Could I be a COVID Long-hauler even with a negative test?

Posted by otter2154 @otter2154, Mar 27, 2021

A pulmonologist diagnosed me with Adult Moderate Persistent asthma a few months ago. Now I’m not so convinced. I remember having debilitating chills, night sweats, phantom aches and pains, and overwhelming fatigue with serious cough and breathlessness back in early November. I tested Neg for Covid at the end of December. Though I am on asthma meds, I’m finding that my symptoms are slowly, and gradually improving (I’m finally feeling better) and that the asthma meds are becoming seemingly ineffective. I spoke with an old acquaintance yesterday who has been through the exact same cycle of symptoms that I have, and he suggested I could have had Covid earlier last Fall, not known it, and could be recovering from long-haul. (I mostly struggle with some cough now and excess mucus.) Could this be possible with a Neg Covid test in late Dec?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 group.

@otter2154– Good morning. If you are improving wouldn't you suspect that it is asthma meds that are doing this? Sometimes it takes a while for asthma meds to kick in. Have you been tested for antibodies for COVID-19?

Those symptoms also sound as if you might have had another virus or even the flu. I think that we forget that there are other "bugs" out there other than COVID-19.

Anything is possible with COVID-19 tests. They aren't 100% accurate. However, your cough and mucus are sure signs of Asthma. Would you be willing to get an anti-body test? Have you received any of the vaccines yet? How did you do with those?

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@merpreb

@otter2154– Good morning. If you are improving wouldn't you suspect that it is asthma meds that are doing this? Sometimes it takes a while for asthma meds to kick in. Have you been tested for antibodies for COVID-19?

Those symptoms also sound as if you might have had another virus or even the flu. I think that we forget that there are other "bugs" out there other than COVID-19.

Anything is possible with COVID-19 tests. They aren't 100% accurate. However, your cough and mucus are sure signs of Asthma. Would you be willing to get an anti-body test? Have you received any of the vaccines yet? How did you do with those?

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I got my first of two Pfizer doses this past Tuesday (second one on April 20th). I felt poorly later that evening but bounced back the next day. I have been told that you will test pos on the anti-body test after the vaccine (but who knows). You raise good points. Thanks.

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@otter2154

I got my first of two Pfizer doses this past Tuesday (second one on April 20th). I felt poorly later that evening but bounced back the next day. I have been told that you will test pos on the anti-body test after the vaccine (but who knows). You raise good points. Thanks.

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@otter2154– THere are a lot of myths out there about the vaccines and COVID-19 in general.

THe vaccines will not cause a positive result on the tests.
https://www.cdc.gov/coronavirus/2019-ncov/vaccines/facts.html

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@merpreb

@otter2154– THere are a lot of myths out there about the vaccines and COVID-19 in general.

THe vaccines will not cause a positive result on the tests.
https://www.cdc.gov/coronavirus/2019-ncov/vaccines/facts.html

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Thank you. After all I’ve been through the last 4-months, I’m feeling well enough to attempt a 12-mile bike ride this afternoon. It’ll be slow and steady … I’ve missed my bike.

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@otter2154

Thank you. After all I’ve been through the last 4-months, I’m feeling well enough to attempt a 12-mile bike ride this afternoon. It’ll be slow and steady … I’ve missed my bike.

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@otter2154– With Asthma? I would say that you are progressing very well. Enjoy your ride!

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Did you have a Covid test, or a Covid antibody test? The test for the Covid infection may only be positive for a couple of days when the virus is most active in your body, and would definitely be negative weeks or months later unless you were reinfected. The symptoms, on the other hand, can last for months and change over time.
Persistent lung issues are one of the hallmarks of long Covid, and some do clear up eventually, others seem to become long-term. If you are okay after a 12 mile bike ride today, I would say you're a lucky one. But now that you are feeling better, your lungs need another look by the pulmonologist to see if what appeared to be asthma has cleared up so you can stop any unneccesary meds. Also, keep this episode in the back of your mind – once lungs have been badly affected by any illness, they become more vulnerable to infection in the future.

Sue

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Thanks for your reply. I got a negative on a COVID test, about 45-days after the severe symptoms. I just completed my 12-mile bike ride … first time since probably Oct and it went well. I did have to walk up one big hill, but I’m also a bit out of shape. I am seeing my pulmonologist on April 20th for review. I know I will have to be more careful in the future. We wash our hands as soon as we get home from anywhere, bought some good air purifiers … and I will probably always wear a mask on airplanes going forward (Pandemic or not). Regards.

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Suggest you try an immunity test, I have your symptoms n just had antibody test and showed strong immunity. I was hospitalized for covid19 in Dec. .

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I got sick in February 2020 and could not get in to test due to the symptoms and my fever had subsided. Took an antibody test 7 months later (gets sent to Mayo) and that came back normal yet I continue to struggle with fatigue and inflammation. My Osteo doctor diagnosed me as a covid long hauler however she left my healthcare provider and I can only point to her diagnoses notes. I have a new primary now and we are starting from scratch with bloodwork and imagery. Thank you!

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@bbartolotto

I got sick in February 2020 and could not get in to test due to the symptoms and my fever had subsided. Took an antibody test 7 months later (gets sent to Mayo) and that came back normal yet I continue to struggle with fatigue and inflammation. My Osteo doctor diagnosed me as a covid long hauler however she left my healthcare provider and I can only point to her diagnoses notes. I have a new primary now and we are starting from scratch with bloodwork and imagery. Thank you!

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Hi @bbartolotto, welcome to the post-COVID group. You'll notice that I moved your question to this existing discussion where @otter2154 was asking as similar question "Could I be a COVID Long-hauler even with a negative test?" I did this so you can connect and to review the previous comments.

You mention that your new primary care physician is "starting from scratch" with bloodwork and imaging studies. Do they also have your previous lab results and imaging studies to compare with? What led your osteo doctor to conclude long-COVID?

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@colleenyoung

Hi @bbartolotto, welcome to the post-COVID group. You'll notice that I moved your question to this existing discussion where @otter2154 was asking as similar question "Could I be a COVID Long-hauler even with a negative test?" I did this so you can connect and to review the previous comments.

You mention that your new primary care physician is "starting from scratch" with bloodwork and imaging studies. Do they also have your previous lab results and imaging studies to compare with? What led your osteo doctor to conclude long-COVID?

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Hi, @colleenyoung. Thank you for accepting me in to the group and thank you for moving my post to the existing discussion. I'll do a search next post for similar discussions.

Yes, I am with Ridgeview clinics and they do have the previous lab results and imaging studies however they have been spread out over almost two years now and were done with two previous doctors. My osteo doctor came to the conclusion based on length of symptoms and the close contact I had with people who tested positive. In addition, she had some experience with antibody tests coming back negative after several months after the person tested positive. I do have everything chronicled on MyChart which is very helpful.

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