Symptoms of pancreatic cancer can vary from patient to patient as a result of the type of pancreas cancer (Exocrine or Neuroendocrine) and location (head, uncinate process, body, tail). This link breaks down signs/symptoms based on the above parameters. https://letswinpc.org/symptoms/
So sorry to read you have begun on your journey . Although it feels very slow at the time, as I look back on my husbands diagnosis process things happened in a whirlwind at the time, at the same time it felt so slow just wanting the clear diagnosis and path forward. On another note the C19 test referred to we were just recently told by the Oncologist that is not always reliable. Since his was 2 to begin with and remains at a 2 post surgery she said "for him" we cannot rely on that as a marker , as with some others . It may never change (although i wish we could take that number and say it was all a nasty mistake.
Good luck to you @stpatrick1949 on your journey.
I went in and told my primary Doctor that I thought I had pancreatitis and she said oh no you would be in the hospital. I told her I have a high pain tolerance. Thank goodness she listened to me. I had a CT scan the next day. She called me a day later and said the found a spot on your pancreas. Then she schedule me for a endoscope and they confirmed that it was cancer he had to put in a Stent in the bile duct because it was partially closed. Was determined that it was stage 1 pancreas cancer. Went and seen the surgeon that next week. Went and had port put in the following week and then started chemo. I just told my Doctor that I was having all the symptoms related to the pancreas. Thank goodness she listened and I did Thank her alot for listening.
My story is similar only l had no pain but very jaundiced. I too had an endoscope with a stent because a tumor in it’s infancy blocked the bile tube. I couldn’t leave the hospital till the bilirubin level would drop. The following morning the doctor came in and told me that this is a stage 1 cancer, and l have a very high chance of surviving. It came out 30 days later when l had a robotic whipple. The surgeon took 20 lymph nodes which were all normal, no cancer. I did capecitabine chemo which gave me neuropathy and l had to stop and then start again. Then the bile tube that the surgeon build from other tissue started to close, so l had to have biliary tubes inserted in my liver for 6.5 months. I had to go every 2 weeks to have the tubes removed and new bigger tubes put in. The surgeon took me off the creon and l do feel good. I am close to 3 years now. I am finding out how different we all are affected and how our recovery is also very different.
Thank you for the information.I am an RN and recently have had some strange symptoms, namely pain under the sternum, abdominal cramping, like something is eating my insides, strange looking stools, constipation.Can't get in to see a GI until end of April .I have known and cared for many patients and they all have different symptoms.It is interesting how this disease presents itself. Prayers for you and your husband in this journey.
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Symptoms of pancreatic cancer can vary from patient to patient as a result of the type of pancreas cancer (Exocrine or Neuroendocrine) and location (head, uncinate process, body, tail). This link breaks down signs/symptoms based on the above parameters.
https://letswinpc.org/symptoms/
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2 ReactionsMa'am, was your husband told he had ductal cell pancreatic cancer or acinar cell pancreatic cancer?
My story is similar only l had no pain but very jaundiced. I too had an endoscope with a stent because a tumor in it’s infancy blocked the bile tube. I couldn’t leave the hospital till the bilirubin level would drop. The following morning the doctor came in and told me that this is a stage 1 cancer, and l have a very high chance of surviving. It came out 30 days later when l had a robotic whipple. The surgeon took 20 lymph nodes which were all normal, no cancer. I did capecitabine chemo which gave me neuropathy and l had to stop and then start again. Then the bile tube that the surgeon build from other tissue started to close, so l had to have biliary tubes inserted in my liver for 6.5 months. I had to go every 2 weeks to have the tubes removed and new bigger tubes put in. The surgeon took me off the creon and l do feel good. I am close to 3 years now. I am finding out how different we all are affected and how our recovery is also very different.
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8 ReactionsI would try to get a patient advocate to get me in to see another doctor. Having to wait until late April is too long to wait for.