terrible pain 2yrs after TKR

Posted by sprinrosa64 @sprinrosa64, Feb 16, 2021

Checking to see if anyone has used Desensitization Therapy, due to possible CRPS or Biofeedback to help with pain after TKR .

Interested in more discussions like this? Go to the Joint Replacements group.

@suewilliamaon

I can concur with your experience. I’ve tried everything and no one can put a diagnosis to it. The last procedure which was a nerve block in the spine seems now to have moved some of the symptoms to the other foot as well…puts me off having anything else done… depressing but as you say… need to get our heads above that and concentrate on what we can do. I had some relief from a session with anScarwork therapist, seemed to give relief but didn’t last…expensive, but worth a treat when I can.

Jump to this post

It's a shame we have to go through all of this. Unfortunately the knee problems contribute to the back problems. I wish you luck.

REPLY
@bestfriend2

I am 2 yrs post op TNR. I have a lot of pain, feeling of tightness and hyperextention. No swelling, great flexion and extension. I am regretting surgery. Anyone else have problems so long after?

Jump to this post

I also have pain and tightness in total knee
almost 3 years post op. Flexion okay, walk
a few miles a day, but am continually in pain. Dr. said,"Try Acupuncture."

REPLY

I am now more than 3yrs post -op and can't walk one step without real pain , I have tried everything with no good results. So it comes down to how do I live with this, well a wonderful doctor at UPENN PAIN CENTER was me reading ' MANAGING PAIN BEFORE IT MANAGES YOU' by Dr. Margaret Caudill ,well I am just getting into it and this book really seems to have some very positive ideas. I started reading it and thought it was written with me in mind. If you are looking for some answers about living with pain please give this a look. Now I am not going to stop searching for someone to get me out of this pain but to get me through each day I see some real help in these pages . BEST OF LUCK TO ALL Steve

REPLY

my tkr was 14-months ago. Because it made my leg 1 1/2 longer, my hips and pelvis, spine is getting messed up. I am so much pain.. I went to pain management and he told what kind of insert to put in my shoe, it has been 5-days, now I'm in more pain, can't even sleep at night.. I cry myself to sleep

REPLY

I had A TKR A year and a half ago and still have pain every day and my knee down to my foot stays swollen 24/7 and ibuprofen and all that does not touch the pain Andy doctor says everything looks fine on my xrays and I tell him something is not right. I went to get second opinion and that surgeon said he doesn't go behind other surgeons, I don't know what else to do but I'm so tired of this pain everyday

REPLY
@gertrudes

I had A TKR A year and a half ago and still have pain every day and my knee down to my foot stays swollen 24/7 and ibuprofen and all that does not touch the pain Andy doctor says everything looks fine on my xrays and I tell him something is not right. I went to get second opinion and that surgeon said he doesn't go behind other surgeons, I don't know what else to do but I'm so tired of this pain everyday

Jump to this post

Good morning @gertrudes. I am so sorry that you are still having pain after what appeared to be a successful TKR. Thanks for joining Connect. Our mission is to share our experiences so that others can benefit and then go on to help others.

I have had two TKRs. The first one did leave me with bouts of swelling and pain even 3-5 years after the surgery. The Mako robotic surgery last year has been much better. I think the technology today offers more accuracy and less involvement of elements surrounding the surgery area.

I have a couple of questions. Did you do pre-surgery exercises to strengthen your muscles, ligaments, and other tissue? Did you have immediate PT help post-surgery? Mine began the day after surgery and was coordinated with my MFR therapist for handling swelling and pain. I do have to say that I cannot tell I had surgery one year ago and my knee feels like my very own.

MFR, myofascial release therapy, can remove the restrictions in the fascia around the surgery area. The therapist can also move the swelling fluid up and into your pubic area so that it is removed when you urinate. Have you heard of MFR? Here is an introduction to @jenniferhunter. She is our resident expert for MFR and can further explain what happens within your body.

In the meantime, you may also find a Yoga pose called "legs up the wall" to provide some relief. Just google it as there are lots of sites on youtube and the internet. I do this every day during my morning Yoga routine.

After your surgery, did you elevate and ice your knee? That also can help.

May you be safe, protected, and free of inner and outer harm.
Chris

REPLY
@gertrudes

I had A TKR A year and a half ago and still have pain every day and my knee down to my foot stays swollen 24/7 and ibuprofen and all that does not touch the pain Andy doctor says everything looks fine on my xrays and I tell him something is not right. I went to get second opinion and that surgeon said he doesn't go behind other surgeons, I don't know what else to do but I'm so tired of this pain everyday

Jump to this post

@gertrudes adding my welcome to Chris'. I want to share with you that I moved your post here: terrible pain 2yrs after TKR
https://connect.mayoclinic.org/discussion/terrible-pain-2yrs-after-tkr-1/?pg=2#comment-738737
so that I could introduce you to members having similar issues like @sarahleemoore62 and @sprinrosa64

A year and a half if is a significant amount of time, have you sought out any other opinions besides the second?

REPLY
@artscaping

Good morning @gertrudes. I am so sorry that you are still having pain after what appeared to be a successful TKR. Thanks for joining Connect. Our mission is to share our experiences so that others can benefit and then go on to help others.

I have had two TKRs. The first one did leave me with bouts of swelling and pain even 3-5 years after the surgery. The Mako robotic surgery last year has been much better. I think the technology today offers more accuracy and less involvement of elements surrounding the surgery area.

I have a couple of questions. Did you do pre-surgery exercises to strengthen your muscles, ligaments, and other tissue? Did you have immediate PT help post-surgery? Mine began the day after surgery and was coordinated with my MFR therapist for handling swelling and pain. I do have to say that I cannot tell I had surgery one year ago and my knee feels like my very own.

MFR, myofascial release therapy, can remove the restrictions in the fascia around the surgery area. The therapist can also move the swelling fluid up and into your pubic area so that it is removed when you urinate. Have you heard of MFR? Here is an introduction to @jenniferhunter. She is our resident expert for MFR and can further explain what happens within your body.

In the meantime, you may also find a Yoga pose called "legs up the wall" to provide some relief. Just google it as there are lots of sites on youtube and the internet. I do this every day during my morning Yoga routine.

After your surgery, did you elevate and ice your knee? That also can help.

May you be safe, protected, and free of inner and outer harm.
Chris

Jump to this post

Yes my surgery was same day surgery and I had a nurse and therapy for 2 weeks at home then outpatient and even went in for a second procedure after 6 week check up because he didn't like my ROM but it's still hasn't changed, my ROM is only about 80 and I can't straighten it all the way either, I've iced it and elevated it also

REPLY
@gertrudes

Yes my surgery was same day surgery and I had a nurse and therapy for 2 weeks at home then outpatient and even went in for a second procedure after 6 week check up because he didn't like my ROM but it's still hasn't changed, my ROM is only about 80 and I can't straighten it all the way either, I've iced it and elevated it also

Jump to this post

Hi Gertrude,

I've had two TKRs this year, both with the Mako robotic assistant, and both went well. My ROM is 130 degrees in both knees with 0 degrees of extension. I'm a 67 y/o male.

It sounds like you may have a buildup of scar tissue in the knee, keeping the knee tight and in pain. Now with that said, 1) I'm not a doctor and 2) you may have already looked into this.

Scar tissue would form if you didn't do all the stretching exercises immediately after surgery, or possibly if you didn't do enough. I'm not suggesting that's what happened, just sharing what I've been told.

Have you discussed this or a revision surgery with your doctor? Best of luck to you.

Joe

REPLY

Hi. I had TKR in 3/20. I went 20 months in pain, swelling and hot yo touch knee. I went to pt, etc. I went to chiropractor , etc. Nothing helped. I went to 4 other surgeons for help. 2 actually tried to remove fluid from my swollen knee and pulled out full syringes of blood. This actually helped but the sac filled back quickly! Suggested redo of surgery(NOT A CHANCE)
Finally the 4th surgeon asked if I had any allergies- which I had no known. He sent me to test for allergies! Surprise!! I am very allergic to the cement they use. Allergist suggest daily antihistamine. I now take a Claritin every morning. Wonderful!!! Totally pain free and mobile. Climbed Manchu Picchu in May!!!
Keep asking doctors and good luck.

REPLY
Please sign in or register to post a reply.