1. < Polymyalgia Rheumatica (PMR)

Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Posted by charann2000 @charann2000, Apr 25, 2018

Anyone out there who has been diagnosed with Temperol Arteritis (Giant Cell Arteritis). I am undergoing testing and most likely have it. Would like to know how anyone is doing with it and what type of medications they use and any side effects, etc.

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tinkerbell | @tinkerbell | May 31, 2018
In reply to @654321 "Has anyone remissions become active again? My sed rate and crp are high again? Currently on..." + (show)
@654321

Has anyone remissions become active again? My sed rate and crp are high again? Currently on 7 mg of predizone .

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@654321 - How much Prednisone are you taking now.

REPLY
tinkerbell | @tinkerbell | May 31, 2018
In reply to @654321 "Has anyone remissions become active again? My sed rate and crp are high again? Currently on..." + (show)
@654321

Has anyone remissions become active again? My sed rate and crp are high again? Currently on 7 mg of predizone .

Jump to this post

@MLeeB - I like what you call the Prednisone. I am at 5mg and the swelling in my face is going down but still have my extra 12 lbs. I can’t wait to get off of this drug. I must say it sure helped while raking our 5 acres after Erma. We have 180 oak trees and just finished cleaning up last week. Now we are back in hurricane season. The next one might kill me from all of the clean up.

REPLY
charann2000 | @charann2000 | May 31, 2018
In reply to @charann2000 "Just wanted to let everyone know that I have not dropped the face of the earth..." + (show)
@charann2000

Just wanted to let everyone know that I have not dropped the face of the earth yet....I have what appears to be a remission of symptoms for the past eight days with no treatment....I am enjoying being pain free for the time being but am wondering to myself if anyone else has experienced such an occurrence?
I am still going to see my Eyes, Ears, Nose and Throat Specialist this coming Tuesday and have an appointment with a different RA Specialist for August 22nd (the earliest I could get in to see this one). So will look forward to discussing this remission of symptoms. and request for an extensive eye exam and temporal artery biopsy....I don't know if this ever goes away completely on it's own. I also realized that I had a treatment of AMOX-CLAV 875-125 MG for TABLET (a strong antibiotic which I never had before) for ten days just one week or two prior to the onset of the initial symptoms back during the end of January and the beginning of February and wonder if this could have been the trigger for my Temporal Arteritis then and if it may be weaning out of my system finally? Lots of questions, but so thankful right now for the let up of symptoms presently.

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Thanks....sorry that I did not have anything to say for a while but all was relatively calm until one week ago when I gashed my leg into the side of the fireplace hearth and had to have 12 sutures sewn into it at the ER. But aside from that Tinkerbell, have you ever heard of Temporal Arteritis going into remission or just disappearing on its own for about 8 or 10 days now without taking anything whatsoever?

REPLY
654321 | @654321 | May 31, 2018
In reply to @654321 "Has anyone remissions become active again? My sed rate and crp are high again? Currently on..." + (show)
@654321

Has anyone remissions become active again? My sed rate and crp are high again? Currently on 7 mg of predizone .

Jump to this post

7mg daily

REPLY
tinkerbell | @tinkerbell | May 31, 2018
In reply to @654321 "Has anyone remissions become active again? My sed rate and crp are high again? Currently on..." + (show)
@654321

Has anyone remissions become active again? My sed rate and crp are high again? Currently on 7 mg of predizone .

Jump to this post

@654321 - When I was diagnosed with GCA my Sed Rate was 38 and they started me on 60 mg of Prednisone. That seems to be a low amount but if it works that is great. I hope you can get your numbers down.

REPLY
tinkerbell | @tinkerbell | May 31, 2018
In reply to @charann2000 "Just wanted to let everyone know that I have not dropped the face of the earth..." + (show)
@charann2000

Just wanted to let everyone know that I have not dropped the face of the earth yet....I have what appears to be a remission of symptoms for the past eight days with no treatment....I am enjoying being pain free for the time being but am wondering to myself if anyone else has experienced such an occurrence?
I am still going to see my Eyes, Ears, Nose and Throat Specialist this coming Tuesday and have an appointment with a different RA Specialist for August 22nd (the earliest I could get in to see this one). So will look forward to discussing this remission of symptoms. and request for an extensive eye exam and temporal artery biopsy....I don't know if this ever goes away completely on it's own. I also realized that I had a treatment of AMOX-CLAV 875-125 MG for TABLET (a strong antibiotic which I never had before) for ten days just one week or two prior to the onset of the initial symptoms back during the end of January and the beginning of February and wonder if this could have been the trigger for my Temporal Arteritis then and if it may be weaning out of my system finally? Lots of questions, but so thankful right now for the let up of symptoms presently.

Jump to this post

@charann2000 - I have not heard of anything like that. Sorry to hear about your leg and stitches. It would be so wonderful if you don’t have GCA. Not a disease that any of us want. It would be interesting to see what your Sed Rate is now. Hopefully, it will be way down. Keep us posted.

REPLY
Texas Freedom | @oregongirl | Jun 1, 2018
In reply to @oregongirl "I am being treated at University of Texas medical..I have RA and crushed a Vertibra. I..." + (show)
@oregongirl

I am being treated at University of Texas medical..I have RA and crushed
a Vertibra. I just went 2 wks thing I was cured. No pain at all. Then today reality hit

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I fell flat on my back. I heard the break. It was awful.

REPLY
Texas Freedom | @oregongirl | Jun 1, 2018
In reply to @charann2000 "Just wanted to let everyone know that I have not dropped the face of the earth..." + (show)
@charann2000

Just wanted to let everyone know that I have not dropped the face of the earth yet....I have what appears to be a remission of symptoms for the past eight days with no treatment....I am enjoying being pain free for the time being but am wondering to myself if anyone else has experienced such an occurrence?
I am still going to see my Eyes, Ears, Nose and Throat Specialist this coming Tuesday and have an appointment with a different RA Specialist for August 22nd (the earliest I could get in to see this one). So will look forward to discussing this remission of symptoms. and request for an extensive eye exam and temporal artery biopsy....I don't know if this ever goes away completely on it's own. I also realized that I had a treatment of AMOX-CLAV 875-125 MG for TABLET (a strong antibiotic which I never had before) for ten days just one week or two prior to the onset of the initial symptoms back during the end of January and the beginning of February and wonder if this could have been the trigger for my Temporal Arteritis then and if it may be weaning out of my system finally? Lots of questions, but so thankful right now for the let up of symptoms presently.

Jump to this post

I just went thru same thing. No pain for alst three weeks. No change in meds. I had a terrible fall direct on my back. I am happy for no pain. BUT, yesterdayit all came back. Now my back pain is park of it. My back Dr said I could take tylonol and ibuprofen at same time

REPLY
peach414144 | @peach414144 | Jun 1, 2018
In reply to @654321 "Has anyone remissions become active again? My sed rate and crp are high again? Currently on..." + (show)
@654321

Has anyone remissions become active again? My sed rate and crp are high again? Currently on 7 mg of predizone .

Jump to this post

@ DearTinkerbell, what kind of a doctor treats temperal arteritis? Perhaps a neurologist? Peach414144

REPLY
tinkerbell | @tinkerbell | Jun 1, 2018
In reply to @654321 "Has anyone remissions become active again? My sed rate and crp are high again? Currently on..." + (show)
@654321

Has anyone remissions become active again? My sed rate and crp are high again? Currently on 7 mg of predizone .

Jump to this post

@peach414144 - Peach I was diagnosed in the Emergency Room at Mayo Clinic in Jacksonville, Florida. The doctor that diagnosed me was a resident in Neurology. She has been following me since May 2017. I am seen every 3 months and I meet with the resident first and then one of the Neurologist in the Department.

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