
https://connect.mayoclinic.org/discussion/the-rehabilitation-process-for-a-tkr/
Have you consulted with the surgeon or your general practitioner?

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@amandaa

Hi @bestfriend2 and welcome to Mayo Clinic Connect. You will see that I moved your post to a discussion about pain after a TKR. I did this to introduce you to @sprinrosa64 who has had a rough time after his TKR.

You may also want to read these discussions as well:
How well is pain controlled after total knee replacement?:
https://connect.mayoclinic.org/discussion/how-well-is-pain-controlled-after-total-knee-replacement/
The Rehabilitation Process for a TKR:
https://connect.mayoclinic.org/discussion/the-rehabilitation-process-for-a-tkr/
Have you consulted with the surgeon or your general practitioner?

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The surgeon basically says I have to live with it. Second opinion suggests another surgery. No one seems to know what the problem is.

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@erikas

@sprinrosa64 Two years is a long time to have knee pain. Did your provider suggest desensitization therapy or biofeedback possible complex regional pain syndrome?

Members like @auxiliary @mr11344 @janete718 @irol @janete718 @acamel @golfshrink @wildebjef @buickturboman have recently discussed TKR and may be able to help answer your question.

May I ask what different kinds of therapy and/or treatments you have tried?

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I have tried acupuncture, PT, cryotherapy, light laser therapy. I did see a website for curablehealth which I will look into. Basically biofeedback I think. I am SO frustrated.

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Hello @bestfriend2 , our stories are very similar, Iam just over 3yrs post op. My pain is a 8-9 every day since surgery Oct. 2018 , lucky for me it is only painful when I put weight on my leg, so I can get out of pain by sitting down, I QUESS THAT;S LUCKY. Trying to keep this short , I have tried 17 different procedures over 3yrs, shots – cut nerves – revision – acupuncture- any therapy- PNS and DRG and nothing was worked. I did find some peace of mind thru biofeedback attention training. Well my journey has taken me to UPENN PAIN CENTER, where I met with their top doctor who told me he believes I have tried every procedure there is so he was suggested trying to find the right drug cocktail that MAY help calm nerves down. He said right up front it may take 2yrs to find the right combo , IF WE FIND IT AT ALL. This sounds terrible but I found his honesty refreshing. He also wanted me to see their pain pyschologist, which I did just yesterday. He liked the way I have been dealing with this , by finding what makes me happy or feel good and doing it. I keep a routine and do what I am able, I can't walk a step without pain so I ride a bike, I swim, all this with some pain but not like walking. I am going to try walking 5 steps then 10 steps, thinking of good things not about the pain. Since there seems to be no answer to why or how to stop the pain I WILL FIND MY WAY AROUND IT BE DOING WHAT I CAN AND ENJOY THAT. I was at one point wishing to end my life to stop the pain but there is a lot of beautiful things in life and I am going to enjoy every bit of it. THIS PAIN IS NOT WHO I AM . LOOK OUTSIDE AND SMILE . I really hope you find your way , keep the faith and enjoy what you can . Best of luck STEVE

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I can concur with your experience. I’ve tried everything and no one can put a diagnosis to it. The last procedure which was a nerve block in the spine seems now to have moved some of the symptoms to the other foot as well…puts me off having anything else done… depressing but as you say… need to get our heads above that and concentrate on what we can do. I had some relief from a session with anScarwork therapist, seemed to give relief but didn’t last…expensive, but worth a treat when I can.

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@sprinrosa64

Hello @bestfriend2 , our stories are very similar, Iam just over 3yrs post op. My pain is a 8-9 every day since surgery Oct. 2018 , lucky for me it is only painful when I put weight on my leg, so I can get out of pain by sitting down, I QUESS THAT;S LUCKY. Trying to keep this short , I have tried 17 different procedures over 3yrs, shots – cut nerves – revision – acupuncture- any therapy- PNS and DRG and nothing was worked. I did find some peace of mind thru biofeedback attention training. Well my journey has taken me to UPENN PAIN CENTER, where I met with their top doctor who told me he believes I have tried every procedure there is so he was suggested trying to find the right drug cocktail that MAY help calm nerves down. He said right up front it may take 2yrs to find the right combo , IF WE FIND IT AT ALL. This sounds terrible but I found his honesty refreshing. He also wanted me to see their pain pyschologist, which I did just yesterday. He liked the way I have been dealing with this , by finding what makes me happy or feel good and doing it. I keep a routine and do what I am able, I can't walk a step without pain so I ride a bike, I swim, all this with some pain but not like walking. I am going to try walking 5 steps then 10 steps, thinking of good things not about the pain. Since there seems to be no answer to why or how to stop the pain I WILL FIND MY WAY AROUND IT BE DOING WHAT I CAN AND ENJOY THAT. I was at one point wishing to end my life to stop the pain but there is a lot of beautiful things in life and I am going to enjoy every bit of it. THIS PAIN IS NOT WHO I AM . LOOK OUTSIDE AND SMILE . I really hope you find your way , keep the faith and enjoy what you can . Best of luck STEVE

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I feel so badly you are going through all that. I can at least walk for a short time. Hope things work out for you.

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@suewilliamaon

I can concur with your experience. I’ve tried everything and no one can put a diagnosis to it. The last procedure which was a nerve block in the spine seems now to have moved some of the symptoms to the other foot as well…puts me off having anything else done… depressing but as you say… need to get our heads above that and concentrate on what we can do. I had some relief from a session with anScarwork therapist, seemed to give relief but didn’t last…expensive, but worth a treat when I can.

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It's a shame we have to go through all of this. Unfortunately the knee problems contribute to the back problems. I wish you luck.

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@bestfriend2

I am 2 yrs post op TNR. I have a lot of pain, feeling of tightness and hyperextention. No swelling, great flexion and extension. I am regretting surgery. Anyone else have problems so long after?

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I also have pain and tightness in total knee
almost 3 years post op. Flexion okay, walk
a few miles a day, but am continually in pain. Dr. said,"Try Acupuncture."

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