Taking probiotics after liver transplant

Posted by garyandrade @garyandrade, Jun 19, 2019

Does anyone have any experience taking probiotics after having a liver transplant. I am almost 4 years post transplant and would like to enhance my gut health and over all health if possible. I currently take tacrolimus and cellcept and wondering if it would be a waste of money or a possible health risk. I’ve read mixed information online.

My husband is almost one year post liver transplant. He was told not to take them by his team. I suggest asking your transplant doctor what the best option is for you.
Blessings,
JoDee

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@garyandrade This is something I have wondered about also but I never get around to asking my transplant team. Before you do it you should definitely check with someone on your transplant team, as @jodeej suggested.

I will be very interested in hearing what they say. I will be three years post-transplant in September. I am on sirolimus because tacrolimus was causing my creatinine to go high so it may be different depending on what immunosuppressant you are on.
JK

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Really probiotics are not much different than yogurt, except their more concentrated, and yogurt is fine.

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I asked my team this a couple of weeks ago and they told me it was ok to take them but not go overboard. I still haven’t taken any, I’m still eating my yogurt though.

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@christyo

I asked my team this a couple of weeks ago and they told me it was ok to take them but not go overboard. I still haven’t taken any, I’m still eating my yogurt though.

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Hi, @christyo. Welcome to Connect. Thank you for reinforcing the idea of checking with out transplant team when we are unsure of what we can safely take. I am going to make my own un-medical guess that it is not a one-size-fit-all answer. I had a liver and kidney transploant 10 yrs ago, and have never inquired about probiotics, but I do enjoy my yogurt!
How long ago did you have your transplant? What organ did you receive?

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No transplant yet — going on the list for a kidney

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@nedpatel55

No transplant yet — going on the list for a kidney

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@nedpatel55, I welcome you to Connect. I have received an organ transplant (liver and kidney) and I expect that you have some fear and anxiety with being in need of a transplant. I know I sure did.
Are you currently listed, or are you in the process of being evaluated? I would like to introduce you to others who share similar experiences if you would be comfortable to share a little about your kidney issue.

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@rosemarya

Hi, @christyo. Welcome to Connect. Thank you for reinforcing the idea of checking with out transplant team when we are unsure of what we can safely take. I am going to make my own un-medical guess that it is not a one-size-fit-all answer. I had a liver and kidney transploant 10 yrs ago, and have never inquired about probiotics, but I do enjoy my yogurt!
How long ago did you have your transplant? What organ did you receive?

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2016 liver

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In reply to @christinelouise "2016 liver" + (show)
@christinelouise

2016 liver

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I finally met with my team at Scripps and they said probiotics are fine. At this point out I’m not severely immunosuppressed. She mentioned if I were getting a bone marrow transplant or certain other situations she would have restricted it. I hope that gives some others some answers. ✌🏽

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Im 10 years post liver transplant. Taking 500mg Cellcept -2x daily . I have Ulerative Colitis. Is it safe for me to take prebiotics & probiotics?

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@bosco17

Im 10 years post liver transplant. Taking 500mg Cellcept -2x daily . I have Ulerative Colitis. Is it safe for me to take prebiotics & probiotics?

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@bosco17 Hi we are not medical experts and questions like this you should run by your transplant team. I do know there are times they are ok but everyone can be different. So even when I am proscribed something from another doctor from my transplant team i always check with them first before taking. Your pharmacist is also a great source to help with drug combinations. Usually i know when a question like this comes up even the Doctors will sometimes check with a Pharmacist. Of your transplant was at a mayo facility the pharmacy at Mayo is an even better resource since they are aware of special issues with the transplant drugs. I hope that helps.
Have a Great Day

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@danab

@bosco17 Hi we are not medical experts and questions like this you should run by your transplant team. I do know there are times they are ok but everyone can be different. So even when I am proscribed something from another doctor from my transplant team i always check with them first before taking. Your pharmacist is also a great source to help with drug combinations. Usually i know when a question like this comes up even the Doctors will sometimes check with a Pharmacist. Of your transplant was at a mayo facility the pharmacy at Mayo is an even better resource since they are aware of special issues with the transplant drugs. I hope that helps.
Have a Great Day

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All the Medical experts follow PROTOCOLS and get treated well by drug companies.. They wont recognize alternative methods or herbs. Let me ask you! Whats happened to the promises of STEMM CELL TREATMENTS? Ill tell you– The drug companies are suppressing it so they can make money selling their toxic drugs that cure one thing and damage 4 others. Eyes wide open!!!!!!

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@danab

@bosco17 Hi we are not medical experts and questions like this you should run by your transplant team. I do know there are times they are ok but everyone can be different. So even when I am proscribed something from another doctor from my transplant team i always check with them first before taking. Your pharmacist is also a great source to help with drug combinations. Usually i know when a question like this comes up even the Doctors will sometimes check with a Pharmacist. Of your transplant was at a mayo facility the pharmacy at Mayo is an even better resource since they are aware of special issues with the transplant drugs. I hope that helps.
Have a Great Day

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I begged to get off cyclosporine for years cause it was destroying my kidneys. Told "oh no" for years !!! Guess what stopped cyclosporine 4 yrs ago and no rejection. I was once told by a very famous Dr. " You dont need immunosuppressats after 10 yrs post transplant, but the drugs make Drs and drug companies alot of money! Keeping us in the dark.

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@bosco17

I begged to get off cyclosporine for years cause it was destroying my kidneys. Told "oh no" for years !!! Guess what stopped cyclosporine 4 yrs ago and no rejection. I was once told by a very famous Dr. " You dont need immunosuppressats after 10 yrs post transplant, but the drugs make Drs and drug companies alot of money! Keeping us in the dark.

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I received a liver and a kidney transplant in 2009. I take both cellcept and tacrolimus and I accept that I will need them for life, unless/until scientific research proves otherwise. I follow a routine lab schedule, and when my labs show abnormal ranges, my dosages are adjusted.

I have only read of identical twins (living kidney donation) not requiring immunosuppressant meds.
@bosco17, What organ did you transplant? Was it from a closely related individual? Would you please share with us where you found this information?

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@bosco17

All the Medical experts follow PROTOCOLS and get treated well by drug companies.. They wont recognize alternative methods or herbs. Let me ask you! Whats happened to the promises of STEMM CELL TREATMENTS? Ill tell you– The drug companies are suppressing it so they can make money selling their toxic drugs that cure one thing and damage 4 others. Eyes wide open!!!!!!

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This is true for the most part, they don't like natural methods, they say they are not approved ,by the FDA. I've seen alternative medicine work, it has been suppressed but some cancer centers have started using alternative methods, stem cell is very complicated, you don't hear much about ti today, I know a transplant surgeon in Texas, who works in that is working with them, he helped with on my transplant in 98 and 2000. I do agree somewhat that they suppress, the natural, but it is less than previous years.

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