Anyone taking Tagrisso for Lung Cancer?

Posted by babs1956 @babs1956, Jan 27, 2025

Is There anyone taking Tagrisso And feeling well on it. I’m taking 40 mg of Tagrisso I have a little bit of Dizziness. I was on 80 mg but I developed a lot of bruising on my legs so my doctor put me On 40 mg. Is this a good drug?

Thank you so much,
Barbara

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frane | @frane | May 15 8:39am

I’m actually writing on behalf of my sister. No bruises, just heart problems.

babs1956 | @babs1956 | May 15 7:56am

In reply to @frane "Is anyone here also dealing with heart issues?" + (show)

@frane yes I am taking 40 mg. I tried the 80 but I developed all these bruises on my legs. I’m doing very well on 40 mg. How long have you been taken to Tagrisso.

frane | @frane | May 15 6:11am

Is anyone here also dealing with heart issues?

158839446 | @158839446 | May 15 5:53am

Wow! So many great suggestions. Thanks everyone.
I am on 80mg of Tegrisso for Stage 4 metastatic lung cancer since March 29, 2025. I experience many of the side effects, however , i went from unbearable pain for three months before diagnosis and two months, thank God, after treatment I was able to walk again.
Using floss, pick, water pik, brush, and mouth wash after eating has helped. At first, mouthwash and toothpaste were so uncomfortable. My dentist recommended Cloysis and this helped.
The journey has been remarkable since taking Tegrisso.

almarodel | @almarodel | May 14 7:12pm

Thanks to all for your response! It help’s to hear how others are dealing with the side effects! The main thing is to keep going, trust in God and your oncologist and in yourself. Find what works for you and share with others. That’s what support groups are about!
You know that we are all grateful to be alive and we understand each other! God bless! I have found that the baking soda & salt in water soothe mouth sores the most!

artistrose | @artistrose | May 14 3:40pm

Thanks for the tips!

mamajite | @mamajite | May 14 2:32pm

In reply to @artistrose "I’ve only been on Tagrisso 80 for a couple months. I’m grateful for it as I’ve..." + (show)

@artistrose I'm glad Tagrisso is going well for you. I found adding almond oil after applying lotion helps even more. I also use a moisturizing sugar scrub in the shower that has shea butter.

vking | @vking | May 14 12:03pm

In reply to @almarodel "I have been on Tagrisso 80 mg for 2years on July 10, 2026. I was diagnosed..." + (show)

I had stage 4 lung cancer but after 2 years on Tagrisso my Pet scan cannot detect any cancer. I have had lots of side effects but have conquered most of them. For muscle cramps or spasms, spray Magnesium oil directly on the area. The cramp should release within a few seconds. I had Diarrhea for months until I found a product that worked. It is called EMMA , made by Enclove Bioactives. I take it every day and no more diarrhea. Make sure that you order it directly from the company (I found it on EBAY, but it is a fake product). For mouth sores, I tried the magic mouthwash and it just made my mouth numb, no healing at all. Rinse with baking soda water several times a day. Also, check your toothpaste. I read that fluoride can aggravate mouth sores, so I started using Dessert Essence toothpaste with tea tree and neem (no Fluoride). Within a few days, all of my mouth sores were gone and have not come back. I also had a stomach issues. I found that acupuncture really helped. Hope this helps you.

fightingbluehen69 | @fightingbluehen69 | May 14 10:15am

In reply to @almarodel "@fightingbluehen69 Thank you! I use miracle mouthwash and it’s good but only last temporary, salt water..." + (show)

@almarodel
There’s also sucralfate, coats esophagus. We just got that. Yes the magic mouthwash doesn’t last long, but the baking soda rinse after eating really works well! I like Aveeno baby eczema products and Cerave cream- both are unscented and soothing for dry skin. Asking for an extra liter of fluids at infusions does help as well.

artistrose | @artistrose | May 14 9:52am

I’ve only been on Tagrisso 80 for a couple months. I’m grateful for it as I’ve just dropped chemo after combo cycle 3 due to bad side effects. My side effects on Tagrisso are very minimal. I brush my teeth with Arm & Hammer toothpaste and rinse with baking soda and water and my mouth does pretty good. Use lots of lotion for dry skin. I’m hoping your posts don’t mean side effects get worse the longer I’m on it, since it’s my only treatment currently.