What were your symptoms of pancreatic cancer?

Posted by stpatrick1949 @stpatrick1949, Mar 20 2:05am

Interested in symptoms pancreatic cancer

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

No symptoms. Just narrowing of pancreatic duct. Tumour seen last year and removed this year.

REPLY

Concerned Mom. My son is 28 he had his gallbladder removed last year. We thought that was the issue. He was good for 2 weeks. We have been to countless ER’s, Egd, colonoscopy.
Last year he was hospitalized for pancreatitis. No history of drugs or alcohol. Pain is right upper rib cage and radiates to the back of his shoulder blades. This is now been going on for weeks of and on. The one ER said he had gastritis wouldn’t do a CT scan just did x-ray and ultrasound and said no stones from previous gallbladder. He’s nauseous, never vomits, pain is severe and he just keeps working because he has a demanding job. Gastro doctor ordered stool sample sent it back 2 days ago. Also trying to get him scheduled for an MRCP test.
At what point do you just pull your hair out and scream at someone and say “please help my son”. I am a prior healthcare provider and just don’t wanna see my one son suffering. He’s so frustrated that he said I’m not going to the ER they just discount me and send me back home.
I’m concerned they are missing something serious with him. He can’t lay flat, he has bought me of bloating, diahrea, pain never goes away. Anti nausea and pain meds don’t help.
Sorry for the long message. I may not even be in the right group but someone here may be able to help. Thank you so much for taking the time to read this

REPLY
Profile picture for patriotestate1 @patriotestate1

Concerned Mom. My son is 28 he had his gallbladder removed last year. We thought that was the issue. He was good for 2 weeks. We have been to countless ER’s, Egd, colonoscopy.
Last year he was hospitalized for pancreatitis. No history of drugs or alcohol. Pain is right upper rib cage and radiates to the back of his shoulder blades. This is now been going on for weeks of and on. The one ER said he had gastritis wouldn’t do a CT scan just did x-ray and ultrasound and said no stones from previous gallbladder. He’s nauseous, never vomits, pain is severe and he just keeps working because he has a demanding job. Gastro doctor ordered stool sample sent it back 2 days ago. Also trying to get him scheduled for an MRCP test.
At what point do you just pull your hair out and scream at someone and say “please help my son”. I am a prior healthcare provider and just don’t wanna see my one son suffering. He’s so frustrated that he said I’m not going to the ER they just discount me and send me back home.
I’m concerned they are missing something serious with him. He can’t lay flat, he has bought me of bloating, diahrea, pain never goes away. Anti nausea and pain meds don’t help.
Sorry for the long message. I may not even be in the right group but someone here may be able to help. Thank you so much for taking the time to read this

Jump to this post

Sorry to hear the news. My son who was same age as your son, had gastrointestinal issues where test results were only borderline abnormal. Countless visits to drs and countless testing and nothing definitive ever came up. He was an auditor at a very busy accounting firm - working days and then getting work once he got home that he had to do. More testing is needed for your son, ct or mri? Is he on any digestive enzymes following his surgery?

REPLY

He is only taking Levison and that isn’t evening helping him now. We have tried diets, vitamins all kinds of things and nothing so now we are waiting for the GI doctor to call him back and let him decide what to do. They were trying to expedite his MRCP test.

REPLY
Profile picture for patriotestate1 @patriotestate1

Concerned Mom. My son is 28 he had his gallbladder removed last year. We thought that was the issue. He was good for 2 weeks. We have been to countless ER’s, Egd, colonoscopy.
Last year he was hospitalized for pancreatitis. No history of drugs or alcohol. Pain is right upper rib cage and radiates to the back of his shoulder blades. This is now been going on for weeks of and on. The one ER said he had gastritis wouldn’t do a CT scan just did x-ray and ultrasound and said no stones from previous gallbladder. He’s nauseous, never vomits, pain is severe and he just keeps working because he has a demanding job. Gastro doctor ordered stool sample sent it back 2 days ago. Also trying to get him scheduled for an MRCP test.
At what point do you just pull your hair out and scream at someone and say “please help my son”. I am a prior healthcare provider and just don’t wanna see my one son suffering. He’s so frustrated that he said I’m not going to the ER they just discount me and send me back home.
I’m concerned they are missing something serious with him. He can’t lay flat, he has bought me of bloating, diahrea, pain never goes away. Anti nausea and pain meds don’t help.
Sorry for the long message. I may not even be in the right group but someone here may be able to help. Thank you so much for taking the time to read this

Jump to this post

Hello @patriotestate1 and welcome to Mayo Connect. I can certainly understand your son's frustration with the post-surgery symptoms he has been having. It can be difficult to return to a normal lifestyle with all of these problems.

As you asked if you were posting in the right group, I would suggest that you post in the Digestive Health support group. Here will find many discussions about post-gallbladder surgery problems. Here is a link to a few of them.

--Sphincter of Oddi-Dysfunction
https://connect.mayoclinic.org/discussion/i-have-sphincter-of-oddi-dysfuncfion-it-causes-severe-upper-abdominal-pain/
--Dealing with symptoms after Gallbladder Surgery
https://connect.mayoclinic.org/discussion/gallbladder-surgery/?pg=2
--Post cholesectomy gallbladder removal
https://connect.mayoclinic.org/discussion/post-cholesectomy-gallbladder-removal-chronic-back-pain/?commentsorder=newest#chv4-comment-stream-header
You mentioned that you are a prior health care provider, so you undoubtedly understand that after the gallbladder has been removed, certain changes to diet need to be made. Has your son adjusted his eating habits since his surgery?

Finally, a second opinion might be in order. Ideally, this second opinion is best obtained from a multi-disciplinary health care system like Mayo Clinic (http://mayocl.in/1mtmR63) or a university health care system.

I hope that you son finds some answers and relief for his issues. Will you continue to post and let me know how he is doing?

REPLY
Profile picture for ayeo @ayeo

I was diagnosed with Stage 3 Pancreatic Cancer and underwent the Whipple surgery a month ago as it did not spread to nearby or other organs.

Symptoms before I knew I had pancreatic cancer are:
- bloating
- pain in back near right shoulder blade
- tea coloured urine
- yellowing of skin
- tiredness

Jump to this post

Hi. Did this pain in your upper right back worsen after eating? Sorry for your diagnosis. Thank you.

REPLY
Profile picture for cheytag @cheytag

Hi. Did this pain in your upper right back worsen after eating? Sorry for your diagnosis. Thank you.

Jump to this post

Often yes, especially if fat is consumed. So many things have fat. Get a list off the internet of foods to eat and avoid with PC. Mayo must have one although I am using one from Stamford. Your Dr should provide or provide access to nutritionist. But, yes, definitely pain after eating not unusual.

REPLY
Profile picture for carlalee @carlalee

Often yes, especially if fat is consumed. So many things have fat. Get a list off the internet of foods to eat and avoid with PC. Mayo must have one although I am using one from Stamford. Your Dr should provide or provide access to nutritionist. But, yes, definitely pain after eating not unusual.

Jump to this post

Pain may be anywhere in back and sides. Again, individuals are different.

REPLY
Profile picture for patriotestate1 @patriotestate1

Concerned Mom. My son is 28 he had his gallbladder removed last year. We thought that was the issue. He was good for 2 weeks. We have been to countless ER’s, Egd, colonoscopy.
Last year he was hospitalized for pancreatitis. No history of drugs or alcohol. Pain is right upper rib cage and radiates to the back of his shoulder blades. This is now been going on for weeks of and on. The one ER said he had gastritis wouldn’t do a CT scan just did x-ray and ultrasound and said no stones from previous gallbladder. He’s nauseous, never vomits, pain is severe and he just keeps working because he has a demanding job. Gastro doctor ordered stool sample sent it back 2 days ago. Also trying to get him scheduled for an MRCP test.
At what point do you just pull your hair out and scream at someone and say “please help my son”. I am a prior healthcare provider and just don’t wanna see my one son suffering. He’s so frustrated that he said I’m not going to the ER they just discount me and send me back home.
I’m concerned they are missing something serious with him. He can’t lay flat, he has bought me of bloating, diahrea, pain never goes away. Anti nausea and pain meds don’t help.
Sorry for the long message. I may not even be in the right group but someone here may be able to help. Thank you so much for taking the time to read this

Jump to this post

Go to a different ER. Emphasize pain. Don't be brave. They must find source of pain. This is serious.

REPLY
Profile picture for carlalee @carlalee

Often yes, especially if fat is consumed. So many things have fat. Get a list off the internet of foods to eat and avoid with PC. Mayo must have one although I am using one from Stamford. Your Dr should provide or provide access to nutritionist. But, yes, definitely pain after eating not unusual.

Jump to this post

Thank you. I have had my GB removed many years ago. Have had three bouts of pancreatitis, only the first one attributed to alcohol. I keep getting “idiopathic” pain in my URQ into back after meals starts out mild after occasional meals now it’s all the time no matter size, frequency, type. This happened 3 years ago with no findings. My grandmother on my father’s side died of pancreatic cancer and now my father dies just a few months ago of PC. Maybe I’m just being ultra paranoid now…
Thank you for your reply ❤️

REPLY
Please sign in or register to post a reply.