Anyone having long COVID symptoms after years?

Posted by christophershears @christophershears, May 31, 2022

To whoever wants to read this,
It is 5/31/2022. I had covid 3 Januarys ago. I was hours from being talked into going to emergency. The only reasons I did not go was due to the facts that I found a way to breath and, while the fever was up, it was not out of control. Anyway, To this day I still have issues with concentration, fatigue, taste, smell, appetite, dizziness and worst of all patience. Is there any data on LONG term issues as of yet?
I also am wondering about possible additional disease activation?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

There is a lot of research and studies on long Covid. Many hospital systems in larger cities now have long term Covid clinics. Your symptoms may make you eligible. You should ask for a doctor referral from your general/family doctor. They should help.

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I am just 7 months out. I reached out to Mayo clinic in Rochester, MN and their long covid clinic. I learned so much about why my body is doing what it is and ways to calm it. My regular doctor supported this. I reached out on my own. Don't necessarily need a doctor to make the connection.

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My husband &I both had Covid 3. January’s ago. I have all the lingering symptoms you spoke of, and he does not. Recently on this Mayo connect a link was shared to “amyloid microclots”. Heavy reading but superbly enlightening…..capillaries are blocked from transporting oxygen all over your system. Try google

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@tiredmommy

There is a lot of research and studies on long Covid. Many hospital systems in larger cities now have long term Covid clinics. Your symptoms may make you eligible. You should ask for a doctor referral from your general/family doctor. They should help.

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My primary doctor isn't help me at all I live in VA; I had reach out on my own to a post Covid clinic in my area, Norfolk, VA. I've been telling my primary care about my system of lack of concentration & focus, fatigue, chronic knee painhas worsened since February 2021 with Covid diagnosis, hx of a blood clotting disorder for 35 years 1st episode of pulmonary embolism at age 19, 3rd pulmonary embolism with Covid before I could get a shot, shot schedled Jan. 31, 2022, my husband got Covid from his job due to high transition rate ; we were both scheduled for shots the same day @ our Church & had signed with our local health department/ Vdh (we heard from the VDH in March 2021 after our diagnosis & my admission to the hospital due blood clotting medication failing due Covid which my primary care doctor admitted
me for 2/18/21, discharge to home on oxygen & a different blood thinning medicine. My PC/ Internist had me stay for 3 months, sent me back to work full-time, May 3, 2021, persistent short of breath & fatigue working preschoolers. Even though, I asked to return to work half days for a couple weeks to see how I would see how I would tolerated it.
My primary doctor refused & sent me back to work full-time. I was off from the end of June until the end of August 2021. Had a visit with my Primary care dr during, blood dr & pulmonologist
also before returning to work in August symptoms better but still persistent SOB & brain fog (made all of these medical dr's aware), was sent back to work again. In Sept. 2021, I sat at my desk for weeks & cried
@ sometime daily because I couldn't remember how to work my desk top; called IT several times daily & lucky I had a co-worker that had work with me for over 14 years, was aware that I was unable to function rhe way I functioned in previous years prior to the Covid diagnosis & told that I call her whenever needed for help ( I would call her 4-6 times in a 8 hour shift 5 days a week. Visited with Primary care Dr. (Oct 2021 & blood dr again in Nov. 2021. Told both doctor's about my lingering symptoms SOB & brain fog; neither doctor referral me to another specialist for following uo testing. Have not had any test of my heart, brain or lungs since I was in the hospital Feb. 2021. Primary
care dr told me, I need to lose weight, and that I have anxiety and depression but I was not referred to any other specialist. When I called a psychiatrist
trying get help on my own. I was given medication for this diagnosis. It seemed to help for a little. But the symptoms still persists & got worst as my work load increased as preschoolers returned & were being quartined almost daily from Sept- Jan. & with no Covid shots for there age group.
My Primary care dr. doesn't acknowledge my symptoms at all. Nov. & Dec. told my Primary care about increase pain, in my right heel my right & right then my left hip begain to hurt from the way I was walking . I still wasn't refered to another doctor. Went to a foot dr because I could hardly walk, the foot dr offered a cortisone shot in my heel, I asked the foot if something else could be tried before shot. Foot dr put my on steroid pills & gave me a boot to wear that didn't work. In January 2022. I ended of getting a heel injection for heel spur. In November 2021 . I went to an ortho pediast for left hip pain & was given a
steroid injection in my left hip due previously diagnosed osteoarthritis. I had hip & pain in my knees several years prior to Covid but I was working full-time
but the pain was manageable with medication by & tylenil during weather changes. My PC told me I need to lose weight & has not acknowledged any of my symptoms post-covid. I just had my first visit at a dr studying longerhaulers in the end of May 2022. Called that dr in Nov. 2021 but couldn't get in without a referral from my primary care. Kept calling back & telling them about my symptoms & they finally agreed to se me but I they needed my Covid results first. My co-worker that I mention earlier to off a day or so & I was able to function without that persons help to navigate policies & computer, I called my new boss who was new to the job but could not help & didn't know what to do because of being new with with no knowledge of the job. I finally ended up leaving the job. Does any one have any suggestions of what to do next? I feel so frustrated,it difficulty to find the help that I need.

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There are two Covid clinics in Virginia that I’m aware of. One with Inova hospital systems (https://www.inova.org/patient-and-visitor-information/covid-19-advisory/post-covid-19-recovery-and-rehabilitation) and one in Lynchburg called Centra Medical Group (https://www.centrahealth.com/post-covid-recovery-care-program). I need my dr referral to try either so I’m waiting on dr referral. In interim, I decided to go to neurologist and rheumatoid specialist on own to seek help. I’m so sorry to hear all your struggles. I’m new to this community but want you to know I’ve been so impressed with the kindness and compassion. I hope you find some good solutions soon.

There is a Facebook group called “Women Long Haulers with Covid” and that is where I learned about the Centra Medical Group in Lynchburg. I’m new to it so not sure if I’d completely recommend this group, but sharing as I feel like so many of us are looking for answers.
https://www.facebook.com/groups/242133294160286/?ref=share

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Both the CDC and NIH (National Institute of Health) have tons of information, research literature, and insight about Long Covid. They are reputable sites for accurate information.

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Hi @christophershears and @frj56, I would like to add my welcome to Connect along with @rinadbq, @tiredmommy, @bettyjackson, @leen and others. You might find the following discussions helpful also:

— Any tips to help recovery for a COVID Long-Hauler?: https://connect.mayoclinic.org/discussion/long-hauler/
— Could I be a COVID Long-hauler even with a negative test?: https://connect.mayoclinic.org/discussion/do-covid-long-haulers-test-neg-or-pos/

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@bettyjackson

My husband &I both had Covid 3. January’s ago. I have all the lingering symptoms you spoke of, and he does not. Recently on this Mayo connect a link was shared to “amyloid microclots”. Heavy reading but superbly enlightening…..capillaries are blocked from transporting oxygen all over your system. Try google

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That sounds interesting. I'm going to look into that for starters. Have either of you been vaccinated?
Personally, With Vaccines having an approval system the same as dietary and homeopathic drugs, I wouldn't touch it with someone else's arm. Not to mention no liability. But that is for a different site. Apologies…

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@christophershears

That sounds interesting. I'm going to look into that for starters. Have either of you been vaccinated?
Personally, With Vaccines having an approval system the same as dietary and homeopathic drugs, I wouldn't touch it with someone else's arm. Not to mention no liability. But that is for a different site. Apologies…

Jump to this post

We went ahead with the initial 2 Pfizer vacs in spring 2021 and last fall had 1 booster. We are simply done done done.
Here is the full scoop for long covid research:
https://www.researchsquare/article/rs-1205453/v1
Fibrin amyloid micrclots
Explained alot to me that I am not nuts!

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Yes. I have been POST covid for over 2 years

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