Anyone taking Tagrisso for Lung Cancer?

I have stage 4 lung cancer. Doing well on 40 mg

Hi Barbs,I've been on Tagrisso for 8 months now. I get mostly dry nails and chipping or breaking skin on my fingers. In the morning when I brush my hair, I get more hair falling. Perhaps it's dry hair. Drinking more fluids makes a. difference. My system gets regular (somewhat on softer side). every morning. sometimes twice a day. Really this is all I experience. I'm very grateful and lucky I'm doing fairly well on it. I'm sorry for those having more series effects that affecting daily quality of life. Wish you all the best. Hugs and prayers.

@babs1956 well that’s encouraging cause I’m late stage three and right now and I may have this wrong. I have NED so right now for my oncologist. I have no signs of cancer.

I have been on Tagrisso for 19 months and just discovered this online community. Lung cancer was discovered when I had a long bout of Covid and asked my doctor for a chest x-ray. Surgery and chemo followed, and then my oncologist put me on Tagrisso. So far, so good! I am so relieved to read the comments about the same side effects that I've been experiencing. Splitting fingernails, general tiredness and lack of motivation, and leg cramps. The worst is that I've lately developed restless leg syndrome, which forces me to get up from bed and walk around the house for at least ten minutes before it eases enough to go back to sleep... until the next bout. I don't know if this is a result of Tagrisso; has anyone else experienced this? My PCP prescribed gabapentin for restless legs and I've been taking that for about 5 nights now. It does seem to help. I feel guilty complaining about these minor but annoying side effects when so many of you are dealing with much worse, but there it is. Thank you so much for your comments and encouragement.

@babs1956 well that’s encouraging cause I’m late stage three and right now and I may have this wrong. I have NED so right now for my oncologist. I have no signs of cancer.

Hello @kugan ,
Welcome to Mayo, I’ve found so many kind, knowledgeable and helpful people here.
So sorry about your lung cancer diagnosis, surgery and chemo.
Restless leg doesn’t sound fun, such interrupted sleep !
As mamajite said, don’t worry about sharing what you are going through. I’m glad the gabapentin seems to be helping.
🤗 Daisy

.

@daisydays
Thank you for your kind words. I'm feeling good and the gabapentin is working; I haven't had any restless leg issues in 3 whole nights! Even though I'm sleeping better, tiredness is my prevailing issue. Every afternoon I crash by 1:30 or 2, and sleep for an hour if I can. I try not to schedule afternoon commitments if possible, which hasn't worked much this week. 🙂 Anyone else having this almost constant weariness?

@daisydays
Thank you for your kind words. I'm feeling good and the gabapentin is working; I haven't had any restless leg issues in 3 whole nights! Even though I'm sleeping better, tiredness is my prevailing issue. Every afternoon I crash by 1:30 or 2, and sleep for an hour if I can. I try not to schedule afternoon commitments if possible, which hasn't worked much this week. 🙂 Anyone else having this almost constant weariness?